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Suicidal

@ASilverLight, I know how you feel. I'm 24 as well. Just makes you wonder why me and why now? But honestly we just have to keep going on.

A couple of days ago I was at my lowest as some members know. It's definitely good to keep the mind occupied and not think about useless shit like I was. It's hard. I've lost friends and I've started to isolate myself, but I make an effort to go out even if it's for a quiet drive. It hurts though when I start thinking about the future such as dating, marriage, kids, car, house, money, clothes, all used to mean something to me. Now I just don't care. Good thing is I've stopped spending so much money which is a bonus to be honest.

But yeah we just got to keep going, even if it is a shit life.
 
As I've said before. IVIG and LDN are two possible treatments especially if this is autoimmune.

And then we have:

Psychedelics as a novel approach to treating autoimmune conditions

As time progresses, science is learning about the many powerful qualities of these compounds.
Hey man, you seem to be very up to date on all sorts of treatments for rare diseases. What is your opinion regarding these new drugs on several phases of trial for tinnitus and hearing loss?

I sense that it may take at least 10 years for a decent treatment to reach the market (unless they begin to use stem cells more often, which they should imo).
 
Hey man, you seem to be very up to date on all sorts of treatments for rare diseases. What is your opinion regarding these new drugs on several phases of trial for tinnitus and hearing loss?

I sense that it may take at least 10 years for a decent treatment to reach the market (unless they begin to use stem cells more often, which they should imo).
I honestly can't comment on these drugs as there are dozens of people on here who know way more than I do regarding these drugs and trials.

My opinion, in general, about when we'll see some viable drug treatments, is 5-10 years. I think even if FX-322 and OTOs work, I don't know how effective they'll be initially so it will take time to figure out best practice. Stem cells, mRNA and neuro drugs are heavily on the horizon but the limitation is government approval.

With all that being said, don't be surprised if a device in the neuromodulation field comes to be market and proves to be effective. I would say that there is a very high chance that this happens in the next 2 years that will at the very least reduce tinnitus to an acceptable level, for the severe.
 
Hey man, you seem to be very up to date on all sorts of treatments for rare diseases. What is your opinion regarding these new drugs on several phases of trial for tinnitus and hearing loss?

I sense that it may take at least 10 years for a decent treatment to reach the market (unless they begin to use stem cells more often, which they should imo).
Rinri Therapeutics in the UK is using a stem-cell based approach... but they are in pre-clinical development. As an aside, Frequency Therapeutics, for example, has highlighted how challenging traditional stem-cell approaches are because you have to deliver and integrate cells into the proper location within the cochlea - this is avoided by using their PCA approach.
 
Every 5-10 years somebody has said that since 1980.

Don't delude yourself and others.
Without a doubt you have been at this longer than I have. I don't know what your expertise is or medical knowledge background. I'm not here deluding anyone, I was asked a question of "my opinion" and I answered. I didn't come preaching the gospel to the unconverted.

The skepticism and cynicism is what hurts these forums and hurts visitors looking for respite from this shitty condition. Unfortunately, there are many people who have had a bad go with tinnitus and have had the a cure promised to them for decades, but the truth is, every year, we are closer to a treatment than ever before. That's how science works.

In the last few years we have made quantum leaps in medical research. We have cured Beta Thalassaemia, Sickle Cell Disease and a few other rare genetic blood disorders. We have effectively cured AIDS and at the very least we can manage HIV so much so that patients can live pretty much normal lives with almost no impact to QOL and life expectancy. We created a vaccine based on mRNA technology and have created a pipeline for new treatments to be delivered by way of this new technology. The survival rate for several cancers has effectively been upgraded to 99%+ from barely being survivable a couple decades ago.

If you can't see the progress and want to weep and moan, that's on you. Don't come throw your toxic BS at me. I know for a fact there are hundreds of people who have "cured" their tinnitus and hyperacusis through a variety of methods. And I have personally spoken to 4 people who have successfully treated their tinnitus and related conditions with stem cell therapy. There are treatments and cures but it takes time for them to be refined and reach mainstream sufferers. And btw, it is literally in my financial interest to know what is going on in medical research so I have educated myself accordingly and while there are dozens of qualified people on here who are in the know, they really don't see 1/100 of what's actually going on out there.

