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  1. S

    I suffered no side effects or withdrawal symptoms after I stopped taking Rivotril. It has not...

    I suffered no side effects or withdrawal symptoms after I stopped taking Rivotril. It has not returned for over two years. Also have extremely loud, bilateral tinnitus but a stoic attitude is all that helps with that.
  2. S

    Hi Biaxca, my symptom consisted of a sporadic thump in my left ear that would happen a couple of...

    Hi Biaxca, my symptom consisted of a sporadic thump in my left ear that would happen a couple of times a minute. It took about 3 months to resolve on the couple of occasions that I had it for a while. I was treated by Gerald Brookes, a Harley Street consultant who knows about the condition. He...
  3. S

    Unleashing the Power of the Mind to Manage Tinnitus?

    Not sure if this will be of any use to anyone but it's what I do for severe (though not catastrophic), very loud tinnitus (I don't have hyperacusis) that is bilateral and consists of several tones, as well as for mild but chronic paint. The approach is easy to learn (by Googling 'shikantaza')...
  4. S

    2020 US Presidential Election

    And a second term of Trump is the solution? Slightly abbreviated extract from Ian Hughes's highly acclaimed book Disordered Minds: How Dangerous Personalities Are Destroying Democracy. Can’t think who this reminds me of. 'The characteristics of narcissistic personality disorder are...
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    2020 US Presidential Election

    Inflation, eh? Maybe an economic history lesson is in order, starting with the UK (because that's where I am). Thatcher got elected on the back of the Saatchi slogan 'Labour Isn't Working'. This is because there was, at that time, one million unemployed in the UK. For Friedman and Hayek (the...
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    How to Habituate to Tinnitus

    Veterans like myself and Michael Leigh are well aware that there’s nothing out there right now apart from TRT, CBT and MBCT. So I am not sure that he can be accused of ‘gloating’ in pointing out a state of affairs that is as true today as it was 15 years ago (when I first developed severe...
  7. S

    Suicidal

    I missed this earlier post of yours. What surprises me about it is the fact that it was recommended that one should make tinnitus the actual object of meditation. I have serious reservations about that. To me it seems masochistic (or tantric if you happen to be familiar with that strain of...
  8. S

    Suicidal

    Chinmoku, you are such a star! And it’s a real shame that the stunning, evocative post that you have contributed has to appear in a necessarily debilitating forum of this nature. I have to state categorically that I hate the universe for compelling us to interact in this manner. Have just...
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    Suicidal

    Chinmoku, I sincerely apologise if any of my earlier posts, especially the one about Kent Taylor, caused you discomfort in any way. I have the highest regard for you and regret - even temporarily - staking out a position that is different from your own. As far as I am concerned - and this is...
  10. S

    Suicidal

    When TRT is presented as exceptionless dogma, I would very much agree. However, this is not the position I have taken in previous replies to this thread. My view is somewhat more pragmatic, in the sense that it seems to work for some people. That’s all that I am claiming.
  11. S

    Suicidal

    You know what, Chinmoku? I am tired of disagreement and will readily bow out of this thread and this forum in deference to you guys. But there’s a slightly weird reason for doing so in your case. I just happen to know that ‘chinmoku’ means ‘silence’ in Japanese (having lived in the country in...
  12. S

    Suicidal

    He was suffering from additional, post COVID-19 symptoms that your disingenuous post conveniently overlooks.
  13. S

    Suicidal

    Years ago I had an operation for an umbilical hernia which was treated by the insertion of a a surgical mesh. A couple of days afterwards I encountered a forum with threads that warned off all-comers as to the dangers of having this procedure performed. Having yet to personally experience the...
  14. S

    Suicidal

    This is me writing several years ago: "I certainly have profound suicidal ideations. Now my tinnitus fluctuates between being extremely loud and off the scale. It's just day after day of searing, squealing, hissing madness. Basically, I just don't understand what people are going on about when...
  15. S

    Going to Football Match at Wemble Stadium with Earplugs and Earmuffs — Will My Hearing Be Safe?

    They might well be (as Digital Doc has also suggested). I have never tried the foam ones so I can't compare, though I did wear wax earplugs to a gig once and pretty much all I could sense were vibrations of sound through my feet. To be honest, overnight I have found myself regretting having...
  16. S

    Going to Football Match at Wemble Stadium with Earplugs and Earmuffs — Will My Hearing Be Safe?

    Boots sell wax earplugs. They pretty much eliminate all external noise. They are called Boots Muffle Wax Earplugs and retail at £2.69 for a box of five pairs. You hold each pair in your hand until they soften and then insert them. What you could do is purchase some (they are sold in most...
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    Tabletop Fountain for Masking Tinnitus While Working

    There is a problem with TRT, CBT and MBCT if they are advocated in a manner that makes them unfalsifiable as methods to affect habituation. In other words, if they work that’s because the relevant techniques and protocols were observed by the patient and if they don’t it is because they were...
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    Hi Maddie, it’s difficult to tell as I have never listened to Audiobooks. But either should be fine.

    Hi Maddie, it’s difficult to tell as I have never listened to Audiobooks. But either should be fine.
  19. S

    Here's Why I Associate Tinnitus Dogma with Abuse

    The answer to your first question is 'no'. Some have succeeded in habituating to very loud tinnitus. A good example is Dr Stephen Nagler who has described his tinnitus as comparable to a cross between a screaming teakettle and a jet turbine, so loud that he could even hear it over the sound of...
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    What Actions or Treatments Can I Take After a COVID-19 Vaccine Made My Tinnitus Worse?

    I had my second Pfizer vaccination on Wednesday evening. Like yourself, I have loud tinnitus (mine consists of a variety of tones) and hearing loss. About 12 hours later the tinnitus went haywire and I was hearing all kinds of weird stuff. Especially prominent was a pervasive fog horn type...
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    Fiancée Is Desperate: Tinnitus Caused — and Made Worse — by Propranolol, Looking for Guidance!

    When it comes to the management of the accompanying anxiety, it doesn't sound as if your fiancée is presently in anything like the right frame of mind to explore mindfulness based cognitive therapy as a means to manage what she is going through. However, that does not mean that you can't take a...
  22. S

    Will You Get Vaccinated for Coronavirus (COVID-19)? Can It Make Tinnitus or Hyperacusis Worse?

    Had my first Pfizer jab yesterday. Feel okay so far. My tinnitus is loud today but no more so than it is on other loud days, so I thought I would post this to reassure people. For the science, over here in the UK, I have found Professor Devi Sridhar to be a good source of information, along...
  23. S

    2020 US Presidential Election

    When it comes to the limits of free speech and a consideration of what it is appropriate or inappropriate for a President to state in public, the most obvious example to draw on is one described by John Stuart Mill. Mill contrasts a newspaper article in which the author claims that corn dealers...
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    2020 US Presidential Election

    The Trump supporting ‘Biden stole the election’ mentality in a nutshell (thanks to the British philosopher Stephen Law): ‘Dave believes dogs are spies from the planet Venus. He views any canine with great suspicion, for he believes they are here from Venus to do reconnaissance work. Dogs, Dave...
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    2020 US Presidential Election

    This lengthy article on Obama by David Runciman in the London Review of Books might be of some interest to readers of this thread, given the recent publication of the former's autobiography. https://www.lrb.co.uk/the-paper/v43/n01/david-runciman/magic-beans-baby I had a friend forward a pdf of...
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    2020 US Presidential Election

    When it comes to the USA, the election of Trump is actually unsurprising, as there is some evidence that a minority of the voting populace themselves may not all be psychologically normal. Turning to Matthieu Ricard's enormous study of altruism, one finding he reports is that the USA is...
  27. S

    2020 US Presidential Election

    Slightly abbreviated extract from Ian Hughes's highly acclaimed book Disordered Minds: How Dangerous Personalities Are Destroying Democracy. The profile fits Trump to a tee (especially the last sentence): 'The characteristics of narcissistic personality disorder are well-known: a grandiose...
  28. S

    My Turn for Your Support — Woke Up with Sudden Hearing Loss and Severe Vertigo

    Billie, very sorry to read this. I don't have experience with vertigo and you probably know this already but your mention of sudden hearing loss reminded me of the importance of getting hold of prednisone asap. I Googled to confirm this: 'Sudden deafness, also called sudden sensorineural...
  29. S

    2020 US Presidential Election

    ISIS recruits would probably be unconcerned as long as their own demise preceded that of their relatives. This is from Olivier Roy's Jihad and Death: The Appeal of Islamic State. 'Most radicals are deeply immersed in today's 'youth culture'...they go to nightclubs, pick up girls, smoke and...
  30. S

    Suicidal

    After fifteen years of this unrelenting shit (screamingly loud tinnitus blasting 24/7 from my left ear), I have finally have enough.
  31. S

