2049v
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Sep 28, 2024 at 3:21 PM
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2049v

Member, Male, from London

Sure, why would I be part of the lucky majority? I often forget that I came to this world just to suffer. Sep 23, 2024 at 6:20 AM

2049v was last seen:
Sep 28, 2024 at 3:21 PM
    1. 2049v
      2049v
      Sure, why would I be part of the lucky majority? I often forget that I came to this world just to suffer.
      1. Pinhead likes this.
    2. 2049v
      2049v
      I also don’t want anyone’s love, nor do I need it. Just save me from this torment, that’s enough.
      1. L along the way likes this.
      2. L along the way
        L along the way
        If i could have the most wonderful girlfriend in the world, or have the t be gone, i'd definitely choose the t be gone. No doubt about it. This stuff has been harsh. Every day i keep praying it will get better in time
        Sep 23, 2024 at 12:41 PM
        kingsfan likes this.
      3. 2049v
        2049v
        @L along the way, I can hear it over everything. It’s as if it’s being transmitted to me through a different audio channel. Unfortunately, there’s no way to beat this fucking thing.
        Sep 23, 2024 at 3:59 PM
        L along the way likes this.
      4. L along the way
        L along the way
        @2049v there's no way of beating this with any sort of force.. the acoustic harm has really injured me i feel like.. the only hope i have is that healing can take place with natural living and time..
        Sep 24, 2024 at 9:29 AM
        2049v likes this.
    3. 2049v
      2049v
      My family and friends still love me, or rather the old me, but I’m not the old me anymore.
      1. Pinhead
        Pinhead
        This is exactly what I tell everyone. You really did like me pre-March 2021. I'm not that person anymore, nor can I ever be that person again.
        Sep 23, 2024 at 7:50 PM
      2. 2049v
        2049v
        @Pinhead, I'm struggling so bad, man. I spent my whole day crying.
        Sep 24, 2024 at 11:49 PM
    4. 2049v
      2049v
      I had floaters a year before my T. Were the floaters a sign that T was coming? They started suddenly, just like T did.
    5. 2049v
      2049v
      Every night, siren sounds explode in my ears, making me think about my future suicide. One day, I’ll finally be free from this.
      1. tpj likes this.
    6. 2049v
      2049v
      I am a physically and mentally strong person but due to the catastrophic tinnitus I have, I am struggling not to end my life soon.
      1. streifzug likes this.
    7. 2049v
      2049v
      I have the worst addiction in the world, there’s nothing worse than this: masking sounds, I wish I could die from an overdose.
      1. L along the way and _Shoto_ like this.
      2. L along the way
        L along the way
        I also listen to calming sounds a lot. And am trying to sleep a lot. The difficulty with T is that I had troubles sleeping. But yeah.. plenty of sleep when it's possible seems like a good thing.. but pffft.. it has been harsh.. hoping for a better day
        Sep 18, 2024
      3. 2049v
        2049v
        @L along the way, Most of the time, I can’t live without ACRN and masking sounds. It’s inevitable that I will have to work remotely but I haven’t found a job yet. Even if I did, can life even be called life like this? Fuck this BS man. I'm so tired.
        Sep 18, 2024
        L along the way likes this.
    8. 2049v
      2049v
      I’m one of the those in the world with inner ear damage that has led to the most diseases and symptoms. Nice to meet you.
      1. L along the way likes this.
      2. L along the way
        L along the way
        Suffering :( unwellbeing :( i'm longing for the opposites of these things, the natural way
        Sep 16, 2024
        2049v likes this.
      3. 2049v
        2049v
        Sep 16, 2024
      4. L along the way
        L along the way
        @2049v well it hasn't been just a straight line 1 thing experience in that sense.. but indeed.. the general sense of all these past years have been enduring the days.. instead of enjoying the days.. :( i hope we can experience more joy, aliveness and health in the days to come
        Sep 17, 2024
        2049v likes this.
    9. 2049v
      2049v
      While everything around me moves at full speed, my life feels like it’s come to a standstill. It’s like I’m watching from behind a glass.
      1. streifzug likes this.
      2. View previous comments...
      3. ECP
        ECP
        My tinnitus used to be much louder and more reactive. There were also many more different sounds that changed throughout the day. My pain level and brain fog and depression were also much worse. I still have all these symptoms, just at a lower level. The improvement isn't obvious from one day to the next. It's observable only when comparing different points in time that are several months apart.
        Sep 16, 2024
        Nettles likes this.
      4. ECP
        ECP
        I still fall into the Mariana Trench sometimes. Quiet hobbies and distractions help because they keep my mind from thinking about my problems. It's a conundrum, though, because the worse my symptoms are, the harder it is to distract myself and feel like I'm climbing out of the trench. Then I get even more upset. I've had to teach myself how to relax and patiently wait for something to improve.
        Sep 16, 2024
      5. ECP
        ECP
        For what it's worth, I read somewhere that a water lily has roots in muddy water. It can't blossom until it grows tall enough to break the surface of the water. The mud fertilizes the water lily plant, and ultimately that mud is what makes the plant grow tall enough to transcend the water and bloom. I try to meditate on that when I'm depressed, so I'm sharing that in the hope that it helps you too. Big hugs to you.
        Sep 16, 2024
        2049v likes this.
    10. 2049v
      2049v
      Oh my dear ACRN, what would I do without you? When nothing else helps, you’re by my side. I’m so glad you’re here.
      1. View previous comments...
      2. Yellowblue44
        Yellowblue44
        Do you play it on low volume? And it doesnt make your h worse ?
        Sep 23, 2024 at 8:28 PM
      3. Yellowblue44
        Yellowblue44
        Just played. Can i ask, how does playing another T type tone help? It was horrible just like my T
        Sep 23, 2024 at 8:32 PM
      4. 2049v
        2049v
        @Yellowblue44, I prefer the sound to come from an external source rather than inside my brain. It partially helps me. It needs to be played at a frequency close to the ringing frequency, with an adjustment to the sequence.
        Sep 24, 2024 at 11:51 PM
    11. 2049v
      2049v
      I have suicidal tinnitus. No one can understand this apart from those who actually took their lives over it.
      1. View previous comments...
      2. 2049v
        2049v
        @Yellowblue44, Yes, I have hyperacusis. The biggest obstacle to going outside is that as I am exposed to sound, I start to lose my balance, feel like I’m drunk, and experience confusion. I experience this when I’m outside, at the market; it doesn’t have to be a very loud sound for me to feel this way. On some days, I can’t cope without masking sounds. As that fucking sound screams in my ear, I want to kill myself.
        Sep 18, 2024
      3. Yellowblue44
        Yellowblue44
        Sounds like you may have merines which could be causing dizzyness. Medication for that should help. Have you seen an ent yet? If you can mask your T then that is a bonus to. I have servere T which means I can never mask it as its reactive and even if I tried it would make my H worse.
        Sep 19, 2024
      4. 2049v
        2049v
        @Yellowblue44, No, I don’t have Meniere’s disease. My tinnitus doesn’t get masked; I just feel partially relieved with some methods. Neither of the two ENT specialists applied any treatment. One of them just said that my complaints would decrease over time. Since the MRI and other tests came out clean, the problem is in the inner ear.
        Sep 19, 2024
    12. 2049v
      2049v
      I’m at the bottom of the Mariana Trench, it’s very dark and lonely here.
      1. L along the way likes this.
    13. 2049v
      2049v
      I don't want to die (yet) but at the same time I don't want to live. Idk if anyone reading this would understand what it means.
      1. View previous comments...
      2. 2049v
        2049v
        @tpj, I’m also a victim of earbuds. Unfortunately, before this incident, I didn’t know that loud noise could lead to such an illness, so I never paid attention to it. The last time, I listened to music at an extremely high volume one night, and the next morning I woke up, and my life was over. I have one of the worst cases of tinnitus in the world.
        Sep 12, 2024
      3. Chess
        Chess
        @2049v As with many of your posts, you speak from my heart. I have often described this condition here as a vacuum or stalemate. You are paralyzed and can't move forward or back. It's unreal and yet so shockingly true. A paradox that defies all laws of nature and your own imagination.
        Sep 16, 2024
        2049v and tpj like this.
      4. 2049v
        2049v
        Sep 16, 2024
        tpj likes this.
    14. 2049v
      2049v
      I swear I have one of the worst tinnitus in the world, I swear on everything.
      1. L along the way likes this.
      2. View previous comments...
      3. 2049v
        2049v
        @MiaVIL, I also get that once in a while and I know it's terrible. What was the cause of yours?
        Sep 13, 2024
      4. MiaVIL
        MiaVIL
        Sep 13, 2024
      5. 2049v
        2049v
        @MiaVIL, I had it when I was 6 or 7. I remember telling my parents about my ringing. I even had hearing tests and everything but in time I think I totally forgot about it even though it was still there. With the last acustic trauma I remembered about this infection. Now it's suicidal level.
        Sep 13, 2024
    15. 2049v
      2049v
      It’s a very strange feeling to want to die every day because of inner ear BS that no one knows about in 2024. I don't want to live!!!!!!!!!!
