Pinhead
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  • I'm blown away by how my brain can push most noise to the background, seemingly in FAVOR of concentrating on my tinnitus instead. What? Why?
    kingsfan
    I have never been able to push any noise or distraction to the background. This is the crux of the issue with my T.
    I miss books. I miss reading and being able to talk about what I've read. God, this is so isolating.
    Pinhead
    I mean, for most of my life, I sat in quiet and read. Years of philosophical research to work towards my PhD. So many worlds I made in my mind through fantasy and sci-fi literature, and I can't imagine a single image now. It's an empty space between my two ears.
    BrOKeN_1
    I feel very much the same way a good deal of the time if not most. The focus toward the the ringing and obsessive monitoring of this condition seems to paralysis free thought. Weirdly enough I think I do it to myself though. Because even while I find it difficult to concentrate. I can ironically sit here and read threads from tinnitus talk all day.
    Ngo13
    I found the only way I was able to read for awhile was in a hot Epsom salt bath with my violet noise mix playing. Sometimes a candle. Now I still read in the bath best but I'm able to do it in quiet. I read mostly fantasy, so it's my escapism and it's one of the only times I don't "hear" my T.
    Beyond tired of the "You'll get through this" attitude of people around me. It's been three years-YOU get over it.
    Pinhead
    At this point, it's like asking me to get over the fact that I have legs and stop walking everywhere. It's absurd and pretty annoying.
    BrOKeN_1
    I feel ya. Sorry you don't have more sympathetic people around.
    4Grace
    So sorry. So true. 3 years. I can't believe it's been around 15 months for me. Can't wait at 18 months I should be fully habituated. :)
    The fluctuating squeal in my right ear is really the worst thing. It's just unbearable. I can totally ignore the pure tones.
    I just found out that a coworker has a friend who is housebound with tinnitus. It became progressively worse.
    4Grace
    @gameover one guy told me. How loud is going to get. It's not going to make my head explode. He says after 3 years he just lives. Eats and endures the major spikes. They say that it's insuring the spikes that leads to habitation.
    4Grace
    @gameover I find it hard to accept that my friends are that much different when I know that they are .. they are not impacted by food or clenching or touching the side of your head. I feel like I'm wrong but I at the same time that I need to learn to eat and go out and let it do what it is going to do…
    4Grace
    @gameover / I just don't have a life that will make me think or live different. This is a problem for me. I cut everything out of my life. I cannot reinvent my life. This is FN crazy. The stupidity that got me here drives me insane. Sorry for all the typos and grammar errors. I waiting to see an ENT. Another waist of time!!
    It's such a terrible thing. It's like waking up to find yourself weak and naked again about to be enveloped in a cocoon of cold steel nails.
    Woke up today to find my sleeping sounds had turned off overnight. I listened as, slowly, my mind was invaded by hissing and screeching.
    BlueMoon86
    I know this feeling well. One day in December I woke up and it was so quiet I thought it had gone. I had to listen for several minutes to find it. Those days are well and truly gone, it's 10/10 24/7 now.
    Three years ago today, my life shifted catastrophically. Nothing will ever be the same.
    4Grace
    This is so true. I feel like an Alien on this planet. I was so happy. I try so hard not to give a shit about this noise. It consumes me beyond words. It's just to loud and worsens. I have not been able to enjoy anything. The last few days 24/7 stress. Trying so hard.
    I get fleeting moments where I remember how deeply happy I felt before tinnitus. They vanish just as quickly, replaced by noise.
    Get up and prepare for another day in hell without a single moment of happiness or relief. I am in hell.
    I'm really struggling today. I can't keep myself focused. I feel like leaving work and never coming back. My brain won't shut up.
    4Grace
    I was a manger for 23 years. Had to step away. Try all you. Can not to leave work. Besides the money work is a good and needed distraction. Not to say I did not feel like you do everyday when I was working.
    The auditory nerve is capable of feeling pain. I may not have hyperacusis but, instead, nerve damage. That can be treated.
    4Grace
    How do you treat that nerve damage. I think I have nerve damage too due to high bilirubin in blood. Gilbert Syndrome.
    Pinhead
    This is just my conclusion after reading some things. I don't have pain specifically in response to sound.
    cjbhab
    @Pinhead i think i have nerve pain / damage too but im not sure what to do about it. i thought tinnitus was just supposed to be a sound. id be managing better if it was but some days the pain and pressure is insane.
    Looking for a single sign of improvement. I've tried to be so positive, but it never pans out. It's just pure, uncut, false hope.
    4Grace
    I hate to agree with you here. I had have tried everything too. Volume and reactivity is everything. I want so bad not to give a shit!!
    Juliane
    That is why it is the worst kind of gaslighting when "tinnitus therapists" tell us that our mindset and mood define our T volume. Utter BS. It has nothing to do with it. If your T fades, and I sure hope it will, it can do so while you are thinking happy thoughts or wishing you had never been born. T is indifferent to our feelings, as are facts.
    Absolutely terrible today. Both ears ache and my right is blaring. Wondering if it's infected. It's unbearable.
    Next Sunday is my three-year tinnitus anniversary. I plan on getting completely wasted. Things will worsen on MY terms, goddammit!
    SamRosemary
    My 2 year is May 1st.
    Jammer
    Sounds like a good time; I wish I could join you.
    eldudebro
    May 14th is my two year worsening anniversary. Well done on reaching three.
    My friend decided to go for a walk with me. I think he quickly realized that it wouldn't be relaxing, more like A to B as fast as possible.
    I recall how hopeful I was maybe a year after this started. It's only worsened and hope for improvement is gone.
    The reactivity is the worst part. Not being able to withstand traveling in cars, trains, and buses has left me totally stranded. Not living.
    How are you doing friend?
    Pinhead
    My standard answer: Not good. Can't do much of anything about it, though. Not really living anymore.
    Every SBUTT is a literal traumatic experience. I start to shake and my adrenaline shoots up. I panic. Two or three a day is actual torture.
    One of the most unbearable parts of being disabled is the unfathomable weight of no longer being able to create. It's just pure hell.
    I've noticed that things like brakes squealing are much more abrasive to me now. I must be getting hyperacusis, or I'm just more sensitive.
    Utdmad89
    Sounds like it. Mine just got worse and worse. Then Noxacusis kicked in.
    crescentsky
    I started w/o H then I got it in one ear and then both ears and now I get pain @ certain sounds. And now every few days I get this pressure or fullness. It's a fucked up journey.
    Pinhead
    @Utdmad89 What was your progression like? I think I may just be 'hyper-aware', but it's incredibly hard to tell.
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