    Getting a Constant Rapid Thump/Flutter Sound in Ears — Very Scared

    This could be tensor tympani syndrome that you are describing. Although I am presently having renewed issues with this condition, I have been successfully treated for it in the past by Mr Gerald Brookes at the Harley Street ENT Clinic (with low doses of clonazepam). Hopefully, this approach...
  32. S

    Suicidal

    This link may possibly provide some reassurance (about the voices not the tinnitus). I don’t hear voices myself. With me it’s just loud tinnitus. I only occasionally visit this forum these days and just thought that it might be worth a mention.
  33. S

    Mental Health and Tinnitus

    Hi Nikkilu, I noticed that you are in the UK. Boots sell a cheap brand of wax earplugs called ‘Muffles’. When inserted, you will barely hear a thing. I would be very wary of exposing your ears to loud music at this stage but if you stick them in when frequenting the noisiest places at the...
  34. S

    Tinnitus and Habituation — How Long Does It Take?

    I wouldn't say that habituation is a 'myth' or involves some kind of stoical, coping-through-gritted-teeth scenario. Just to be clear for any newbies who happen to read this post: habituation is a lived reality for the vast majority of those with tinnitus. But you won't find many of us posting...
  35. S

    Ready to Give Up... Reactive Tinnitus Killing Me

    I don't like the term 'habituation'. But I would say that my tinnitus doesn't bother me most (though not all) of the time and when it does I just find it annoying and distracting. My tinnitus is reactive in the sense that it ramps up in the presence of things like supermarket refrigeration...
  36. S

    IBS and Tinnitus

    Symprove worked very well for me but is expensive and only available in the UK. Unusually for an alternative remedy (it’s not a drug), there’s actually some decent research been carried out to support its efficacy. It had no detrimental effect on my tinnitus.
  37. S

    Is Surgery the Only Treatment for TTTS?

    My TTS went away over time (though it still thumps when I burp!). A combination of Mindfulness and low doses of rivotril helped. I was able to function perfectly normally while taking the medication and it had no side effects. The specialist I saw was Gerald Brookes at the Harley Street...
  38. S

    Worried I’ll Never Get Better... Help?

    I have what is probably bog standard tinnitus, in the sense that it varies from loud to very loud (with occasional quiet days thrown into the mix). It's reactive too, and consists of several tones and sounds, though they all seem to coalesce during a spike. I can tell you that it took a lot...
  39. S

    Poll: If You Have VERY LOUD Tinnitus, Are You Able to Work Full Time?

    I work about a 55 hour week. The work is utterly immersive, demanding and stressful, but fun and creative too. This means that I can go long hours without noticing my tinnitus. When that awareness returns, it can be like a tidal wave of noise crashing in. However, the tinnitus I have...
  40. S

    Really Struggling — I Could Do with Some Support

    Hi Glynis, I only swing by here occasionally but was sorry to read that you are going through a tough time right now. I generally do okay with tinnitus, though mine has been ‘blasting’ away recently at a preternatural level. So I can relate to your use of that adjective. However, that’s not...
  41. S

    Suicidal

    For me, what I would call the slacker mentality eventually kicked in and I just couldn’t be bothered rising to the bait. Might seem an odd way to describe things, and as a comment it does not do justice to the years of mental torment that preceded it. But that’s what happened. The other reason...
  42. S

    Suicidal

    I was suicidal with tinnitus several years ago. Decided to give Mindfulness a try. And I am still here. I followed the protocol outlined in Jon Kabat-Zinn’s book Full Catastrophe Living. It took me 2 attempts to get through the 8 week programme described in the book (it is designed for those who...
  43. S

    I No Longer Have Any Strength to Face Another Day

    I missed my own mother's funeral because she died before I had turned the corner with this condition. So I wouldn't be too hard on yourself about this.
  44. S

    I No Longer Have Any Strength to Face Another Day

    Valeri, I didn't think I'd get a chance to sit in front of a computer for the rest of the day and so am taking advantage of an unexpected opportunity to do so. As far as following an 8 week programme to establish a mindfulness practice is concerned, I followed the one described in John...
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    I No Longer Have Any Strength to Face Another Day

    Hi Valeri, I’ll have a think about which resources have proved to be most helpful down the years and then I’ll get back to you. The only problem is that I can’t do this today as I am quite busy. But by this time tomorrow, I will have posted some suggestions. I am not intending to leave...
  46. S