Another thing you should educate yourself on is supply and demand. Pharma companies would not invest into (extremely difficult and expensive) research without having a viable market. This is why there has been no sizable investment until now. You'd think that 50 million tinnitus sufferers in the US alone seems like a good market right? Not really, because it depends how many of those would spend or have the ability to spend significant money on tinnitus treatment. The hopes for the pharma companies is that 1) they will get all the baby boomers with disposable income or sizeable nest egg, that have severe tinnitus and 2) all the younger generations, especially Gen X and beyond who have messed up their hearing because of earbuds and the like, WHO WILL BECOME THE GENERATION OF GREATEST INHERITANCE IN HISTORY. So this is not aimed at the 50 million spending $500 to cure themselves, this is aimed at the 1 million spending $10k to cure themselves. Eventually, it will trickle down and hopefully tinnitus will be a condition of the past.

There are dozens of rare genetic disorders that get cured every single day now. A decade ago, we couldn't even imagine a cure and here we are today giving children a full and prosperous life. @dan, maybe the lockdowns got you on a downer. Patios are open now, go get some sun man.
 
Every 5-10 years somebody has said that since 1980.

Don't delude yourself and others.
What about stem cells? I remember a member of this forum tried them with success.

In the US there's a company called Hope Biosciences that are currently using stem cells to treat long covid. The cost is 5k per infusion and they provide 240 million IV mesenchymal cells within it.

I think this may be the decade of stem cell treatments for chronic illness, and Hope Bio definitely seem to be onto something:

https://www.hope.bio/clinical-trials
 
What about stem cells? I remember a member of this forum tried them with success.

In the US there's a company called Hope Biosciences that are currently using stem cells to treat long covid. The cost is 5k per infusion and they provide 240 million IV mesenchymal cells within it.

I think this may be the decade of stem cell treatments for chronic illness, and Hope Bio definitely seem to be onto something:

https://www.hope.bio/clinical-trials
Yes. Read my post. I know 4 people who have been cured by stem cells (including @attheedgeofscience).
 
Question that I'm going to pose here:

Has anyone ever heard of someone with severe tinnitus and/or hyperacusis getting approved disability solely on the basis of the condition itself?

So like, if I eventually get approved because of Sjogren's, that doesn't count. Or if someone gets approved because of depression and anxiety from the condition, that doesn't count.

I mean like, honest to God, approved of disability because of the actual condition.
 
I wish stem cells would cure us. I'm getting desperate. No matter what I do there's a setback.

I was doing arguably "barely livable" a couple weeks ago and it all spiralled out of control. No fault of my own.

Then an audiologist assured me that an acoustic reflex test was no louder than a tympanogram (I've had tons of the latter).

Big fucking surprise, now my hearing dropped (arguably not much) but ALL the distortions are back INCLUDING when I speak so it's over my voice. That alone is impossible to deal with. It's like being interrupted by intrusive sound effects and tones in your head. It's been about 5 days since the acoustic trauma. If she could have seen my face under my mask, she would've known I was terrified at what had occurred when she took the probe out. I knew instantly there was a problem.

So now what? Another year of distortions? Or never get better?

Do I mess with steroids and perhaps get worse like the last time!

Oh and the result? I have hyperacusis. Surprise surprise, apparently believing me isn't good enough.

The TOP ENT in the province doesn't know what to do when I told him what happened 5 minutes before seeing him. Canada is a clown show.
 
I wish stem cells would cure us. I'm getting desperate. No matter what I do there's a setback.

I was doing arguably "barely livable" a couple weeks ago and it all spiralled out of control. No fault of my own.

Then an audiologist assured me that an acoustic reflex test was no louder than a tympanogram (I've had tons of the latter).

Big fucking surprise, now my hearing dropped (arguably not much) but ALL the distortions are back INCLUDING when I speak so it's over my voice. That alone is impossible to deal with. It's like being interrupted by intrusive sound effects and tones in your head. It's been about 5 days since the acoustic trauma. If she could have seen my face under my mask, she would've known I was terrified at what had occurred when she took the probe out. I knew instantly there was a problem.

So now what? Another year of distortions? Or never get better?

Do I mess with steroids and perhaps get worse like the last time!

Oh and the result? I have hyperacusis. Surprise surprise, apparently believing me isn't good enough.

The TOP ENT in the province doesn't know what to do when I told him what happened 5 minutes before seeing him. Canada is a clown show.
Fuck those stupid Acoustic Reflex tests. That's what sent my life in a downward spiral. And I got all the same responses you're getting. I hope you bounce back from this. I really honestly do.
 
I wish stem cells would cure us. I'm getting desperate. No matter what I do there's a setback.

I was doing arguably "barely livable" a couple weeks ago and it all spiralled out of control. No fault of my own.

Then an audiologist assured me that an acoustic reflex test was no louder than a tympanogram (I've had tons of the latter).

Big fucking surprise, now my hearing dropped (arguably not much) but ALL the distortions are back INCLUDING when I speak so it's over my voice. That alone is impossible to deal with. It's like being interrupted by intrusive sound effects and tones in your head. It's been about 5 days since the acoustic trauma. If she could have seen my face under my mask, she would've known I was terrified at what had occurred when she took the probe out. I knew instantly there was a problem.

So now what? Another year of distortions? Or never get better?

Do I mess with steroids and perhaps get worse like the last time!

Oh and the result? I have hyperacusis. Surprise surprise, apparently believing me isn't good enough.

The TOP ENT in the province doesn't know what to do when I told him what happened 5 minutes before seeing him. Canada is a clown show.
Fly to Mexico and get some stem cells. Or try to ask Hope Bio to open a trial for tinnitus. I definitely will do so.
 
Can you share the clinic's name and the cost for the stem cell treatments? I know about the guy who went to Thailand and then later on to Korea if I'm not mistaken, but what about the others?
I don't know the last one but have a look at Dr. Riodan out of Panama and StemCells 21 in Thailand. Whatever you do, don't trust Swiss Medica, they are a sham center. One is in the US but I can't remember where, they guy told me and I want to say Arizona, I just can't recall.
 
Well... I'll be heading out soon. Please remember me as someone who tried her hardest.
I really hope you have improved at least a little and it has given you hope that maybe, just maybe improvement is possible and are sticking around with the rest of us squares.
 
Hi @dan, I hope you're doing more than ok.

Sorry I gave the wrong impression.. I was just dreaming and having a wishful vision.
I am financially broke but am rich in heart.

Apologies brother and my pals here who misunderstood me.

It's an idea that has real potential. I created a bit of ghetto paradise where I live now and have made that a habit in my life wherever I have lived. I am an artist and a builder so making shit came easy before my hearing trauma and brain damage.

If I ever come into funds I would try and collaborate with a few of my Tinnitus Talk friends here and make something happen.

You never know... truly.

Just wanted to get back to you as I haven't been on the forum for a couple of weeks.
Take care and peace.
My tinnitus has again turned for the worse. If it stays like this I don't see myself last much longer...

After my noise insult 1.5 years ago, my tinnitus has been steadily deteriorating.

More sounds, louder, now head is just a blown speaker.

It seems some veterans are also slowly deteriorating due to perhaps more noise or meds or just time or all the above.

I had an ok run there from about 2015 to 2019... but tinnitus is the Devil.
 
My tinnitus has again turned for the worse. If it stays like this I don't see myself last much longer...

After my noise insult 1.5 years ago, my tinnitus has been steadily deteriorating.

More sounds, louder, now head is just a blown speaker.

It seems some veterans are also slowly deteriorating due to perhaps more noise or meds or just time or all the above.

I had an ok run there from about 2015 to 2019... but tinnitus is the Devil.
Has anyone ever asked how long on average spikes last for people, usually — meaning does it vary or maybe there is a pattern in length/time?

I got a bad spike from the TV accidentally being loud; watching a video that unexpectedly changed in volume. It was brief but I am certain it spiked my tinnitus since the spike occurred right after.

I can't help feeling anxious. I am scared and hoping this is only temporary.

I was wondering how others deal with spikes. I know it makes me want to commit suicide even more. My baseline was bad enough. I can't have it go any higher or get any worse.
 
Has anyone ever asked how long on average spikes last for people, usually — meaning does it vary or maybe there is a pattern in length/time?

I got a bad spike from the TV accidentally being loud; watching a video that unexpectedly changed in volume. It was brief but I am certain it spiked my tinnitus since the spike occurred right after.

I can't help feeling anxious. I am scared and hoping this is only temporary.

I was wondering how others deal with spikes. I know it makes me want to commit suicide even more. My baseline was bad enough. I can't have it go any higher or get any worse.
I think the average is 2 weeks.

What you describe happens to me often now. It wasn't like that in my old severe tinnitus where I was not prone to spikes from such trivial noises.
 
I think the average is 2 weeks.

What you describe happens to me often now. It wasn't like that in my old severe tinnitus where I was not prone to spikes from such trivial noises.
I hope no longer than 2 weeks. I haven't had a spike this bad in a while.

You think my TV sound blaring unexpectedly is a "trivial noise?" I don't.

I moved recently but still in the same apartment. The sirens I don't hear as much as it's a different location of the building. External sounds and noises are the worst now, traffic and these sirens when outside.

