Juliane

Juliane

Member
Messages
81
Reactions
3,814
Points
561
Joined
Last seen

Profile posts Latest activity Postings About

  • Juliane
    Acupuncture, massage, b12 injections, therapy - nothing produces any results whatsoever. I am done searching for a cure. This is my fate.
    Juliane
    2/3 I can see clearly how obsessed I was with non issues before this nightmare when I should have been more interested in the suffering of
    Juliane
    1/3 I am not ever going to say that something good has come out of tinnitus but I do feel other people's pain more these days.
    Juliane
    Major spike hasn't gone down one bit since Saturday. Scared, panicking, losing hope. Why did my life end like this?
    View previous comments…
    Juliane
    Could also be poor sleep for days prior and then the alcohol was the tipping point.
    jimvee
    I haven't had an alcohol induced spike myself, but from what I've read from others it will go down again. Hang on in there, stay strong!
    cyberspace
    did this spike subside?
    Juliane
    Haven't taken a zopiclone pill in 2 months. If I take one tonight to help sleep and then stop again immediately, will that be risky?
    View previous comments…
    Juliane
    I do remember reading @SilverFox had some bad experiences with the Z sleeping pills...
    kingsfan
    @Juliane well taking it once in a while is def better than taking it every day. If you had no problem with it before you should be fine with it.

    I take gabapentin on and off with no problems. It's also a gaba antagonist
    ZFire
    Agree with @kingsfan , infrequent usage probably won't do much to alter your GABA/glutamate profile.

    Frequent usage however. will likely modify a person's GABA/Glutamate balance more significantly.
    Juliane
    Guys and girls, I need your advice please: I haven't slept for days due to alcohol induced spike. Is it safe for me to take a zopiclone?
    Juliane
    Can I really be spiking so horribly even 3 days after drinking some wine? There is no other culprit I can think of. If yes, is it GABA?
    View previous comments…
    Juliane
    Thank you so much @kingsfan ! Here is hoping. Hope your spike will settle too!
    SilverFox
    Reading this made me realize that the reason for sudden very loud tinnitus I woke up to yesternight might have been some wine I had that evening. I didn't sleep that night, but after two days it seems to have gone down to almost previous level. So, if it was wine, it can go back down.
    Juliane
    @SilverFox Sorry you had a spike too, but good that it calmed down for you. I guess for most of us wine and beer is part of life and also provides some relaxation, so will be hard to completely cut out. But sucks if spikes are involved.
    Juliane
    I have lost all respect for so called doctors. They mock people like us and sometimes even damage us beyond repair. So useless
    MadeleineHope
    Also, sleep deprivation can really make things a lot worse (as though they aren't bad enough already, right?). Have you tried taking any natural remedies to help?
    MadeleineHope
    2/2 I know you're worried about taking a break from work because you recently started, but maybe that would help give you some breathing space? Allow you to focus on your health & healing?

    Sending so much ❤️
    Juliane
    I am definitely considering that now. Sending a lot of ❤️ back at ya!
    MadeleineHope
    1/2 Hey, I'm not really on much today since I'm having a really hard time but I just saw this & wanted you to know that I care & that you're not alone. I can definitely relate strongly to how you feel & so wish I could take our pain away, & everyone else's here.
    Juliane
    I know you are having a really hard time and I very much appreciate you taking the time to comfort me during your own struggle. Means the world to me. ❤️ Big hug
    Juliane
    I just can't do it anymore. Feel so bad for the ones I love. But this world has become too cruel. This is it
    Juliane
    I have not been so close to giving up before. Relentless torture for 7 months now. Stupid doctors who haven't got a clue. I am done
    View previous comments…
    Lorca
    I know, I can relate but you have to carry on. It's the only way. Life is still beautiful. When I look back on my time with tinnitus, the suffering is a small part of my memory and the good things outnumber it.
    Juliane
    @Lorca Thanks for your encouragement. How is your tinnitus today? Has it improved at all?
    Lorca
    To be honest no, but I carry on and can only hear it at home most of the time. I know im lucky in that regard. Since getting tinnitus I also got visual snow and floaters which are just as bad if not more. Be very happy you don't have to deal with those nightmares.
    Juliane
    I cannot continue like this. I just can't.
    View previous comments…
    Tryn2BHopeful
    Recovery is not linear, hopefully you will go back down in a day or so.
    Cmspgran
    Same here, crap Monday, sat and my ears ringing in overdrive. Keep going you're not giving in! None of us are, I want us all back here in five years all saying remember when…
    Juliane
    @Cmspgran I am so sorry. I don't think I can continue for long. This isn't a life anymore. I am sorry
    Juliane
    Wish I had a time machine. I would travel 5 years into the future to see how we're all doing. Or 5 years back and prevent this
    View previous comments…
    Juliane
    Tryn2BHopeful
    @Juliane I guess its the point that I really did nothing that I can think of to cause this other than take a drug that was prescribed to help me (which is seems I didnt need). It still rubs me the wrong way that the GP had no idea of the side effect, and I had to dig on the internet to find out after the fact.
    Juliane
    @Tryn2BHopeful I am really sorry to hear that. So unfair. What drug was it?
    Juliane
    Could tinnitus be a symptom of ME?
    View previous comments…
    Lurius
    All I know is that there's a course called "the Lightning Process", for people with CFS (the american term for ME). When I got Tinnitus in 2018, I called the woman who is in charge of this in my country to ask her if she thinks it could also help with tinnitus. She couldn't promise anything, as it's primarily meant for ME - but she mentioned having treated many patients with ME who also had tinnitus.
    Juliane
    @Lurius Interesting. Thanks! So did it help you?
    Lurius
    I didnt try it. It was very expensive. But one of my best friends has a sister who suffered insanely from ME and she is back to normal now after doing that course.
    Juliane
    This week I've been extremely tired and I wonder if it's the body finally giving in to the exhaustion after months of anxiety and adrenaline
    Cmspgran
    Where are you up to? Had to succumb on Friday and take a .5 clonazepam for some relief. Saturday wasn't so bad - not sure if it's hangover from Fridays pill. Today (Sunday) has been awful, left ear ringing buzzing like the clappers, had to lay down and take a half a clonazepam to see if I can get relief. Feeling emotionally drained, hopeless and dreading the week of work ahead.
    Juliane
    @Cmspgran We all can reach a point where we just need relief. I understand and hope the Clonazepam gives you that much needed relief! I am dreading the work week too. I am too much in crisis mode still, I feel I should not be working. I will be thinking of you when Monday kicks in. Wishing you a peaceful night.
    Juliane
    Horrible tinnitus after three glasses of wine yesterday... Must live even more restricted
    Juliane
    @4Grace We gotta live too and that includes sometimes doing "stupid" things. Thanks for your kind words. Wish you peace of mind too!
    Juliane
    And I don't think it's that simple at all, but I do think thriving in life is key to good health. Now how to start thriving?? Life is tough
    4Grace
    Agree !!
    4Grace
    I would take peace of mind above everything else. God and faith can help provide peace of mind for obvious reasons. Without peace of mind you can have everything and nothing at the same time. My wife followed Charles Stanley. God rest his soul. Her deep faith in God saved her life. He has many good books. One book entitled "Emotions" is such a great read. He was one of the few good preachers on TV.
    4Grace
    I have most of everything one could wish for,,, before T and some other issues, I would always tell my wife that I feel like something was missing. Even though I was happy I would say what next? Now I know that it was faith and God that was missing in my life.
    Juliane
    And that increasing your quality of life by making life choices that are in harmony with your true being will heal you.. Controversial
    Juliane
    Years ago I saw an "alternative" therapist who was convinced that all diseases are caused by low quality of life
    Juliane
    Before the worsening of my T, I had been exhausted for years... I wonder if T is, also, some kind of "energy lack" issue..
    Juliane
    Tough day today. Super tired although sleep seemed OK. I can never adjust to the randomness of this madness. I long for logical patterns.
    Tryn2BHopeful
    Tell me about it... I have been a computer guy forever.. logical patterns is how I think... this just drives me crazy.
  • Loading…
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu