Juliane

❤️

You can explain until your blue in the face. They can never know. I’m so sorry for all your suffering. You are in my prayers daily.

❤️

@Pinhead I feel the same and it scares me. Are we right or are we going mad?

@Pinhead - I am beginning to think I was like what you mention. As I look around I feel like most people, are very kind and loving. I never noticed how much until I became ill. This is probably just me. I always considered my self an empath now I am thinking a lot of it came from selfishness. Horrible realization for me, suffering teachers you a lot. I hate being this way. I hate it,

@4Grace I understand. I have been manipulated my whole life. I learned that love and kindness are transactions and I never felt loved for who I truly am. For the rest of my life I am going to be ME, I don't care what people think. Oh, and I hope we meet one day in real life.

I’ve taken a lot supplements the past few years but nothing too out of the ordinary. Basic stuff like magnesium, zinc, vit A/C/E, D3, fish/algae oil. Can happily say they never gave me eye issues. Have you looked into setting up an appointment with a doctor or a specialist to get your floaters checked out?

@Calapsodis Please be careful with b-vitamins, especially B3 and B6. I think B3 may have caused my eye floaters.

Really? That’s a first for me. I’m sorry that happened to you though. Fortunately I don’t really take B vitamins that much except the occasional B12 when my diet hits the curb (which is usually most of the time). I’ve drank Vitamin Water in the past a lot and it says it contains 100% of your daily intake for B vitamins but I never linked it to my floaters. I’m still like 90% sure the prednisone did it to me.

You are not alone. I’m so sorry to hear this.

I have to go every 6 months and no effect on my T. There is also retina imaging which is a 360 scan of your retina. Pretty sure almost all the eye docs have it. You can probably opt for that, if that is an option.

Thank you @crescentsky !

Like on TT I am destroying the people around me. How can I concentrate on something else. It’s in my mind 24/7. I have become a massive burden on everyone.

You are not @4Grace. But this world has been set up in a way so as to ignore and blame the people who are sensitive and suffering instead of making a world we can all live in. It is not our fault, any of it. We are too sensitive for this world, and imo this world can go f.... itself.

Thank you for your kind words. I was once very kind. My heart became hardened over the years. This feels like punishment for a personality disorder I had not choice over. I can’t do anything at all only because of my ears.

You're just trying to survive

Sorry @Juliane. I know how you feel.

@tpj ❤️ I am sorry you know

100 percent

I think there is more similarity to MS or Parkinson's than the doctors know. Some researchers may be finally getting some clue, but it is a long road ahead.

@Juliane. In my case it seems it is full blown neurological disease, and it is progressing with noise input.

I'd rather have a terminal illness. Maybe I secretly have Prions disease slowly unfolding the proteins in my brain.

In my case, i know it has been caused by acoustic harm. This scares me, because i know how much off limits the volume was, it shivers my spine when i think back about that event.

I've come to realize, our natural bodies have to operate within natural limits. It's like.. natural harmony is just ahh, and everything that's not that is.. uff.. still i try to believe in healing with time, it's basically the only thing i got regarding to t.

But i have no guarantees, which can be frightening. But then, there are basically no guarantees in life at all.. i just try to find hope, calmth, spiritual inspiration, untense, healthy lifestyle, and go with the day. Nice to read from you again btw

I also grew up in a broken family, sadly enough. I've seen how complicated life can be, and i think that harmony is something we all naturally long for. Disease, dis-ease, something not at ease, i mean.. we feel something is not right, and just naturally wish to find harmony again i feel like.

I would love to feel like life is a gift, but most of it has felt like something to endure, sadly enough. Maybe a next life may be better, or i hope we can find healing in this life

Thalamic dysrhythmia. Inhibition gets fucked up. I always get minor floaters (since maybe late teen years), got immediately worse with T. Visual Snow is the next stage of brain collapse that some have.

They get annoying from time to time, but I am so used to them I don't notice unless I'm in really bright light or looking at a bright screen.

They're just clumped up pieces of collagen. If you move your eyes up or down or from side to side they will scoot out of the way.

Always had minor but visible floaters before and after T first came around. I ran a course of oral prednisone a few weeks ago and ever since then I’ve noticed more floaters. I guess it’s a possible side effect.

Not too well for the past two weeks. Took some days off. I was doing okay before, but the couple "traumas", especially the last audiogram fucked me. The brain is disintegrating. This is not tinnitus, it is a form of a brain cancer.

@gameover how was your last audiogram?

Hey @gameover I've read that face massages really helped you. Can you send me a link or you tube video that you use please. Thanks

I've gotten interested in mindfulness.. but the thing with this is.. if there is actual harm to the physical auditory nerves, like... how to find ease & stillness with this condition. The inspiration i've found for natural wellbeing.. feels so disturbed by this one.

Also, if it were just 'annoying sound'.. but it's painful too, something has been truly harmed.. and it may be safe to say, it has a negative effect on our cognitive & emotional wellbeing states. I notice that i get a lot of thoughts around t.. and i feel like.. if i try to stop, and be with the actual experience & sensations, it's just painful and distressing, and i feel the want to escape that.

That's why i maybe always crave for a better tomorrow, because the actual experience with this.. i find it hard to just be and settle within.. because it's just so discomfortable and it feels like it's disturbing more than it just is an 'annoying sound'. I guess.. i say again.. a better day.. i don't really know another way. Wishing it to get well and that we be okay.. pppffffttttt stay strong guys..