Juliane

Juliane

Member
Messages
78
Reactions
3,739
Points
561
Joined
Last seen

Profile posts Latest activity Postings About

  • Juliane
    New Years Eve especially was hell due to all the noise. Next year, if still around, I will go somewhere quiet
    kingsfan
    Definitely get out of the city during firework times. Surprisingly enough, Irvine, CA is very strict on fireworks and I never heard a single one despite the surrounding areas being practically a war zone.
    RunningMan
    I was still up at midnight, but it was quiet around here. I had the TV on and didn't hear any fireworks.
    L along the way
    With new years eve i was at a quiet place with people who weren't into fireworks either :)
    Juliane
    So glad the holiday season is over. It was hell getting through those days
    Tryn2BHopeful
    Was at my in-laws... tons of kids and loud people. Been doing this for years, it pains me that I didn't enjoy it because of this condition. Fortunately I didn't spike from it. My reactivity was through the roof the entire time though.
    Juliane
    Neighbors are having a party; playing loud Offspring hits (WTF) and screaming the lyrics. FFS 2024 I except better! I can't stand Offspring
    View previous comments…
    kingsfan
    @Juliane Oh, I was a big sneaker pimps fan.
    gameover
    Morcheeba, yes! Saw them live ages ago in 2002 (probably without ear plugs...) Massive Attack I discovered late.
    Juliane
    @kingsfan and @gameover Yeah, fellow Sneaker Pimps and Morcheeba fans :-) I was such a trip hopper... God, I miss those days. Being a young girl listening to dreamy music with mild T not knowing mild T is a blessing.
    SharonBell
    4Grace how are you doing? I'm trying to hang in there. I actually had a glass of strawberry margarita in the bottle tonight. I actually drank it not long ago so I sure wish I can go to sleep and hope my tinnitus isn't louder tomorrow.
    Juliane
    Over one year since my worsening and my tinnitus has only gotten worse, not better. All the while being gaslighted by therapist and others
    View previous comments…
    sakrt
    To cope with the debilitating symptoms. Try candles and meditate, you're welcome. :(
    Juliane
    @sakrt Shocking and absurd! Even abusive. I am so sorry
    sakrt
    An agency who supposedly provides support to those with T/H, hearing loss etc. Next said to not know...and "closed file" without ability for discussion plus they work with audiology/ENTs too. Said to go ask GP for help to this (with even less understanding to these conditions). GP suggested to contact this same agency for the support. :..( @Juliane
    Juliane
    Does anyone feel like the cold and the winter make your tinnitus worse?
    View previous comments…
    SharonBell
    @sakrt I looked up about the weather affecting T last night and it was talking about the barometric drop in pressure and some other things I will try and post later.
    sakrt
    My brain is very much like a cloud. It's thundering atm and leaking rain (tears).
    SharonBell
    The winter affects mine. I was reading about the barometric pressure. When it gets warmer and then gets cooler I think that's when mine gets worse.
    Juliane
    Right before this nightmare started about one year ago I remember googling "feeling of impending doom" :-( How did I know what was coming?
    Juliane
    Every night I find myself thinking "this has to be a nightmare. It can't be real". But no, it is my life
    Juliane
    I had a huge emotional trauma over Christmas and now having a severe delayed spike. Cause and effect or just random? Who the H knows
    Juliane
    Weird observation: sometimes when I plug my ears, my T gets quieter... Has anyone tried this? When I remove my hands, I can hear it again
    View previous comments…
    RunningMan
    No difference for me.
    gameover
    Early on sticking a finger and pulling it from the ear canal would turn off T for me. Later, keeping finger in ear canal would mask it (blood flow in fingers?). Now too loud for that.
    4Grace
    Very early on I had a very few moments of this.
    Juliane
    Happy new year! Although we may never meet I consider many of you in here friends. Hope we will experience relief and joy in 2024 ❤️
    Juliane
    The only real punishment for illegal fireworks would be jail time. A fine is hardly enough to make people learn
    Lurius
    I'd argue the best punishment would be for them to experience a little "accident" with said fireworks, but maybe thats taking it too far? xD
    Juliane
    There they go, once again, firing off illegal fireworks. I have called the police twice and I will not hesitate to keep calling
    Juliane
    Even if I knew for sure my T would drastically improve in 10 years, I would wait it out. But not knowing is hell
    View previous comments…
    BB23
    Juliane
    Thanks @BB23. I just read about it. While it does sound promising I would be too scared of potential permanent side effects so would not dare take anything that messes with my brain chemistry. Sorry, but I don't have any hope at all. Don't listen to me
    M
    But are they not perfecting them now to remove unwanted side effects? The T is terrible, so after 2 years if not better, I would have no choice but to try them...I'd rather do the Susan Shore device though tbh....let's stay optimistic that will help and maybe more perfection will come in other models or versions
    Juliane
    If things don't radically change for the better soon, I will most likely not stick around. There is a limit
    gameover
    Agreed, I think the same. I'd like to try Shore device first.
    gameover
    And give it time. It seems 2 years minimum. And 3-4 would be fair. I need some changes in meantime to be able to do that, like moving to a quieter house.
    Cmspgran
    Don't say that, you're a strong person to get this far. @gameover is spot on, there's the shore device, the KV7 drugs and by the time all that comes out there's a good chance you'll have improved and/or partially habituated.
    Juliane
    2023 has made me beg for a second chance and I swear if I received that gift I'd humbly and scared to death grab it with all my heart
    M
    Me too.
    4Grace
    I pray you get the second chance. It would be awesome to hear about one of us that makes it. I will share in that joy. You seem so very authentic and kind.
    Juliane
    @4Grace Thank you so much. So do you ❤️
    Juliane
    2023 told me in no uncertain terms that I am, we are, all struggling alone here but still for the first time I reached out to God for help
    M
    God has abandoned me
    4Grace
    I have been praying but …. So complicated. He needs to change my heart. He needs to perform some miracles. Only he can save me. I began some Tinnitus meditation videos at night. Not bad.
    4Grace
    If ever that miracle happened for us. Wow. What a joyous day that would be…. The feeling …. unimaginable.
    Juliane
    2023 was the year I realized that I too shall leave this planet one day and that is not a disaster
    Juliane
    2023 was the year I stopped wearing mascara because I am crying all the time and got tired of the black mess running down my cheeks
    Juliane
    I want to heal
    View previous comments…
    Juliane
    Meaning I have so much fear, anger and doubt in me. But this was the case also before my worsening and that baffles me....
    M
    @Juliane are you talking about having faith and visualizing yourself better that you will attract healing better? Sorta like releasing resistance to it?
    Juliane
    @MiaVIL I am not sure actually. I just feel that a broken unhappy tortured emotional state would prevent any real healing from happening. It seems logical to me
  • Loading…
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu