SteveToHeal
Member
Thanks JC. Much appreciated.hey im glad followed my advice and that was succesful, I told u ! 98% chance to get it visiting 6 pharmacies
Retigabine (Trobalt, Potiga) — General Discussion
- Thread starter Mpt
- Start date
Member@Juan Carlos @undecided @SteveToHeal
I have a friend currently doing holiday in Spain (Andalusia).
Is there anything that needs to be considered when going to the pharmacy (without prescription)?
I am thinking about asking him to get some 200 mg packages.
But I only want to take it occasionally - although my T is a 8/10-9/10.
I have a friend currently doing holiday in Spain (Andalusia).
Is there anything that needs to be considered when going to the pharmacy (without prescription)?
I am thinking about asking him to get some 200 mg packages.
But I only want to take it occasionally - although my T is a 8/10-9/10.
just know 100mg box are only in 21 pills
and others 84 pills, so go with confidence knowing that
Thanks. Do you know the average price of both boxes, 100 and 200 mg?
Can the 200 pills be cut in the middle?
no exactly, i think 200mg box near 110€
u cannot cut theorically according to prospectus
SteveToHeal
Member
That would be a problem as i only have 200mg. The idea i believe is to start on a lower dose. And i found out now my friend only got 3 boxes, not 5 so it is going to be a quick taper up and down :-(
Weird, as the side effects as reported in the other topic are quite serious. This is not candy.
There is proof that it works for schizophrenia, because it's made to combat schizophrenia, not tinnitus.
SteveToHeal
Member
It is probably the drug that has been most effective from the progress reports of people that have taken it. If you don't try, you're not gonna know. It's a risk that it might not work - yes.
SteveToHeal
Member
SteveToHeal
Member
@RaZaH, @Danny Boy @Juan Carlos
My friend will check pharmacy tomorrow for availability and price.
Did you taper up?
I do not plan taking it permanently, but occasionally.
So I think about taking a 100 or 200 mg pill on occasion.
RaZaH has good results with just 100 mg.
My friend will check pharmacy tomorrow for availability and price.
Did you taper up?
I do not plan taking it permanently, but occasionally.
So I think about taking a 100 or 200 mg pill on occasion.
RaZaH has good results with just 100 mg.
SteveToHeal
Member
of course I did a panphlet taper up and very very slow taper off, but i think you can do faster taper up if u can, about taper off, i wouldn't risk
Even if the chance of cure was 3%, its a good price
besides in US (Potiga) is much more expensive and still people trying hard to get it
if anyone is in the new england area and wants a contact for a doctor who will prescribe retigabine, PM me.
for the most partjuan and i have had the same experience with this drug, but regarding tapering off i basically stopped very quickly, without any problems. you may want to err on the side of caution, but frankly we don't even know for sure what caution means regarding this drug, dosing for tinnitus is still an open question. for those that are taking 100mg and 200mg occasional doses, they are essentially also not tapering off slowly.
1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
Yesterday i had 10/10 T & H & distorted hearing.
I got 400mg flupirtine the morning 400mg RTG & 1mg lorazepam & 30mg methyprednisolone at night.
The retigabine improved it to 8/10 but sleep & corticosteroids improved T it to 0/10 no H no distorted hearing. Today iam like 100% cured.
The problem is that situation lasts only 1.5-2 days.
I got 400mg flupirtine the morning 400mg RTG & 1mg lorazepam & 30mg methyprednisolone at night.
The retigabine improved it to 8/10 but sleep & corticosteroids improved T it to 0/10 no H no distorted hearing. Today iam like 100% cured.
The problem is that situation lasts only 1.5-2 days.
SteveToHeal
Member
SteveToHeal
Member
That is a heavy concoction of drugs you are taking. But if you are getting 1.5 - 2 days 0/10 relief from it, then what more can you ask from pills? It sounds like the corticosteroids is the one that is sending it to null in your case. Is tha the methyprednisolone? What is the cause of your T? It doesn't say on your profile box. Something i think should be made mandatory pls @Markku, as there are treatments which work better for acoustic induced t compared to TMJ aggravated t for example.
Mine was 70 euros for 84x100mg, in Switzerland.
They accepted australian script, with difficulty, but decided to sell one box
1MW
Member
- Nov 25, 2014
- 614
- Tinnitus Since
- 2008 but cured and relapsed from benzos
- Cause of Tinnitus
- ssnhl/benzos/unknown
My cause was uknown sudden hearing loss with audiogram same with heavy acoustic trauma.
I regained my hearing with 10 days corticosteroids started first 10 hours from the event.
Yes corticosteroids send my T to null.RTG can send to null only for 1 hour and only if it is 1/10 or max 2/10.The max effect from RTG i get is 2/10 with 400mg and only for 1-2 hours.
To me corticosteroids is by far the king of all T treatments but have serious side effects
in long term use.
I regained my hearing with 10 days corticosteroids started first 10 hours from the event.
Yes corticosteroids send my T to null.RTG can send to null only for 1 hour and only if it is 1/10 or max 2/10.The max effect from RTG i get is 2/10 with 400mg and only for 1-2 hours.
To me corticosteroids is by far the king of all T treatments but have serious side effects
in long term use.
Discussion of Campral should go into this thread:
https://www.tinnitustalk.com/threads/acamprosate-campral.394/
i dont know why quoted me, but yes, i tried, felt absolutely nothing
Yesterday I received my Picamilon (gaba+niazin), i took double dose (200mg), i felt more relaxed, its like taking 25gr of Trobalt xD, but the T was exactly the same
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