Retigabine (Trobalt, Potiga) — General Discussion
- Thread starter Mpt
- Start date
Member
Well yes, thats what it would cost me to fly to Spain from Canada, rent a hotel, a car and eat lol.
Maybe there is a very rich person who cant fly and wants Trobalt, so I am willing to do it, despite my own suffering....
Lynn, most doctors dont know anything about Trobalt. All they know its a black label drug used as last resort. But for some T sufferes they are at the last resort stage....
Yep and still can't get it...like I said..futile.
oh..unless you can fly to Spain..and well case in point, look at Danny Boy and his kidney infection. .you realize how rare that is in a male? Docs need to be at least monitoring this black label drug.
I share the same stance as @Viking does regarding this drug.
and Dan no need for "Lynn" you know my name.
Well i didnt knew about his kidney infection for starters.
Could get prescription but it isnt stocked by pharmacies here.
What was viking stance on this drug?
I do not plan to take it longterm. I'm curious if low dose will do anything for me. Its different to not have idea if you can lower your suffering than being sure you can do something about it and then have chance to make a decision.
low doses won`t have the effect you desire ... you really have to do at least 900mg a day for a while to get the full scope of this drug. But really do your research first I see to many people here that don`t do the right research ... it is not a simple drug to take, it has side effects that can be very dangerous and it`s not a cure ...
I know all of that but thank you for taking time to write it instead of telling me to do my own research
I dont want to have long lasting effects. I want tp see if it will spike down my T after taking it for 1-3days like some people reported. I will be happy even if it works for couple of minutes on one of my multiplie sounds. It would be grand to know in case tinnitus gets ultra severe there is some way around it.
a few minutes it might work yes ... maybe up to one hour of lower tinnitus ... take it on empty stomach.I know all of that but thank you for taking time to write it instead of telling me to do my own research
I dont want to have long lasting effects. I want tp see if it will spike down my T after taking it for 1-3days like some people reported. I will be happy even if it works for couple of minutes on one of my multiplie sounds. It would be grand to know in case tinnitus gets ultra severe there is some way around it.
I don`t just tell you personally to do your research, I take the space to tell everyone because everyone needs to read it. you cn basically die taking this drug if you have the wrong heart for it.
I know all of that but thank you for taking time to write it instead of telling me to do my own research
I dont want to have long lasting effects. I want tp see if it will spike down my T after taking it for 1-3days like some people reported. I will be happy even if it works for couple of minutes on one of my multiplie sounds. It would be grand to know in case tinnitus gets ultra severe there is some way around it.
Why the hell shouldn't you do your own research?! lol Hell we all have and frankly speaking I don't know enough about dosages and what not to advise anything and even if I did, wouldn't!
this is a TT support forum not " Ask a doctor" website. as for what viking thinks..see my post LOL.
- Jan 25, 2013
- 3,576
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
That's what a Dr. told me when he looked it up in a PDR. He was a psychiatrist and didn't want the liability. A neurologist would be the best person to see he thought. The risk-benefit ratio is too high for me. I did ask a neurologist about Potiga, but never asked him to prescribe it for me. At least he was familiar with it.
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
i think that i am longest on retigabine. I still use it becouse specily it helps you sleep over the night.
What effect I had when i started on tinnitus it has wanished, but do nitice some other effectes that really bad, so in 1 mnoth it will be one 1year, and retigabine for me was efective 3,5 months and then gradualy just went away... so everyone is diferent
What effect I had when i started on tinnitus it has wanished, but do nitice some other effectes that really bad, so in 1 mnoth it will be one 1year, and retigabine for me was efective 3,5 months and then gradualy just went away... so everyone is diferent
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
I get crazy when people tell me they want to kill themself and then ask for retigabine and say...
Yes for 3,5 months.
Are you rich?
Yes for 3,5 months.
Are you rich?
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
Hah why u asking ?
Maybe I am gonna marry you or propose if you are rich as cute...