I got a used computer recently but I have to use the TV speakers as I have no other audio source. It's very frustrating because it is a pita to keep track of volume settings and videos can be unpredictable with audio changes. I watch from my couch but it is still a problem and risk.

It might be trivial to you and 90% of the population but loud enough settings can still cause spikes on me. I just pray it's temporary. My baseline is loud enough that I still think I'll ultimately try suicide. I don't have much enjoyment in life, if at all.

If there was some revolutionary new cure or treatment for tinnitus arriving soon, I would have read it here by now. There's nothing to look forward to.
 
I died in 2019, except instead of actually dying, I had to witness losing everything: my wife, career, ability to talk, ability to leave my house, ability to take earmuffs off, ability to do anything with any noise, ability to sit in peace, ability to think straight, ability to shower in peace, ability to drive, ability to ride in a car, ability to take walks.

I lost my house, my chance at fatherhood, my capacity to predict my future with any accuracy, my sanity.

I died. Maybe if I get past this somehow, I will change my name to Zug Zug and start fresh because the dude that was an up and coming mathematician and married to the love of his life -- well, that guy's dead.

As far as actual suicide, my survival instinct is too strong, so I'll probably stick around just wallowing in sorrow like the disability faker that I am.
 
I hope no longer than 2 weeks. I haven't had a spike this bad in a while.

You think my TV sound blaring unexpectedly is a "trivial noise?" I don't.

I moved recently but still in the same apartment. The sirens I don't hear as much as it's a different location of the building. External sounds and noises are the worst now, traffic and these sirens when outside.

I got a used computer recently but I have to use the TV speakers as I have no other audio source. It's very frustrating because it is a pita to keep track of volume settings and videos can be unpredictable with audio changes. I watch from my couch but it is still a problem and risk.

It might be trivial to you and 90% of the population but loud enough settings can still cause spikes on me. I just pray it's temporary. My baseline is loud enough that I still think I'll ultimately try suicide. I don't have much enjoyment in life, if at all.

If there was some revolutionary new cure or treatment for tinnitus arriving soon, I would have read it here by now. There's nothing to look forward to.
You misunderstood me my friend. I meant it used to be a trivial noise for me with my old tinnitus.

It is now a huge concern in my daily life.

My tinnitus also spiked a week ago after tripping on my shower curtain and making a big noise near my ear. It is also the biggest spike in a decade for me. Funny as we spiked same time.

I hope it goes down for both of us.
 
I died in 2019, except instead of actually dying, I had to witness losing everything: my wife, career, ability to talk, ability to leave my house, ability to take earmuffs off, ability to do anything with any noise, ability to sit in peace, ability to think straight, ability to shower in peace, ability to drive, ability to ride in a car, ability to take walks.

I lost my house, my chance at fatherhood, my capacity to predict my future with any accuracy, my sanity.

I died. Maybe if I get past this somehow, I will change my name to Zug Zug and start fresh because the dude that was an up and coming mathematician and married to the love of his life -- well, that guy's dead.

As far as actual suicide, my survival instinct is too strong, so I'll probably stick around just wallowing in sorrow like the disability faker that I am.
We are all in this together... the 2% club.
 
I died in 2019, except instead of actually dying, I had to witness losing everything: my wife, career, ability to talk, ability to leave my house, ability to take earmuffs off, ability to do anything with any noise, ability to sit in peace, ability to think straight, ability to shower in peace, ability to drive, ability to ride in a car, ability to take walks.

I lost my house, my chance at fatherhood, my capacity to predict my future with any accuracy, my sanity.

I died. Maybe if I get past this somehow, I will change my name to Zug Zug and start fresh because the dude that was an up and coming mathematician and married to the love of his life -- well, that guy's dead.

As far as actual suicide, my survival instinct is too strong, so I'll probably stick around just wallowing in sorrow like the disability faker that I am.
I'm sorry Zug. I'm starting to lose everything too man. It's such a dark feeling losing everything you love. I lost my job, the gym, all my friends, my family is sick of me.

I know I could have it worse but it's still killing me.
 
We will eventually kill ourselves. It's just a matter of when and how.
That being said, it is of great importance that I prepare myself and my family. The society and pain sufferers need to educate themselves about exiting this plane of existence.

I would like to work with a professional who has worked with MDMA. It is possible to make assisted suicide, suicide, a good choice for the person who is dying and loved ones if those concerned were lucky enough and driven to prepare emotionally and chemically for the death act.
 

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