Retigabine (Trobalt, Potiga) — General Discussion

[nills]

Ok. If i get one box of each, that will atleast get me to try out:
100*3 1. week
150*3 2. week
200*3 3&4. week
150*3 5. week
100*3 6. week
..with still something to spare.

That will give me some thought of idea about the drug and its potency regarding my T, right?
If it will attenuate in volume I will have come a long way, cause the volume in itself isnt that high.
Its the character of the noise that is killing me. The raspy/grating/distorted/electrical 12500-1300 Hz pitch sound.
Its unmaskable, but maybe it will be easier to live with if trobolt will dampen it.
I understand, if it does something at all, it will only work while on it. But then I atleast will know that there is some kind of relief out there wich again will help out a great deal psychologicly.

I don´t really care if it is recomended or not to divide them. Only if its possible and that they dont come in capsuals.
I´ve managed to google a picture of the 100 mg, and it doesn´t seem to have a divider-line on it. That may perhaps of course be a problem getting it right according to my plan above.

you do what you want and dimiss all the info the `veterans` give you ... seems like everyone's attitude lately ...

did you see a GP for qt interval rate or maybe you don`t care about that either?

i`ll add a Q&a from autifony to show why it is better to go for longer time and a higher dose.

Q. How soon does the drug start to work?
A. In models of tinnitus pre-clinically, a beneficial effect was seen quite rapidly, and we know that the effect of the drug on the nerve cells themselves is very quick. However, because the tinnitus will have been present for many months, it may take longer for the drug to have an effect, possibly days or even several weeks. It is for this reason that if somebody joins the study it is really important for them to stay right to the end.

again you do as you like ... but if your going to go through the trouble you might aswell get a good benefit from it.

600mg`s a day will not give you the relieve you think it will ... it sounds high because you start at 300 but is still low dose... you will have a certain placebo effect together with a short bursts of silence or highness that last only for less than an hour maybe ... I had even more relief the first days at 100mgs tid than at 200mgs tid ... anyway i`m off to go and buy Trobalt now ... good luck.

 

[grate_biff]

you do what you want and dimiss all the info the `veterans` give you ... seems like everyone's attitude lately ...

did you see a GP for qt interval rate or maybe you don`t care about that either?

Well, I am listening to your advice. Im gonna ask for two boxes and I have a schedual to follow.
Nobody really knows how to to this, right? Veterans or not, as you call it. I´ve read all the users experiences several times and they are all different regarding dosage and timeframe are they not? But most seem to benefit from the drug, but I have also taken note and I am aware of the possible sideeffects. But desperate times claims desperate measures.
I have a doctors appointment on tuesday and I will ask for the appropriate tests and follow ups, but I will try out Trobolt no matter what she says.
Thank you for your involvement nills!

 

[nills]

Well, I am listening to your advice. Im gonna ask for two boxes and I have a schedual to follow.
Nobody really knows how to to this, right? Veterans or not, as you call it. I´ve read all the users experiences several times and they are all different regarding dosage and timeframe are they not? But most seem to benefit from the drug, but I have also taken note and I am aware of the possible sideeffects. But desperate times claims desperate measures.
I have a doctors appointment on tusday and I will ask for the appropriate tests and follow ups, but I will try out Trobolt no matter what she says.
Thank you for your involvment nills!

just beware of your heart ... the rest should be fine if you pay attention but the heart is a reason to stop taking it asap. Sure we know how to do it by now ... it`s just that it isn`t a real cure so the results are a bit random. and only a few have really persisted with it at good dosages and also taken care of their health while doing it ... and they added their info and now are on the silent front so you need to find the info between all the pages. Anyway they added their million dollar advice and it`s there for the taking ... good luck!

 

[grate_biff]

just beware of your heart ... the rest should be fine if you pay attention but the heart is a reason to stop taking it asap. Sure we know how to do it by now ... it`s just that it isn`t a real cure so the results are a bit random. and only a few have really persisted with it at good dosages and also taken care of their health while doing it ... and they added their info and now are on the silent front so you need to find the info between all the pages. Anyway they added their million dollar advice and it`s there for the taking ... good luck!

Thank you. U 2 mate!

 

[locoyeti]

update with me: t is still low, and is not much of an issue with me anymore. i don't notice it much, and when i do it doesn't bother me.

good to see that other people are joining in our informal trial. i would urge those that are starting this drug to do a search on this thread for my posts and read through them as i feel as though i have provided some good information regarding RTG. other people with informative posts are @attheedgeofscience @benryu @jazz @Zimichael and perhaps a few others, all mostly at the beginning of the thread.

@grate_biff i think one thing you will notice is that the tone of your T will purify and then distortion will go away. my H went away as well (which, as I have said before, was most of the suffering for me - the H). I think @Geo this will happen for you as well, please let us know. also i must emphasize that you should get up to at least 300mg x 3 times a day, and i would highly recommend doing at least a few weeks on 400mg x 3 times day. good luck guys, and please keep us updated with your progress.

