MemberAdriano, we all live with this BS so will you.
Some people take years to habituate.
T can go away, can become lower, can become manageable. Even after years.
We are here in this together and go through this together.
Don't give up.
Retigabine (Trobalt, Potiga) — General Discussion
- Thread starter Mpt
- Start date
Some people take years to habituate.
T can go away, can become lower, can become manageable. Even after years.
We are here in this together and go through this together.
Don't give up.
SoulStation
Member
@Adriano_ Moreno
Please dont do anything rash. You are currently taking 2 drugs that are known to increase suicidle thoughts. They also obviously aren't giving you the relief you need. Please seek help and stop the drugs if you can...
Kindest regards.
B
Please dont do anything rash. You are currently taking 2 drugs that are known to increase suicidle thoughts. They also obviously aren't giving you the relief you need. Please seek help and stop the drugs if you can...
Kindest regards.
B
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
Please do not give in. I was suicidal just 2 weeks ago. I am also taking Trobalt and thus far no change. My tinnitus is still loud and at times annoying but I find that I am starting to habituate. There are times when I do not even hear it. I am actually starting to enjoy my life again. If you are starting to feel hopeless stop taking the the Trobalt as someone else recommended. Talk to someone. I see a therapist once a week, I walk every morning, I try to meet with a friend every day, I help someone if they need it. Get out every day. Mask with music or natural sounds until you feel stronger. Life IS worth living. You WILL get better but will take time.
monacco
Member
My friend pointed me to a neurologist in paris, he prescribed Trobalt without difficulty he has not even tried to understand my problem... I told him that I have tinnitus and I need forTrobalt. he did it without hesitation . Tomorow I will buy it .
With the recent news about AUT00063, I went looking this evening to see if there was information on Trobalt trials. It turns out there is information on several - some are recent or on-going. I haven't looked at these closely, but I did see that a couple involving children have been terminated after being put on hold at the request of the FDA. To the extent that results are available, it might be useful information for anyone considering Trobalt. It's a shame that they apparently haven't looked at tinnitus as a secondary outcome.
http://www.gsk-clinicalstudyregister.com/compounds/retigabine#ps
https://clinicaltrials.gov/ct2/results?term=retigabine&Search=Search
http://www.gsk-clinicalstudyregister.com/compounds/retigabine#ps
https://clinicaltrials.gov/ct2/results?term=retigabine&Search=Search
- Jan 3, 2015
- 635
- Tinnitus Since
- 04/21/2014
- Cause of Tinnitus
- Sensorineural hearing loss right ear.
I took 3 shots of scotch, 2 shots of bourbon and 1 shot of vodka, every hour, for six hours and when I passed out, I think my T was gone the entire time?
monacco
Member
Its not fake. You just got used to it. I had no effects on 3x400 in the late stage of the 40 days that I took it. The miracle-moments also disappeared, where the T went from 10 to 3 for 5-30 minutes as I described somewhere in this thread.
the first weeks I was high as Rick James on 3x400mg
Onnie
Member
- Jul 15, 2015
- 64
- Tinnitus Since
- 10/2009
- Cause of Tinnitus
- '09/1.0: Loud concert '15/2.0: Cause unsure
@Danny Boy
Sorry to hear that.
It is strange, you would think that being t free for such an extended time would break the endless loop.
Sorry to hear that.
It is strange, you would think that being t free for such an extended time would break the endless loop.
Well, Christian did warn me this would happen. Can't really do much. Well, here's to 10-20 years suffering... Thanks Autifony.
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
I advise usage of trobalt + that high sound pitch that i gave u for brain modulation during full hit of medicine, you know that helped me even after i became resistant, resetting brain in morning
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
monacco
Member
monacco
Member
Yesterday I took my first pill at 13 pm it's very hard to say , I had a quite afternoon but may be it was just the placebo effect.
That is the problem thought isn't it? Can get the Trobalt but can't get the Neurontin. He already tried it with Keppra.....
Well mine buying problem problem is just opposite...
Did u have any H, or just T...as it seems that keppra work well on H?
No H just T - one boring high pitched monotone on and on and on................
Me too amandine, in my head. I do seem to be habituating fairly well though as a lot of the time these days I don't notice my T so much.
That said, I think the process of habituation can be a bit of a double edged sword - because I don't notice my T a lot of the time now, when I do it really upsets me. This week has been a bit of a bad week as I've had a couple of bad days - I think the disappointment of Autifony going bump has put me in a sad frame of mind. But it'll pass and things will improve again. Life's for living and I'm not gonna let T stop me from living it ! I think we're getting ever closer to an effective treatment - we learn from the failures (Aut63) and progress follows !
That said, I think the process of habituation can be a bit of a double edged sword - because I don't notice my T a lot of the time now, when I do it really upsets me. This week has been a bit of a bad week as I've had a couple of bad days - I think the disappointment of Autifony going bump has put me in a sad frame of mind. But it'll pass and things will improve again. Life's for living and I'm not gonna let T stop me from living it ! I think we're getting ever closer to an effective treatment - we learn from the failures (Aut63) and progress follows !
I think that fail of AUT has affected most of us, no matter how each of us had hope on AUT.
Simply the fact that there will be no cure in next 8-10 years for sure, developed bad mood in our subconsciousness. It is not easy to accept that fact, to be honest. I think that we still are not aware that AUT's fail simply means no relief until 2025. :/
I think it's wrong to say there will be know cure / treatment for 8-10 years. That is just conjecture on your part and is in no way based on fact. Please don't post statements you cannot substantiate with facts.
No-one knows when a treatment may come along . . . that is a fact.
No-one knows when a treatment may come along . . . that is a fact.
Where did I stated "there will be know cure / treatment for 8-10 years" ?
I have said that there will be NO cure in 8 to 10 years. Facts, hm,
1st one- Developing new drug is process of at least 8 years, so if some drug stars phase I in 2016, until 2024 can not be on the market.
U know that same as i do,I would give everything I have that cure comes out next year, in 2017, 2018, but now when AUT63 is out of game, it simply can not be happened.
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