WHY!... becouse you can travel and get that medicine to TRY and see can it help you IF you are rich as cute well cute guys pass easier in life, + rich they pass even easier... i have a friend who has same name as you but he is on Mauritius...
Anyway you have to do normal minerals intake
magnezium zink
vitiman
b complex (b6+b12 impornat)
not to much C for me acit insreses temporaty tinnitus
bit of omega 3
and vitamin D
vitamin A normal
you can try IF YOU WANT ginko biloba , you dont want to experiment with antidepresives etc
if you are usink anrcotics then be careful benzodiazepams permanently demage your brain + if you stop them you can get worsening og t permanently.
Is this ok?
vision filed reduced specily during onset of trobalt
blood in urine (stains on toalet unable to wash)
prostata spasm to not let complete emying of blader
left eye retina color change
weaknes in muscules (not able to run)
kidnye stones 2x
other analasis all perfect all vitamins, mineral all other they say i can apply to be astronaut
(
plus i can have a baby after kiney stone pains thay say it will be easy )If you're a girl who knows maybe we can get married ! Hahah , you're name sounds like a guy though ( I'm not gay ) ..... I do have some defincies in zinc and b12 so it might be a reasonMaybe I am gonna marry you or propose if you are rich as cute...
well cute guys pass easier in life, + rich they pass even easier... i have a friend who has same name as you but he is on Mauritius...
Anyway you have to do normal minerals intake
magnezium zink
vitiman
b complex (b6+b12 impornat)
not to much C for me acit insreses temporaty tinnitus
bit of omega 3
and vitamin D
vitamin A normal
you can try IF YOU WANT ginko biloba , you dont want to experiment with antidepresives etc
if you are usink anrcotics then be careful benzodiazepams permanently demage your brain + if you stop them you can get worsening og t permanently.
Is this ok?
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
When did Danny boy got kidney infection? with trobalt you MUST DRINK A LOT OF WATER SO KIDNEY STONES WILL NOT FORM AS NETHER INFECTION BECOUSE YOU WASH IT OUT... MAYBE FEW PARACETAMOL (NOT DICLOFENAC)
It was a jocke , you did understand, and if i was a girl one never merrie anyone , never anyone before you eat (share with food) a at least 5 kg salt so you get to know person
I wrote all that is important, get magnesium pill in pharmacy, eat more meat for b12, until then get some in farmacy
@Danny BoyWhen did Danny boy got kidney infection? with trobalt you MUST DRINK A LOT OF WATER SO KIDNEY STONES WILL NOT FORM AS NETHER INFECTION BECOUSE YOU WASH IT OUT... MAYBE FEW PARACETAMOL (NOT DICLOFENAC)
It was a jocke , you did understand, and if i was a girl one never merrie anyone , never anyone before you eat (share with food) a at least 5 kg salt so you get to know person
I wrote all that is important, get magnesium pill in pharmacy, eat more meat for b12, until then get some in farmacy
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
well i am here 2 years soon and i knw Dan very well and danny boy but i did nto know danny boy had a infection?!?
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
ah it can be something trivial, he does not use trobalt any more only 400mg in one dosage before sleep, so he uses trobalt for sleeping as sleeping pill.
he was using 1600mg now 400, minimum start dosage is 300mg/d so he is almost not using trobalt
Well I really hate to keep speaking for @Danny Boy but what the hell..he had burning pee for awhile..This isn't common occurrence in male population Christian.
anyways..that's all I know.
Doesn't look like my ENT is going to prescribe me Retigabine. Not sure what I could say to convince him? Should I try my psychiatrist? I'm bipolar and have been on seizure medications for mood stabilizers before that he has prescribed so maybe he would be okay with prescribing Retigabine?
Or should I see a neurologist? I have a neurologist since I have sleep apnea, wonder if he would give me Retigabine? I need this drug in my blood now.
Or should I see a neurologist? I have a neurologist since I have sleep apnea, wonder if he would give me Retigabine? I need this drug in my blood now.
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