 

[sonicboom2000]

I talked to Danny Boy on Skype about his experiences with Trobalt. If anyone wants to listen they can view it at

 

[preslys]

Trobalt helped me a lot but unfortunatly tomorrow i will be off of it
I still have only 3 pills .
I spent 20 days in silence and now am preparing psychologically my self to return to hell.

 

[uae96]

Trobalt helped me a lot but unfortunatly tomorrow i will be off of it
I still have only 3 pills .
I spent 20 days in silence and now am preparing psychologically my self to return to hell.

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Good luck man ! Hope it stays like the way it is now , I'm sure it will stay silent ! Stay healthy

 

[preslys]

Good luck man ! Hope it stays like the way it is now , I'm sure it will stay silent ! Stay healthy

yes I hope still like where am I now ( 2/10) and not 5/10 .
thank you my friends

 

[Danny Boy]

Trobalt helped me a lot but unfortunatly tomorrow i will be off of it
I still have only 3 pills .
I spent 20 days in silence and now am preparing psychologically my self to return to hell.

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It's so difficult...It really is.

 

[nills]

Trobalt helped me a lot but unfortunatly tomorrow i will be off of it
I still have only 3 pills .
I spent 20 days in silence and now am preparing psychologically my self to return to hell.

View attachment 7431

20 days in Silence? what were your amount in mg`s a day? ... I`m at 600 and very little effect on volume yet high as a kite ... although I have to say I jumped to 600 a day in about 3 days and now i`m keeping this for a little while and will jump with 50`s or 100`s ... you should do an experience report weekly man, it helps to keep data.

 

[papu]

Has anyone else notice that the three people that got better and quicker results from trobalt had tinnitus less than or near a year.
(Mpt, dannyboy and "elvis" preslys).

Just curious.

 

[uae96]

Has anyone else notice that the three people that got better and quicker results from trobalt had tinnitus less than or near a year.
(Mpt, dannyboy and "elvis" preslys).

Just curious.

I heard it could work for severe t , but it has nasty side effects

 

[nills]

Has anyone else notice that the three people that got better and quicker results from trobalt had tinnitus less than or near a year.
(Mpt, dannyboy and "elvis" preslys).

Just curious.

Also locoyeti is a bit over 1 year .... hmm

 

[papu]

Also locoyeti is a bit over 1 year .... hmm

You are right I forgot about him
It's very curious data the other trialee have gotten some partial relief or nothing at all like for example zimichael that has had it for a long time

 

[Geo]

You are right I forgot about him
It's very curious data the other trialee have gotten some partial relief or nothing at all like for example zimichael that has had it for a long time

i think it depends on the sevirity of the T the stronger it is the less trobalt will help..

 

[Danny Boy]

i think it depends on the sevirity of the T the stronger it is the less trobalt will help..

You planning on upping your dose?

 

[nills]

i think it depends on the sevirity of the T the stronger it is the less trobalt will help..

severity is very personal.. I`m at 200TID now for 7 days and although sometimes i`m not aware of T anymore in busy circumstances thanks to the mellowing properties of Trobalt, I just woke up and it is an annoying 6 ... Danny said it lowered from a 10 so he is proof it can go down a lot with Trobalt. But as I said before ones mans 4 is another`s 8. It`s hard to really judge T. I`m now going to go up 150TID a week as is suggested by Glaxo that makes the product. So in about 2 weeks I should be highest dose and than we will know.

and at the dose you are at it is safe to say you can not have any relief unfortunately.

 

[preslys]

@nills . @Danny Boy

ALL IS WELL

EYES
Blood analysis

 

[Danny Boy]

@nills . @Danny Boy

ALL IS WELL

EYES
Blood analysis



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You haven't been on it for long, have you?

 

[preslys]

You haven't been on it for long, have you?

I have to do an overall assessment each taking a box of Trobalt

 

[preslys]

all my consultations are paid by my company

 

[Danny Boy]

I have to do an overall assessment each taking a box of Trobalt

Must make you scared of taking it, surely?

 

[preslys]

Must make you scared of taking it, surely?

It is Free so why not

 

[Danny Boy]

It is Free so why not

You're right, it's better to be safe than sorry.

 

[erik]

This thread is a long mess and hard to navigate. Do we have a running total of people who had tried Trobolt/Keppra/?, dosage amount, time, and results?

 

[nills]

@preslys

very cool my friend and also that you can do those check ups! ... wish you well .. still can you tell me how high in dosage you went and how silent it was ... i`m at 600 and nothing .. or at least not consciously.

 

[preslys]

@nills

I have posted this befor

At the beginning I took 400mg/day (one pill after breakfast another after dinner) my central tinnitus disappeared three days later I increased the dose to 600 / day (1.5 pill of 200g after breakfast another 1.5 pill after dinner) this dose significantly decreased my tinnitus.Now my tinnitus doesn't bother me
I feel nothing as a side effect.

 

[nills]

Ok didn`t see that, thanks ... so you actually took 300 mg`s at a time ... so maybe it is still dosage at a time. I take the same amount but in 200ThreeID thanks for the info.

hard to pinpoint why the difference in experience ... it`s all guessing and trying ...

 

[preslys]

@nills
at the beginning you had an improvement, but what I see now it is not the case. Am I right ?