Supersix

Supersix

Member From California Dreaming
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  • Supersix
    How's everyone doing? Hope you all are having a great weekend
    View previous comments…
    Supersix
    I suffer from allergies and ETD, and when they flare up, everything seems to go wrong. Recently, I decided to use a prescription nasal spray that I had been sitting on for a year. However, I finally decided to try it. I told myself it couldn't make my T any louder than it was, which was a good decision. The spray dried me out. I love the results so far and am curious to see how I feel over the next few days.
    Supersix
    Azelastine HC is the prescription that helped alleviate my tinnitus and dry me out. Let's see how tomorrow goes.
    RunningMan
    I wasn't clear earlier. I meant that I think the new sleep med is making me feel worse since upping the dose. Sadly, I'm not sleeping any better, yet, either. I'm hoping I adjust and it improves.
    Supersix
    I suggest that everyone should get a Swedish massage as it is beneficial for the central nervous system.
    Supersix
    Has anyone tried Lavela WS 1265 lavender oil? My daughter said it works well and calms her down, but I have yet to try one.Great reviews
    Supersix
    @RunningMan It might be worth trying Remeron, which I think helped reduce the severity of my symptoms, along with a Swedish massage.
    View previous comments…
    RunningMan
    I don't have Remeron, but I have a little Ambien left. When I wake and can't get back to sleep, Ambien helps me get back to sleep at a small dose better than the full pill of Lorazepam. But I no longer have an Ambien prescription. Dr. less likely to prescribe Remeron, especially since he prescribed Quviviq. That's why he stopped Ambien. I need to give Quviviq more time.
    RunningMan
    Well had the upper GI. No problems seen but waiting on random biopsies.
    Supersix
    That's great news. I had scarring on my lower esophagus I have to take a-PPI for maintenance every day, Luckily it doesn't spike my T
    Supersix
    I noticed my hissing spike had lowered in tone, and I am unsure why. The only thing I can think of is that I had a Swedish massage.
    Supersix
    I noticed my hissing tone improved two days after the massage, but I'm unsure if it was directly related. I was like, wait a minute, my tone is quieter now. What happened? It's been two weeks now, and it is still the same. I hope it stays.
    BrOKeN_1
    Mental Note... "Get Swedish Massage". :)
    Supersix
    Who listens to white noise through airpods
    kingsfan
    I've tried with my airpod pros, but it doesn't give me any benefit. I just use them for at-home audiograms from time to time with the MiMi app since they are specifically calibrated for it.

    Also the "connecting" sound they play when I put them in my ears is uncomfortable.
    Supersix
    Have you tried any new anxiety medications that are coming out in 2023-2024?
    RunningMan
    I don't know of any, but "new" usually means expensive and insurance doesn't cover when there are lower cost drugs available.
    Supersix
    I found out yesterday that I could restore hearing in my Right ear that I was told since birth It was a dead Ear
    Supersix
    I visited an Ear, Nose, and Throat doctor who is a semi-retired professor and a graduate of Stanford University. He had asked me to bring my medical records four months before my visit, which he reviewed. During the examination of the hearing test, he noticed that although I could not hear from my right ear, the bones in that ear could still receive sound. He explained that there is a surgical.
    AfroSnowman
    That is incredible! Congratulations
    Supersix
    It's called Orsicular Chain Reconstruction with titanium in my right ear. He said they could restore the hearing to 80-70 DB, and I would wear a hearing aid. He stated it would make my life better and offset the Tinnitus in the left ear.
    Supersix
    View previous comments…
    Tryn2BHopeful
    @RunningMan My insurance wont cover them... I dont qualify for a hearing aid as far as for amplification as my normal audiogram is fine. However despite my efforts none of them would offer me maskers. I feel I have been pretty much dismissed everywhere I go.
    RunningMan
    @Tryn2BHopeful Oh, I see. Yeah, I actually have hearing loss, although I don't normally have trouble hearing in conversations, even in groups, so I haven't been quick to get hearing aids, even though I would like to try the masking (or sound enrichment, whatever. lol).
    Supersix
    To use white noise with your hearing aid, you'll need one that has Bluetooth connectivity. Many hearing aids come with a companion app that can play white noise. The Resound hearing aid app is one such app that allows you to customize the sounds you hear. and it's especially handy when I experience sudden spikes in my T Additionally, you take calls on your mobile phone directly through your hearing aid.
    Supersix
    Pink, Brownian, or White Noise? Which one works best for you? When I'm having a lousy spike, I prefer Rain noise.
    Tryn2BHopeful
    Sadly nothing works for me. Everything seems to make my T react more... So I dont even try.
    Supersix
    "I have trouble listening to white noise when I sleep because it makes my tinnitus sound louder, Occasionally, during the day, when my tinnitus is particularly intense and wearing on me mentally, I'll listen to rain noise for a short time.
    Supersix
    I get spikes 4-5 days out of the week.it is easy to blame sleep medication because it makes it seem worse. So do you take it anyway?
    View previous comments…
    L along the way
    That's nice to read. Btw, I've never been a big fan of pharmaceuticals. But when it comes to a good night's rest.. I just value that so much. For now the medication helps, I hope in the future, with mindfulness & a healthy lifestyle I can feel better & sleep well again
    Supersix
    Meditation and breathing exercises are crucial; I practice them daily. Also, it's essential to reduce salt intake and identify tinnitus triggers. I have bad anxiety. I will drink chamomile tea in the morning. It calms me down, and I have Benzo for emergencies and eat very clean.
    Supersix
    "It's amazing how I had a wonderful day yesterday, but everything went wrong at 3:30 am deep ringing. Whenever I have a good day, the next day is a disaster. I don't understand why I can't have three consecutive good days. Occasionally, I can have two good days in a row. It's because the barometer goes up and down during the winter, and it effects my ETD
    Supersix
    I had an upper endoscopy today and was concerned about the sedation's effects. I told them I wanted propofol for my procedure. No spike!!
    Supersix
    I considered canceling the procedure because my T levels spike with everything I take. I need a pill with Propofol and a small amount of Klonopin i would be set a night
    Supersix
    I have been listening to classical music through my hearing aid for the last few days and I've noticed that it reduced my tinnitus a little.
    View previous comments…
    kingsfan
    I would love to try this, but my ears cannot tolerate the stringed instruments.
    ZFire
    @kingsfan , look into Frederic Chopin. He does a lot of solo piano compositions. not too hard on the ears. He's not a classical composer, but a romantic one. Still very good era of music. Give it a look maybe.

    I find Mozart really chill.
    Supersix
    @kingsfan "The piano is a calming instrument. I will adjust the volume or switch to a different song if the string instruments become to distracting.
    Supersix
    I have found meditation to be extremely helpful. I recommend using the Calm app or checking out The Honest Guys channel on YouTube.
    View previous comments…
    RunningMan
    yeah, I've done it, just not a lot. I didn't seem to help much after I was done.
    Supersix
    @RunningMan it helps with anxiety and can calm you down before bed. If you have loud T its hard to sleep without meds.
    RunningMan
    Yeah, I take a med almost every night, sometimes 2 or 3, and I still usually come up short on sleep, which is always quite broken as well.
    Supersix
    A new study out says wearing a hearing aid extends your life. Im going to start wearing mine more.
    Juliane
    I guess it depends on whether one wants a long life....
    Supersix
    What is the best time to take Mirtz?
    View previous comments…
    Tryn2BHopeful
    @Supersix To a point obviously, taking .5mg might do nothing. The idea is that at low doses it only effects the part of the brain that has an anti-histamine response... thus makes you sleep. At higher doses it has more effect on other chemicals in the brain.
    Supersix
    @Tryn2BHopeful

    Right now, I'm trying to get my sleep under control. I wouldn't say I like taking these meds. I know I have significant anxiety, but I think I can control it with better sleep. I'll still have anxiety, but I won't have to worry about a permanent spike loading up on this medicine.
    RunningMan
    @Supersix I know you took hydroxyzine. Did Mirt seem to have a much more sedating effect for you? Hydroxyzine and other antihistimine OTC sleep meds don't seem to help me sleep much better - sometimes they seem completely ineffective despite rarely using.
    Supersix
    I have noticed that taking Dr. Reddy's 20mg omeprazole for acid reflux reduces my tinnitus slightly. I have never got a spike from them.
    Supersix
    I highly recommend that you join the ATA support group. It's a fantastic source of support. I wish I had joined years ago.
    Supersix
    Can insomnia, stress, and anxiety affect your tinnitus and make it louder an night when you sleep?
    Pixelito
    All 3 things can absolutely can make it worse.
    Supersix
    @Pixelito Thank you!

