Retigabine (Trobalt, Potiga) — General Discussion

[1MW]

@Danny Boy 's audiogram is perfect so i think this is the reason his T gone.

 

[nills]

@Danny Boy 's audiogram is perfect so i think this is the reason his T gone.

well if his auidogram is perfect it was perfect before (hearing doesn`t heal by itself) so it has nothing to do with his T and why it was there in the first place and also has nothing to do why it disappeared.

 

[Geo]

Well, I have no clue...It just disappeared one day and I stopped trobalt straight away and it hasn't came back. It was random.

when was this?

 

[RaZaH]

I am happy for you @Danny Boy , you were in a rough place , I remember , awesome mate

 

[valeri]

I wonder if autifony is giving mixed results after each tablet like retigabine does for me

 

[nills]

I wonder if autifony is giving mixed results after each tablet like retigabine does for me

Valeri ... after reading this thread and knowing previous experiences of people you should not let yourself be carried away with idle hopes. I sometiems had better results at 200 than 300 but like i said before ... not unless 1200 you can start making judgements ...

You are experimenting with your brain ... an organism so complex and under influnece of even your intake of food and if you smoke or not and all those things ... if you eat a MARS bar you will have diffrent experience of Trobalt ... for sure ... I quit smoking and am trying to quit sugar all togehter ... this will give me more stable results.

 

[valeri]

Valeri ... after reading this thread and knowing previous experiences of people you should not let yourself be carried away with idle hopes. I sometiems had better results at 200 than 300 but like i said before ... not unless 1200 you can start making judgements ...

You are experimenting with your brain ... an organism so complex and under influnece of even your intake of food and if you smoke or not and all those things ... if you eat a MARS bar you will have diffrent experience of Trobalt ... for sure ... I quit smoking and am trying to quit sugar all togehter ... this will give me more stable results.

Nills, yesterday was a good day on 600mg.
This morning 200 did zilch and by 10am I was in panic and took another 100. Zero effect.
Reactiveness was just too much so I left work just before lunch time.
Do you also have problem with reactive t?
Is it more difficult to treat?
I don't know but I'm puzzled why rtg keeps giving me mixed results.
So it's not the case that taking 200 works better than 300 but for me 200 sometimes does nothing.
That worries me!

 

[linearb]

well if his auidogram is perfect it was perfect before (hearing doesn`t heal by itself)

I don't think this is true. I have read a lot of reports of people who show a notch in their hearing shortly after an acoustic trauma or infection, and then show much less HL in another audiogram done 6-12 months later.

 

[papu]

@nills
I had loss in my left ear around 45 dB in 6000 k and 35 dB in 8000k two weeks after trauma
Now 6 months later up to 30 dB in 6000 k and 8000k perfectly normal at 5db

 

[uae96]

I don't think this is true. I have read a lot of reports of people who show a notch in their hearing shortly after an acoustic trauma or infection, and then show much less HL in another audiogram done 6-12 months later.

Yep you're right , temporary threshold shift can take up to months to come back , but usually always isn't like it was before trauma

 

[Danny Boy]

I am happy for you @Danny Boy , you were in a rough place , I remember , awesome mate

Cheery matey!

 

[preslys]

Fluctuations of my tinnitus during the last couple of week using trobalt.
I started taking it since 21/08

 

[gintas]

hi , just wondering did trobalda really working on doses ? or maybe it time works ? for smaller doses but more time does the thing. and does trobalda have time fading/tolerance effect like benzos have . or not ?

 

[Karl28]

So im thinking about trying Retigabine but I got no idea what kinda dosage I should be taking.

The pills I have are 200mg ones.

 

[preslys]

Still I have 9 tablets tomorrow I will increase the dose to 600mg (200 * 3) for the last three days, I will see how it goes.

 

[amandine]

Still I have 9 tablets tomorrow I will increase the dose to 600mg (200 * 3) for the last three days, I will see how it goes.