      1. Pinhead likes this.
    16. 2049v
      2049v
      I’m writhing in pain in bed. I had goals, dreams, and plans, but now there’s only pain and torture.
      1. Manny and L along the way like this.
      2. View previous comments...
      3. 2049v
        2049v
        @L along the way, Yes. If my condition weren’t the most severe type, my life would be a bit easier, but I suffer torture every single day.
        Sep 11, 2024
        L along the way likes this.
      4. L along the way
        L along the way
        @2049v i know exactly what you mean, sadly enough.. awful painful suffering on the daily pffft.. painful and just ridiculous beyond words, im saying that without exaggeration. I hope and pray we can be reborn. That somehow our ears and brains can heal back to our natural way of being. Natural health and wellbeing. Natural health and wellbeing.
        Sep 12, 2024
      5. 2049v
        2049v
        Sep 12, 2024
    17. 2049v
      2049v
      I’m ashamed of myself for falling into such a situation and writhing in helplessness.
      1. L along the way
        L along the way
        It's understandable to feel like this.. i also have been enduring a lot, and it's really not fun.. just remember that you didn't ask for all this.. trying to be kind to yourself
        Sep 5, 2024
        tpj likes this.
      2. 2049v
        2049v
        Sep 5, 2024
        L along the way likes this.
      3. L along the way
        L along the way
        @2049v this is the thing i struggle with too, like what is an actual solution for this? And sadly.. nobody has any answer basically. Yes, i do believe that a healthy lifestyle (i switched to plant based foods), mindfulness and plenty of rest is good, also distraction. But it hasn't cured t. So, that's why i try to put my trust in the hope that time is a healer.. i mean.. what else sensible can i do
        Sep 6, 2024
        2049v likes this.
    18. 2049v
      2049v
      I haven’t had a single day in 102 days where I didn’t want to kill myself.
      1. Manny and Pinhead like this.
    19. 2049v
      2049v
      It's not "hard" to live with this, it's just not possible. People can't comprehend what is like to live with a constant torture.
      1. ECP, Manny, Karolina and 2 others like this.
      2. View previous comments...
      3. L along the way
        L along the way
        @2049v i don't know how i'm still alive tbh. The stresses i've been through.. pff.. somehow the days have passed and im still here.. i've suffered for many years.. sadly.. now i just wish a calm life and praying for t to heal, hope to finally find some real peace
        Sep 6, 2024
      4. 2049v
        2049v
        Sep 6, 2024
      5. L along the way
        L along the way
        @2049v I am single, 36. I have some hope of finding new love, and maybe starting a family some day, but for now my own wellbeing deserves most priority and care
        Sep 7, 2024
        2049v likes this.
    20. 2049v
      2049v
      At the end of this, I’ll either sink to the very bottom, or I’ll emerge stronger than ever before.
      1. L along the way likes this.
      2. View previous comments...
      3. 2049v
        2049v
        @kingsfan, I try to do things I used to enjoy to escape this curse, but as soon as I step outside, I experience balance issues and nothing feels enjoyable. Three months ago, I woke up one morning, and everything was over for me.
        Sep 3, 2024
      4. BrOKeN_1
        BrOKeN_1
        @2049v I totally get that. Considering where you are in your journey. 4 months in with no Sleep and my wife was looking to have me committed. It's hard to say what will happen should you stay in the fight. But I've been here long enough to see major improvements in most people. And others habituate to a livable degree. I wish you the best. Truely.
        Sep 4, 2024
        L along the way and 2049v like this.
      5. 2049v
        2049v
        @tomytl, Thank you for your supportive words, my friend. They truly mean a lot to me. One morning, I woke up with hearing problems, ear pain, dizziness, hyperacusis, and extremely severe tinnitus. Suddenly, I found myself in the middle of hell. I just want to escape from this.
        Sep 4, 2024
        L along the way likes this.
    21. 2049v
      2049v
      it's hard to explain...
      1. tpj, 4Grace and L along the way like this.
      2. L along the way
        L along the way
        Yep, im also done with analysing and trying to explain it.. i only know i just wish natural wellbeing, the sense of wellness.. it's like a long lost friend, hoping to revisit soon hopefully
        Sep 1, 2024
        2049v likes this.
      3. 2049v
        2049v
        Sep 1, 2024
        L along the way likes this.
    22. 2049v
      2049v
      yes mom, everything is fine...
    23. 2049v
      2049v
      I can’t sleep again. It’s impossible. Despite the masking sounds from my phone, PC and fan noise, it is unbearably loud. When will it end?