    Now I know why there's been a BIG spike. I need to get it under control and bring it back down
    RunningMan
    None of those things seems to affect mine, but anxiety and insomnia suck even without tinnitus.
    Supersix
    How many hours does everyone sleep? How often do you wake up, and do you take any medicine upon waking up in the middle of the night?
    View previous comments…
    RunningMan
    Probably average about 5 hours of broken sleep, sometimes just 3 or 4. I wake up several times that I can remember. I take zolpidem partial tablet sublingual most nights sometime overnight to get back to sleep, sometimes more than once, and occasionally lorazepam early morning to aid in some additional sleep. Getting close to 2 years of this.
    crescentsky
    @Supersix I'm not sure if insomnia causes spikes. But I do think lack of sleep and stress may cause the body do weird things.
    Pixelito
    My ringing fades to nothing when I fall asleep. In the beginning I needed a fan and sounds of insects playing on my bluetooth speaker. I've adjusted to sleeping in silence. I've had issues sleeping for years, waking up in the middle of the night, etc. but tinnitus doesn't affect my sleep much.
    Supersix
    Why do all my medications increase my tinnitus levels? I see other people on here taking various types of medication.Is this common?
    View previous comments…
    RunningMan
    I feel pretty safe taking 0.5 mg Lorazepam every 3rd morning. I don't experience any intradose withdrawal. Back in mid December, I took it 5 times in an 8 morning stretch. Didn't have any negative effect, but that was short term, and now just 4 times in 13 days. Unfortunately, that means I'm just suffering most of the time anxiety comes on. Sucks.
    kingsfan
    I have certain T tones that aren't affected by medication and others that are incredibly sensitive to it. None of it makes sense.

    @Tryn2BHopeful It may be the type of magnesium. Threonate does bother my tinnitus but Oxide does, for example. This is assuming you haven't tried them all, of course.
    Supersix
    @kingsfan
    I have never taken Magnesium does it help reduce your T?
    Supersix
    I took half of a Zolipen last night for the first time in months I had a rough week. I woke up two hours later with a deep ringing.
    Supersix
    I have only taken half a Zolpedian dose once before, and it caused a spike in my symptoms. If a medication causes my symptoms to spike, I avoid retaking it. However, Lorazepam has never caused a spike in my symptoms.I can't continue taking benzo even tho I take a very small dose
    Supersix
    Do you use white noise to help you sleep at night? If so, is it effective, and does it matter whether you use a sound generator or, an iPad?
    crescentsky
    I have a sound oasis but barely use it. I find noise generators more annoying after T. My T came on one night on the night that I was using a sound generator. When I turned it off was when T came on. There were other stressful events that happened around the time, but the timing was a bit strange.
    Supersix
    "When I experience intense ringing, I use white—Noise through my hearing aid during the day or at night after a few hours of sleep. My wife also likes to listen while we sleep, but I have told her that it makes the hissing/ringing sound louder. We have argued about it, but I am trying to be flexible. We do not play it because I wouldn't say I like it.but if there was a benefit for my T i would be more open to it
    Tryn2BHopeful
    White noise seems to raise my T at first by morning it's ok.
    4alien2
    Does your eustachian tube close while you sleep?
    View previous comments…
    Supersix
    @4alien2

    When you say "blockage," do you mean it gets backed up with mucus at night, and you try to clear it to open your ET? Does this cause a spike in your tinnitus?
    4alien2
    No, it's not because of the mucus. I did some research and read that the muscles that activate the eustachian go to rest during sleep. This may be due to increased resting tone of the tensor veli palatini muscle. @Supersix
    Supersix
    @4alien2
    "Are you currently experiencing tinnitus as a result of Veli Palatini? I'm curious about the specific type of sound you hear. For me, it's more of a constant hissing sound that persists throughout the day. Occasionally, I also experience a deep ringing sound when I'm sleeping, particularly if my ear is producing excess wax and becomes damp inside."
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