Your graph how ever shows it is reducing on trobalt which is great news

 

[preslys]

@amandine
yes amandine it seems trobalt do its work well.but if I stop trobalt again will I return to hell . no I don't want to return

 

[markoana]

@amandine
yes amandine it seems trobalt do its work well.but if I stop trobalt again will I return to hell . no I don't want to return

You should do slow taper down... It gives u more chances that results stay permanent.

 

[preslys]

You should do slow taper down... It gives u more chances that results stay permanent.

I did it with my second box but it didn't stay permanent low .so this time I want to kill it for ever with high dose as Danny did it .

 

[amandine]

I did it with my second box but it didn't stay permanent low .so this time I want to kill it for ever with high dose as Danny did it .

No but from your graph it shows that it stayed lower than before trobalt or did it raise again and go back to normal once u stopped taking it?

 

[preslys]

No but from your graph it shows that it stayed lower than before trobalt or did it raise again and go back to normal once u stopped taking it?

the graph is about my third box. two weeks after finish my second box my T raised gradually

 

[amandine]

the graph is about my third box. two weeks after finish my second box my T raised gradually

Ok so when it raised gradually did it go back to how it was before trobalt?

Then your graph shows you during your third box whilst you were taking trobalt yes? So presumably you have not stopped taking since your third box - you are still using your third box so you dont know if it will go up back to normal if you stop taking it? did i understand correctly? Thanks for your info....other people like danny and mpt took trobalt after three months start - do you think that it is true that taking it a year or so after you got T means it will not be so successful?

 

[LetyO]

I have had T for 10 months. I am going to start trobalt next week. Did you slowly taper up? What dose did you start with? I am desperate now. It is my last option. I can't deal anymore. My life is falling apart. My marriage is almost over. I can't seem to rise above this. Any suggestions?

 

[Christian78]

@amandine
yes amandine it seems trobalt do its work well.but if I stop trobalt again will I return to hell . no I don't want to return

You can go up and down...

tell me how much do you pay in euro box of 100mg?

I have had T for 10 months. I am going to start trobalt next week. Did you slowly taper up? What dose did you start with? I am desperate now. It is my last option. I can't deal anymore. My life is falling apart. My marriage is almost over. I can't seem to rise above this. Any suggestions?

tell me how much do you pay in euro box of 100mg?

Well, I have no clue...It just disappeared one day and I stopped trobalt straight away and it hasn't came back. It was random.

but you are still using keppra as you said, and some natural meds and one more med

 

[1MW]

in spain 84 pills 200mg cost 110 euros.
Also to me working better 200mg rtg + 250mg keppra than 400mg rtg

 

[amandine]

in spain 84 pills 200mg cost 110 euros

Huh. was that direct from the pharmacy price or the price you paid the person sending it to you from spain?

 

[preslys]

tell me how much do you pay in euro box of 100mg?

in spain 84 pills 200mg cost 110 euros

I don't know how much it costs a box of 100 mg I used to buy 200 mg 125 Euros in spain.
I paid my fourth box 65.50 Euros but this time from Paris with prescription .

 

[Christian78]

I don't know how much it costs a box of 100 mg I used to buy 200 mg 125 Euros in spain.
I paid my fourth box 65.50 Euros but this time from Paris with prescription .

a ok, nice, price is ca 52-55 € , regular price, and on net is much more expensive, i thing Europe have it much cheaper, and Austria only is overly expensive, they earn a lot of money on sick people in USA. but i seen today that USA is worst considering prices of medication.

 

[LetyO]

In California one months supply of Potiga (Trobalt) for 50 mg tablet is about $430 and for 200 mg about $900.

 

[Danny Boy]

In California one months supply of Potiga (Trobalt) for 50 mg tablet is about $430 and for 200 mg about $900.

It's only 220 euros, 246.62 dollar, in Spain for 200mgx84 capsules