Search results for query: *

As someone once pointed out, ATA and BTA are the only organizations in the world, that actually downplay the very condition they are supposed to represent. One quick visit to either of their websites and you will learn that: 1) Tinnitus is really no big deal. 2) All you need to do is to pick...

I have just copied one of my older posts on this topic, since I'm unable to maintain focus on tying my shoes anymore: Here is what I would like to hear from a GP or an ENT upon being diagnosed with tinnitus, after they take you to a private room, along with your family if possible: "I'm very...

Let me just state how lucky your wife is to have you to stand by here in her darkest hour. Most people on here gave up on trying to explain this horrid condition to their friends or family, as most of them are simply unable to comprehend, that something this horrible can even exist in this day...

If it was up to me, I would pull his medical license on the spot. People like that should not be in the profession of helping others. This is no different than telling someone with terminal cancer that he/she needs an attitude adjustment. Disgusting is an understatement. If I had the power to...

When someone is exposed to a major life altering/ending condition such as tinnitus, one quickly becomes an expert and that is no exaggeration. Your doctor on the other hand might have been exposed to a half hour grainy video about tinnitus in med school at best. At this point I have read just...

I went from loving life to longing for death within about 2 short days after tinnitus first appeared. I don't think there are too many conditions out there that are able to do this to a person in such short time. The purest form of evil is the only way to describe this life ending inhumane...

I'm absolutely 100% confident that if everyone in the world got the taste of severe tinnitus, finding a cure would become a number one global priority with unlimited budget virtually overnight. A global state of emergency would be declared as mankind's survival would be quite literally hanging...

There is nothing extreme about wanting to live a normal life again, even just for a short time I would have taken the same deal, if such trade was possible to arrange. It is better to live knowing you will be dead soon, than to indefinitely exist suspended in time and space, without being able...

Yes Jazzer, I cannot stress how important this distinction truly is. It is very hard to be taken seriously, when people always seem to point out to "old uncle Jack", whom apparently had tinnitus for decades and he's "just fine". Then you of course find out that sometimes uncle Jack can hear it...

The mild "can only hear it in a quiet room" tinnitus and the "so loud I can't even think" types of tinnitus should be listed as 2 separate conditions. One has virtually no effect on the quality of life, while the other could be life ending, both metaphorically and literally speaking. As long...

That is true. However these hypotheticals do help to illustrate the level of distress some of us are in, as regular words simply fall short at describing the horrid nature of this condition.

@100Hz Some 100 years from now, the medical profession will admit how callous and barbaric was their treatment of those who were experiencing a medical emergency in the form of severe hyperacusis or tinnitus (or both). Instead of trying to help them in their darkest hour, they just stood there...

Before tinnitus, I never had problems falling asleep and staying asleep. When I woke up, I would be refreshed and remembered nothing (no dreams). Because of tinnitus, I now get about 2-3 hours of "sleep" per night (if lucky). The reason I put the word sleep in quotation marks is the fact that...

That is a very good question. Maybe in our past lives, we were ruthless dictators, killers, rapists... etc. Assuming there is such thing of course. But even then, why go after someone who does not remember any of it, as it would completely defeat the purpose of any punishment. Kind of like one...

Reactive Tinnitus is one of the worst sub-types to have, as it is virtually non-maskable (ask me how I know) :( The louder the ambient sound, the louder the tinnitus volume and the higher/sharper the pitch. It literally feels like a sharp knife cutting into back of the brain, as that is where...

Based on my own research and anecdotal evidence, I believe that some 80% of people out there have never even heard of tinnitus. Almost everyone has experienced some form of fleeting tinnitus when the ears are ringing for few seconds (or minutes), but it all falls into the "someone must be...

And this is precisely why the CBT hurts our case, if we want to circle back to the title of this thread. As long as CBT is this golden standard for tinnitus "treatment", there is no need (or incentive) to look for a real cure. This is why CBT needs to be removed from this status in order to...

Here is what I would like to hear from a GP or an ENT upon being diagnosed with Tinnitus, after they take you to a private room, along with your family if possible: "I'm very sorry, but you have an incurable condition for which there is no treatment currently available. It is called Tinnitus...

You have captured the essence of this horrid condition in a simple, yet effective way. The people who have been just diagnosed with cancer can still somewhat enjoy whatever time they have left (assuming it is terminal of course). This is where we would most likely observe people trying to...

