Madi
Member
- Nov 25, 2019
- 9
- Tinnitus Since
- 10/2019
- Cause of Tinnitus
- Noise exposure, stress, probably medicines too. Who knows!
I normally try to post positivity when I'm here, since I know places like this are where people come when they need to vent, but it's so hard to be positive lately.
I've been dealing with weird hearing distortions lately — sometimes tiny fragments of speech will sound almost electronic, or digitized, or robotic, however you want to describe it, especially when there is background noise. It took an ENT two weeks to finally get me in for an appointment tomorrow, but only after me hounding them with messages. I feel like nobody takes me seriously when I talk about this distortion, especially since my audiogram is normal. I'm worried it could be hidden hearing loss, damage to the nerve, or something even more sinister. I'm trying not to freak out about it, because I know I am prone to anxiety and being a hypochondriac.
But everything is hard. It's harder to listen to music because I'm just looking for something to sound wrong. It's hard to listen to people talk, because I'm just looking for that weird digitized distortion to pop up. I can't name how many times I've just sat in my bed and cried because it feels like everything I used to know has changed, and I just want it back. I'm holding out hope for treatments like what Otonomy is doing for cochlear synaptopathy, but it's hard to be patient.
It's weird, walking a line between being so, so tired of life while still being so afraid to die. Mostly, I want a reset button. I want to redo the past year. I would do so much differently. I'm staying alive for my family, my friends, and my girlfriend, and for that little glimmer of hope that things will be better in the future. But mostly I'm just sad right now, and I don't know what to do. I don't know what I need, so I'm reaching out to a bunch of strangers on the internet.
I hope we all find happiness soon.
I've been dealing with weird hearing distortions lately — sometimes tiny fragments of speech will sound almost electronic, or digitized, or robotic, however you want to describe it, especially when there is background noise. It took an ENT two weeks to finally get me in for an appointment tomorrow, but only after me hounding them with messages. I feel like nobody takes me seriously when I talk about this distortion, especially since my audiogram is normal. I'm worried it could be hidden hearing loss, damage to the nerve, or something even more sinister. I'm trying not to freak out about it, because I know I am prone to anxiety and being a hypochondriac.
But everything is hard. It's harder to listen to music because I'm just looking for something to sound wrong. It's hard to listen to people talk, because I'm just looking for that weird digitized distortion to pop up. I can't name how many times I've just sat in my bed and cried because it feels like everything I used to know has changed, and I just want it back. I'm holding out hope for treatments like what Otonomy is doing for cochlear synaptopathy, but it's hard to be patient.
It's weird, walking a line between being so, so tired of life while still being so afraid to die. Mostly, I want a reset button. I want to redo the past year. I would do so much differently. I'm staying alive for my family, my friends, and my girlfriend, and for that little glimmer of hope that things will be better in the future. But mostly I'm just sad right now, and I don't know what to do. I don't know what I need, so I'm reaching out to a bunch of strangers on the internet.
I hope we all find happiness soon.