Lenire — Bimodal Stimulation Treatment by Neuromod

[Tinniger]

The first review has been published:
https://www.tinnitustalk.com/threads/lenire-—-user-experiences-and-reviews.35776/

I find two things remarkable.

1. Tonality, cause of tinnitus, somatic or non-somatic, one ear or both don't matter.

2. Redknight wrote: "My tinnitus tends to increase in volume as I introduce noise. As I sat there in a quiet booth, the tinnitus was barely a low hiss, but as the white noise was introduced my tinnitus ramped up, or at least my perception of it."

My tinnitus reacts to white noise of a noiser of the hearing aid in the same way.
Sometimes I can forget the tinnitus in a quiet environment, then a quiet! water pipe rushes in the house and it is fully present.

I am therefore surprised that sufferers with a phenomenon that could be described either as "reactive tinnitus" or as hyperacusis are admitted to a therapy.

 

[Chinmoku]

These observations from posters tend to keep repeating, but remember when looking at the graph that it's not breaking it down based on hyperacusis vs. no hyperacusis. My THI is probably on the upper threshold... but I have hyperacusis and they say those are "super-responders" so I'm going to expect a greater than average improvement. Do you have hyperacusis?

Good point. I'm sensitive to sound on the left ear where the tinnitus is stronger. I find dishes and cutlery sounds annoying. But no pain. I am not sure this qualifies as hyperacusis though.

 

[GlennS]

I find dishes and cutlery sounds annoying.

Sure seems like hyperacusis to me.

 

[annV]

Good point. I'm sensitive to sound on the left ear where the tinnitus is stronger. I find dishes and cutlery sounds annoying. But no pain. I am not sure this qualifies as hyperacusis though.

Sure seems like hyperacusis to me.

Sounds to me more like misophonia than hyperacusis. Two different beasts.

 

[Redknight]

Maybe you asked this question as well: Does the cause of the tinnitus matter?

It's not an exclusion criteria, if that's what you mean. I don't know whether it is a factor in how beneficial Lenire might be for you.

 

[GlennS]

Sounds to me more like misophonia than hyperacusis. Two different beasts.

Not mutually exclusive. For instance, I am sensitive to high-frequency content (which developed immediately when I got tinnitus, I fully remember freaking out over the sound of a bus braking) but I also hate lip-smacking noisy eaters and knuckle-crackers.

 

[spedgas]

The first review has been published:
https://www.tinnitustalk.com/threads/lenire-—-user-experiences-and-reviews.35776/

I find two things remarkable.

1. Tonality, cause of tinnitus, somatic or non-somatic, one ear or both don't matter.

2. Redknight wrote: "My tinnitus tends to increase in volume as I introduce noise. As I sat there in a quiet booth, the tinnitus was barely a low hiss, but as the white noise was introduced my tinnitus ramped up, or at least my perception of it."

My tinnitus reacts to white noise of a noiser of the hearing aid in the same way.
Sometimes I can forget the tinnitus in a quiet environment, then a quiet! water pipe rushes in the house and it is fully present.

I am therefore surprised that sufferers with a phenomenon that could be described either as "reactive tinnitus" or as hyperacusis are admitted to a therapy.

I have the same situation. In quiet rooms it's there but at a lower volume. A high pitched tone with some low volume static. As soon as I introduce noise the high pitched tone increases in volume and is louder than the environmental sound. Driving, talking in crowds, and the shower all make it louder. It's frustrating because masking is nearly impossible. I don't even know how to refer to this phenomenon. "Reactive" tinnitus is often frowned upon as a label here. I don't experience any fullness or pain with sound. Is there an accepted term for this type of tinnitus influenced by sound?

 

[Skinjob]

Are we taking bets yet on when it arrives in the US?

From Neuromod's site:

"To support commercialisation activities, Neuromod is investing in establishing the appropriate quality, regulatory and supply chain infrastructure to support near term European plans and lay the foundation for the Company's US strategy."

My guess is at the earliest, 2021 or 2022.

I'm looking into cryonic suspension, so if I don't post for a while, I'll be in the freezer waiting for Neuromod or Dr Shore or UMinnesota's mSync device, whichever comes first. Sweet dreams.

 

[spedgas]

From Neuromod's site:

"To support commercialisation activities, Neuromod is investing in establishing the appropriate quality, regulatory and supply chain infrastructure to support near term European plans and lay the foundation for the Company's US strategy."

My guess is at the earliest, 2021 or 2022.

I'm looking into cryonic suspension, so if I don't post for a while, I'll be in the freezer waiting for Neuromod or Dr Shore or UMinnesota's mSync device, whichever comes first. Sweet dreams.

I certainly believe these are their goals. I think further releases are going to be as unpredictable as this first one.

 

[Kam75]

Well I avoided this thread since I'm not a 3 month+ sufferer yet.

But it's soon my 2 month anniversary and I think it's time to consider this treatment because I'm likely a chronic tinnitus sufferer now.

I see great news. It gives me some hope.

Salut cher compatriote, j'ai voulu t'envoyer un message privé mais je n'y arrive pas. Donc par respect pour les autres je vais répondre en anglais

So I wish you much courage, I've been having terrible tinnitus and hyperacusis for almost 6 months now because of a music festival. It's not easy at all to live with it, but let's hope that Lenire will work, it is currently our only hope.

If you want to talk with a Frenchy who has the same condition, don't hesitate to send a message

 

[Sevv]

To those who are part of the Lenire User Experience Group: It would be great if those of you who also have visual snow would tell us whether you had an improvement in visual snow symptoms thanks to Lenire.

 

[Sam Bridge]

What's the cut off point in terms of hearing loss to qualify for this?

Moderate/severe?

 

[spedgas]

@Allan1967 If my math is correct this is your week. Thinking about you this week. I hope this sorts your tinnitus out.

 

[Redknight]

To those who are part of the Lenire User Experience Group: It would be great if those of you who also have visual snow would tell us whether you had an improvement in visual snow symptoms thanks to Lenire.

There is a very similar device coming to the market, but for visual snow, I agree it will be interesting to see if one or the other helps with the other condition.

See attached;

 

[Sevv]

Great, I wouldn't be mad to at least see normally without having to wait 10-15 years for the real deal...

 

[kelpiemsp]

There is a very similar device coming to the market, but for visual snow, I agree it will be interesting to see if one or the other helps with the other condition.

See attached;

View attachment 31081

View attachment 31082

It impacted my visual snow.

 

[F-u-T]

It impacted my visual snow.

In a positive way?

 

[Jack Straw]

It impacted my visual snow.

In what way?!

 

[Jack Straw]

Congrats @Allan1967

 

[TheDanishGirl]

To those who are part of the Lenire User Experience Group: It would be great if those of you who also have visual snow would tell us whether you had an improvement in visual snow symptoms thanks to Lenire.

And floaters also. Please report if Lenire made them better... That is if you have floaters of course.

 

[ajc]

And floaters also. Please report if Lenire made them better... That is if you have floaters of course.

You do know what floaters are right?

Physical particles in the vitreous of the eye.

No way a stimulation device like Lenire can fix them Needs surgery.

 

[kelpiemsp]

And floaters also. Please report if Lenire made them better... That is if you have floaters of course.

No impact on floaters. To be honest, I focus on mine all the time now. But it's better than hearing a dental drill in your skull.

 

[kelpiemsp]

In what way?!

Significantly diminished. However, this happened in the last few months so it's possible something else helped.

 

[Harley]

You do know what floaters are right?

Physical particles in the vitreous of the eye.

No way a stimulation device like Lenire can fix them Needs surgery.

It seems that lot of people with tinnitus also get visual snow..this can't be all just some kind of a coincidence.

One would think, that if Tinnitus and visual snow are somehow related, decrease in tinnitus should also decrease the visual snow (at least in theory).

 

[Alex Matyjasek]

It impacted my visual snow.

I guess you had a very mild form of visual snow? You haven't shared this information till now.

 

[TheDanishGirl]

You do know what floaters are right?

Physical particles in the vitreous of the eye.

No way a stimulation device like Lenire can fix them Needs surgery.

Yes, I know, but some think there is a relation between tinnitus and floaters, so I have this small hope that treatment for tinnitus could maybe lower the appearance of them somehow... don't know if it's stupid, but I can't help to have to small hope that it would.

 

[TheDanishGirl]

No impact on floaters. To be honest, I focus on mine all the time now. But it's better than hearing a dental drill in your skull.

Oh no, why? Has the device made some changes in the brain that now makes you more aware of them, or what?

 

[Bill Bauer]

misophonia than hyperacusis

Correct me if I am wrong, but misophonia is when one is afraid of sound for no reason and hyperacusis is the actual discomfort as a result of seemingly minor noise. What he is describing seems to be closer to hyperacusis than to misophonia.

 

[annV]

Correct me if I am wrong, but misophonia is when one is afraid of sound for no reason and hyperacusis is the actual discomfort as a result of seemingly minor noise. What he is describing seems to be closer to hyperacusis than to misophonia.

Misophonia is characterized by intense emotion like rage or fear in response to highly specific sounds, particularly ordinary sounds that other people make. The cause is unknown.

Phonophobia is a fear of loud sounds. Phonophobia is also called ligyrophobia. The name "Phonophobia" originates from the Greek words for sound and fear. Phonophobia is not a hearing disorder. Sudden loud and unexpected sound can cause anxiety attacks in a person who suffers from Phonophobia. People with Phonophobia may be fearful of devices that can suddenly emit loud sounds, such as alarms.

Hyperacusis is a highly debilitating hearing disorder characterized by an increased sensitivity to certain frequencies and volume ranges of sound (a collapsed tolerance to usual environmental sound). A person with severe hyperacusis has difficulty tolerating everyday sounds, which become painful or loud.

 

[Jack Straw]

Misophonia is characterized by intense emotion like rage or fear in response to highly specific sounds, particularly ordinary sounds that other people make. The cause is unknown.

Phonophobia is a fear of loud sounds. Phonophobia is also called ligyrophobia. The name "Phonophobia" originates from the Greek words for sound and fear. Phonophobia is not a hearing disorder. Sudden loud and unexpected sound can cause anxiety attacks in a person who suffers from Phonophobia. People with Phonophobia may be fearful of devices that can suddenly emit loud sounds, such as alarms.

Hyperacusis is a highly debilitating hearing disorder characterized by an increased sensitivity to certain frequencies and volume ranges of sound (a collapsed tolerance to usual environmental sound). A person with severe hyperacusis has difficulty tolerating everyday sounds, which become painful or loud.

@annV with the straight facts.