    I No Longer Have Any Strength to Face Another Day

    Valeri, that photo more or less captures the human condition, not just life with tinnitus. Looking at it and knowing the distress that you are in makes it difficult for me to know what to say. But I'll have a go. The photo also serves as a reminder of why, personally, I have always found...
  47. S

    Don’t Know If I Can Keep Going

    First of all, I have heard about people who have habituated tinnitus after having it for more than eight years. So don’t write yourself off or be too hard on yourself. It took me about five years to get anywhere, and even then I was only shakily habituated for quite some time. In my case, I...
  48. S

    Don’t Know If I Can Keep Going

    Tracy, I don't swing by this place all that much these days, but this is me writing in another forum several years ago. It is pretty obvious that I was in a very bad place at the time, and it was frustrating too because I had had tinnitus for quite a while already, and had been the recipient of...
  49. S

    Middle Ear Muscle Tenotomy? Sydney or Britain. Please Share Experiences.

    I haven’t had the surgery but Gerald Brookes is a London based surgeon with the relevant expertise. If you Google his name together with ‘myoclonus’, you should find some links. In my case, low doses of rivotril combined with stress reduction eventually resolved the issue.
  50. S

    Learning to Meditate!

    Although meditation helped me to habituate tinnitus (and I have continued to use it to deal with intermittent but chronic pain), I would be wary of taking a cavalier approach to what might now be called 'The Mindfulness Industry'. Here is one of the reasons why...
  51. S

    A Recurrence of Chronic Pain

    This is a good (simultaneously harrowing and entertaining) book to read for anyone who wants to get a sense of what chronic pelvic pain is like: http://www.telegraph.co.uk/culture/books/7877329/Teach-Us-to-Sit-Still-by-Tim-Parks-review.html linearb, I don't swing by here very often but I was...
  52. S

    I Can't Seem to Habituate

    It took me about five years to get a handle on my tinnitus so I wouldn't get too discouraged. What made a difference for me was reading John Kabat-Zinn's Full Catastrophe Living and two other publications: The Mindful Way Through Depression and The Mindful Way Through Anxiety. There's nothing...
  53. S

    For Those Who Succeed with Habituation

    I am aware that Dr Nagler is a controversial figure and was both a recipient and practitioner of TRT, but in his well-known 'Letter to a Tinnitus Sufferer', considerable space is devoted to CBT as a method for achieving habituation and Tinnitus: A Self-Management Guide for the Ringing in Your...
  54. S

    At the End of the Day It Is all About Time, Isn't It?

    This is my hope too. Habituating to tinnitus was a dreadful ordeal in my case and took a very long time. It's good that - in the absence of a viable medication to alleviate the condition - there are psychological approaches to managing tinnitus that people can absorb and apply. But even as an...
  55. S

    Does the Energy Come Back?

    Acclimatizing to tinnitus can be a slow, incremental process. It can also be a bit like a game of snakes and ladders, one in which a sudden descent down a snake - after a period in which you think you are getting somewhere - can leave a person feeling that they are now even lower on the board...
  56. S

    What's Your Favorite Movie?

    Not in any particular order.... Sion Sono's Love Exposure is the best film I have seen over the last few years (though take care over the trailer as it's not suitable for viewing at work): After that, it's..... Blade Runner Stalker Mirror Andrei Rublev If.... Blow Up The Sweet Smell of...
  57. S

    Hearing Aids and Tinnitus?

    I have reactive tinnitus and wear bilateral hearing aids outside as well as in. I'm rather prudent about this and avoid doing so in the presence of very loud noise. But I simply accept it if the tinnitus temporarily spikes as - in my case - it eventually goes back down again. For a long time I...
  58. S

    Post Your Favorite Songs

    Higgs Boson Blues is my favourite epic song from the last couple of years. It's mesmerisingly good. Here's my second-favourite :
  59. S

    I Miss Being Normal

    Derpytia, this post is pretty much a duplicate of one I wrote shortly after joining this forum. Apologies to other readers for the repetition but it seemed to be once again relevant and may help to support others who are presently struggling but didn't see it first time around: First of all...
  60. S

    Panic and Tinnitus Spikes

    The road to habituation is often rocky. It sounds to me that you were shakily habituated. A prolonged spike, a permanent increase in volume, or other stress-generated health/life issues can cause an already full pot to overflow so that the habituation process is temporarily derailed. I was...