      1. View previous comments...
      2. 2049v
        2049v
        @Pinhead, do you have any idea what might have caused it? Any ototoxic drugs, noise or physical trauma etc. As far as I could see those with no obvious reasons tend to get better in time but it wasn't the case for you, very interesting. How is your relationship going?
        Sep 8, 2024
      3. Pinhead
        Pinhead
        I was leading a very healthy lifestyle. Weightlifting 5 times a week and counting my calories. I was in a stable relationship and had no excess noise exposure, but of course who knows how to estimate "excess".
        I just had my six-year anniversary yesterday.
        Sep 8, 2024
      4. 2049v
        2049v
        @Pinhead, apart from the "noise exposure" it was quite similiar for me. Last night before it all started I listened to some music with earbuds for 10 mins and here I am. I was shocked because I wasn't a regular headphones user. Even those who use them 24/7 on the loudest level don't know what tinnitus is.
        Sep 8, 2024
    24. 2049v
      2049v
      My ringing is so intense that there's no way this could be real. It feels like my head is going to explode. I can't believe it.
    25. 2049v
      2049v
      I can’t sleep, it won’t let me. I’m going to lose my mind. It’s like there’s a constant firework going off in my ear. I want to die.
      1. L along the way, snizzleberry and aab like this.
    26. Asta
      Asta
      2049v I had hearing tests that suggested hearing okay, but isn't. ENT let me have OAE tests ( to 'reassure' me...)- measures out hair cell integrity- opposite effect- damaged ear had many low and absent OHCs compared to high and present OAEs for good ear.
      Has anyone else had OAEs, where hidden hearing/ cochlear damage can be seen?
      1. gameover likes this.
      2. View previous comments...
      3. Asta
        Asta
        I had NO problem before the microsuction. I wasn't even aware of what tinnitus felt like...
        Aug 20, 2024
      4. Asta
        Asta
        I have been describing it as an altered sense of hearing. When I cup my ear in my hand and listen for the 'sounds of the sea' that you can normally create, it's not there- asthough there is a problem with conduction or amplification or something. My ET I keep looking in the hole that it might help, but it didn't l doesn't...
        Aug 20, 2024
      5. 2049v
        2049v
        @Asta, Our hearing issues are quite similar, but mine started due to headphone use. Are you certain yours began after microsuction? It might have been the last straw. Were you exposed to loud noises before that? Like headphones, nightclubs, concerts, etc.?
        Aug 21, 2024
    27. tomytl
      tomytl
      I checked again quickly, and my crash in 2014 lasted with the unpleasant symptoms of tinnitus, hearing loss, and hyperacusis from mid-February 2024 to mid-December 2024. I confirmed this by checking my emails. And I had further recovery in 2015 and 2016.
      It took a long time
      1. View previous comments...
      2. tomytl
        tomytl
        And you? I hope that you could improve a little.
        Something I had before the last setback was this pressure problem in the left ear, it's like some machanical damage in my ear, maybe the bones or the ear drum or the eustachian tube. No ENT could find something, I also have been in the CT for this. But after the setback it's much more present and drives me crazy.
        Sep 28, 2024 at 12:25 AM
      3. tomytl
        tomytl
        if there is no improvement in the next 3 monthes, I need to try something with hearing aids. Not primarly for understanding people, but to give a little more dynamic in hearing... and in the night I could switch to the Noiser.
        Signia Silk IX recharchable wouild look interesting. But to tell you the truth, I am afraid of beeing dependent on a device like this
        Sep 28, 2024 at 12:28 AM
      4. tomytl
        tomytl
        this night was horrible, I couldn‘t sleep 1 minute, i don‘t know what pushed the sensation so much
        Sep 28, 2024 at 8:46 AM
    28. 2049v
      2049v
      My old self feels like a totally different person. I miss him every day.
    29. 2049v
      2049v
      I've never been afraid of the reality of death throughout my life, but now I love the idea of it. I'm grateful that death exists.
      1. Juliane likes this.
      2. Juliane
        Juliane
        Oh yes, imagine living forever with all this crap
        Aug 17, 2024
      3. 2049v
        2049v
        @Juliane, that's what makes me wanna die sooner :D

        As I said I would prefer to be dead instead of living everday with this torture and I don't fear death, I don't see it as something bad. I want all of my family and friends to know that my suffering will end when I die.
        Aug 17, 2024
        Juliane likes this.
    30. 2049v
      2049v
      I wish to either wake up healed or to die in my sleep one day.
      1. 4Grace, gameover, Ngo13 and 4 others like this.
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  • About

    Gender:
    Male
    Location:
    London
    Tinnitus Since:
    05/2024
    Cause of Tinnitus:
    Earphones/NIHL/Acustic Trauma