I'm willing to bet that you got victim shamed more than once for "failing" these so called therapies, which are the modern equivalent of blood-letting. [SARCASM ON] Now that the blame got shifted back onto you where it belongs, there is no need to be wasting money by searching for a cure...

CBT (while it might be well intentioned), is one of the main reasons why tinnitus is not taken seriously. This is a very big problem because in order to start searching for a cure, the condition must be taken seriously first. Sadly, this is obviously not the case with tinnitus. CBT is basically...

The person whom said this to you would of course start singing a very different tune rather quickly, if they got what you have. Sometimes ignorance is a bliss I suppose.

This type of rhetoric is beyond frustrating indeed and it is just one more reason (as if we need any more), why severe tinnitus is quite possibly the worst thing that can happen to a human being. Take the toughest person on this planet, torture them with the most horrible 24/7 sounds they can...

My appologies if it sounds like I'm arguing, as that was not my intention. Yes having screaming, unmaskable tinnitus on top of any of those condition would be beyond horrifying. It takes all of my coping skills just to fight tinnitus day in and day out, as it all seems just like one long...

You do have some good points. There are other horrid conditions of course. Some time ago (before tinnitus), I had a very bad tooth infection, which resulted in wall climbing, excruciating pain. Due to the infection, the pain killers would only give me about a 5 minute window, during which I...

I always get angry when people say that tinnitus can't kill you. Yes it can. Maybe not directly, but when people are mentally and physically exhausted with nothing left in the tank and no way to reset due to lack of sleep, bad things will happen. Either that, or if lucky they die of a heart...

People have absolutely no idea what this horrid condition can do, because their brain is not programmed to even process the fact that something this bad is even possible in a day and age where there is a pill or a surgery available for just about every condition known to men (with the exception...

I think the pitch matters just as much as the decibels. 85 decibels at lower pitch should be much easier on your ears, than the 85 decibels, which target the finer (and much weaker) hairs inside the cochlea, which are activated by higher frequencies. At least that is my understanding of this.

Unfortunately this is a bad situation. Your tinnitus might be documented, but thanks to the habituation myth pushers, in most people's minds, it is in about the same category like a a minor rash, sore back or a paper cut. Should something happen, you would not be able to make the case with the...

Sorry about your accident. Aside from the Prednisone (which may or may not help) there is not much of anything you can do for hearing loss at this time. Did you have any pre-existing hearing issues before the collision?

I have tried those. It will only partially mask it at very high volume, at which the speakers on all my devices seem to be at the edge of ripping themselves apart. If the volume is any lower, it literally transforms the tinnitus into a cutting torch, as it becomes so glass shatteringly sharp...

Intelligence insulting habituation clowns such as Julian Cowan Hill are part of the reason why nobody takes tinnitus sufferers seriously.

Yes I'm very likely the minority within a minority. Being blind would be horrible, but at least I could sleep and relax without being actively tortured 24/7. Getting disability would be easy and people would show compassion, instead of questioning my attitude or mental resiliency. With...

Try sleeping about 2 hours a night just for couple of weeks due to extreme screeching sounds inside your head and then tell me this again. I'm willing to bet that you would change your tune very quickly. Personally I'm 100% certain that I would trade couple of limbs for tinnitus to stop, if...

I hold the opinion that tinnitus is one of the worst disabilities a person can have in a society, that is literally centered around loud noises, to which nobody gives a second thought. The problem is that tinnitus is invisible and most people have never even heard of it. This is why instead of...

You might be able to get it cut in some other country as the travel restrictions will be lifting eventually.

Everyone has done stupid things, but only a tiny fraction of people get tinnitus as a result of that. There is no way you could have known. If people knew how horrible this condition is, only the very brave and adventurous few would even consider leaving the safety of their house (or ingest any...

The kid has already admitted that inhaling solvents was a dumb idea. No need to rub his face in it. He is already paying the price, as tinnitus is one of the worst things that can happen to a human being.

Correct on all counts. This is why the whole "just pretend it's a kitchen appliance" type of intelligence insulting crap doesn't really cut it for me. And I know I'm not alone. This is why there is a desperate need for some real treatment options.

Looks like you had also won the tinnitus lottery...:( I'm not quite sure to be honest. All I know is, that it is very high pitched and it almost feels like it's cutting into my brain like a sharp knife. Enough to prevent sleep.

Closing in on 4 years. Cause unknown. In a quiet room it is hard to judge, but maybe 40-50dB? Kind of sounds like an industrial sand blaster overlaid with oscillating hi-pitched metallic screech, but it is hard to pin down. Without exaggeration, this is the most horrid, alien sound that I ever...

It reacts to sound, so always louder than any sound around me. Virtually unmaskable aside from maybe shower but even then, I can still hear it trying to cut through. When I'm in a silent room, it is still loud enough to prevent me from falling asleep or being able to relax. There is no break...

You have my deepest condolences, as your story is very upsetting (just like so many other stories on here). Being permanently exhausted with no possibility to recover is the worst part about this nightmare condition. I went from above average quality of life to zero pretty much overnight. Life...

Be very careful with the benzos. Based on the info floating out there, once you hit tolerance, you will be experiencing withdrawal, which translates into louder tinnitus. Use it only when you feel like you absolutely need to, as it could be a slippery slope.

Amen to that. I suspect that funding of anything deemed "not important" (such as tinnitus, thanx to the pro-habituation crowd) might now be put on the back burner, because of the global recession that is coming our way...:(

I hope you are right, but one has to also consider the politics at play. Putting their prices on par with hearing aids manufacturers would place them on a direct collision/confrontation course with a very powerful and influencial multi-billion dollar hearing aid industry, which would stand to...

One of the things which concerns me (and which I never see people talking about) is affordability, if such pill indeed arrives to the market at some point. I'm thinking, that logically the treatment course will have to be priced several times higher, than the most expensive hearing aids in...

I would pay good money to witness the following experiment: 1) Mr Jonathan Hazell recieves a well placed kick in the groin with a steel toed work boot. 2) The following statement is recited back to Mr Hazell, as he is lying on the ground in fetal position, while making various high-pitched...

I must have fallen through the cracks somehow. But I do know that the last person who tried to convince me it's "all in my head" will never make that same mistake again... ;)

As far as horrid invisible conditions such as Tinnitus are concerned, we are deep in the barbaric dark ages. The psycho-babble, self deception selling practitioners are essentially no different than the blood letting practitioners from the medieval era. Tinnitus is a physical problem (something...

Sounds just like another good ole pseudo treatment, which deals with the effect rather than the cause. It is then much easier (and cheaper) to shift the blame on the sufferer, should this "therapy" fail. "He/she wasn't doing it right, wasn't disciplined enough, suffers from mental illness...

I agree. I would also like to add, that the color on my wall does not attack me and torture me 24/7. Also if I don't like the color, I can either leave the room or paint it a different color. Not really possible with tinnitus, hence the problem.

I know what you meant. What I'm saying is that not everyone will habituate. This is a fact. This habituation myth is only confusing those, whom are in the position to possibly help us (researchers and scientists). Some of us are calling out for real medical solutions and some of us are...

There is no certainty. Anyone claiming otherwise is incorrect. Some will get better, some will stay the same and some will get worse. Sounds like you are in the first group. False promises are not helping anyone. Sorry for the harsh reply, but there is no way to sugarcoat this.

Your feeling of distress is as real as it gets. Don't let anyone tell you how you should or should not be feeling. Do not slip into the whole "I must be weak since I can't handle my tinnitus" type of a mindset. You cannot control what you are feeling due to your individually unique body...

I always thought that "being trapped in your body" was a metaphor of sorts, mainly used by the peoole looking for a sex change. But this is no metaphor. The feeling of entrapment is as real as it gets. The only thing close to it would be the kind of terror, which a trapped animal would feel as...

My heart goes out to you, as I can't see myself lasting much longer either. I find it almost ironic that right now lot of people get to experience just a tiny sample of what it's like to be isolated (minus the horrid 24/7 torture of course) and the world is pretty much at a stand-still. Just...

This is a very common observation from those, whose lives have been obliterated by tinnitus (myself included). This is a very eerie feeling, which has no analogue. Just like being trapped in another dimension, while looking at the world passing you by, completely oblivious to your suffering...

Here is the thing: Bill Gates has not been democratically elected by anyone into any public health or any other position. Fundamentally speaking, just the fact that he is pushing for certain things (or even wants to force anything) rubs me the wrong way as he has no right to do that, whether it...

I believe that @GregCA has already beat me to the punch, but plugging her ears is truly the simplest and easiest way to settle this. I cannot believe that she hasn't done this on her own?