twa

twa

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  • twa
    Went to the Crayola Experience today with the kiddo. First time at the mall in a year. I don't think I have ever said that!
    kuromi
    So glad to see you're doing better twa! Blessings to you and your family!
    twa
    @kuromi, thanks so much! Hope you are doing well, sounds like you've had some mild days~
    twa
    Has anyone gone on vacation or stayed in a cabin for a weekend trip with T & H? Thoughts, ideas?
    twa
    Steph1710
    They have both been immensely helpful to my T journey.. even if I did have a bust up with Micheal over the state of England ;) Their advice is precious to me.
    twa
    "Hang on, help is on its way. I'll be there as fast as I can. Hang on, a tiny voice did say." Who sang this song?
    tracyNYC
    Little River Band, "Help Is on Its Way"
    twa
    Yes! The song seemed appropriate for TT. ❤
    twa
    I've been doing an anti-inflammatory diet for 5 months since my T started. I really would like a big slice of chocolate cream pie!!!
    View previous comments…
    twa
    @Steph1710, I have noticed some reduction in inflammation in the ears and in my hands. I have RA, so inflammation is an issue. I've been completely gluten, dairy, soy, corn, legume and nightshade free for 5 months. I did eat some non compliant foods for Thanksgiving, Christmas and New Year's Eve. I didn't go wild, I still did a vegan or organic food.
    twa
    @Steph 1710, it has helped with sinus inflammation and allergies. It helps with inflammation in my hands. It has also calmed my rosacea. The aural fullness in my ears has gotten better, not completely gone but better.
    Bill Bauer
    I am glad your nightmare ended, @buttercake . Back in 1980s, the guidelines for diagnosing IC were for one to experience the symptoms for more than 9 months. This got changed to 3 months, and then changed again to 6 weeks. I've had my symptoms for close to 10 weeks/2.5 months now. I hope to be one of the people for whom it goes away within 9 months, but it isn't looking good.
    twa
    Why does T scream from about 4:00 in the afternoon until bedtime?
    View previous comments…
    twa
    Thanks Bill, that is a blessing. The one surprising thing for me in all of this, is that I can sleep. So strange, I had chronic insomnia for a solid year in 2018.
    Steph1710
    @twa that's strange - I also suffered from chronic insomnia for a year in 2018! Half way through that year, is when my pulsatile tinnitus started. Then after that year, my health rapidly declined. I also sleep absolutely fine now, even though I have regular T as well as PT now.
    twa
    @Steph1710, that is a coincidence! My husband said the Earth's poles are moving, maybe it was something like that in 2018! Come to think of it, I also had some other health issues that year.
    twa
    My family is so loud. If they had hyperacusis I would bend over backwards to make a quiet environment for them.
    View previous comments…
    Bill Bauer
    If they don't care whether or not you get hurt, you need to find a way to hurt them bad enough for them to care about avoiding THAT.
    twa
    I've had to use my smarts and encourage them to go see the grandparents for a few hours of quiet, except for the dog.
    Bill Bauer
    A few hours of quiet is less likely to promote your healing. Complete silence for months barely promotes it. There is a chance that you will make progress and feel better 2-3 years after the onset despite the noise. However, there is also a chance that the noise will cause you to lose the opportunity to get your life back 2-3 years from now...
    twa
    Good night all, praying we wake up tomorrow to the news of a treatment for hearing loss!
    twa
    I eat almost perfectly, I take supplements, I walk daily, I go to the chiropractor for therapy, what else can I do?
    B
    • B

      buttercake

    I am sure you are doing your best. Keep up the good work!
    twa
    My dog jumped on the stove and turned on the gas! We've been outside for 2 hours waiting for the gas guy to turn off the gas. T is loud :-(
    twa
    It's the little steps along the way that measure progress. Start a journal page so you can gauge the subtleties in your journey to recovery.
    twa
    Three days of doing normal things, going out to pick up lunch, car to the shop, getting a haircut. My anxiety about going out has calmed.
    twa
    Best couple of days I've had in 5 months. Tinnitus is still going, but hyperacusis is slightly better.
    twa
    We have thawed out here in Texas! Thankfully, most people now have power, heat, water and cable. It was a challenge with hyperacusis.
    twa
    We've had to keep faucets running 24/7 so pipes do not freeze, when I turn them off my tinnitus/hyperacusis feels so much better!
    twa
    So husband wants to know why I don't go to another doctor to fix the hyperacusis because it's unlivable, for him.
    twa
    Five days home during a winter storm with family. I wish they understood hyperacusis and tinnitus.
    twa
    I had ear burning this morning. I haven't had burning in 2-3 months. Is this caused from a noise exposure?
    twa
    Big winter storm! We are home for days, all around us neighbors are losing power and pipes are freezing. Kid and husband are home.
    twa
    Happy Valentines Day friends! Sending much love and may you have a quiet day! ❤
    twa
    Has anyone been able to go to a large event, sporting, movie, musical, etc. safely before Covid, that is?
    twa
    School is closing AGAIN on Monday and then virtual the rest of the week. It makes for louder days inside the house.
    twa
    Both husband and kiddo are home today because of the weather. There goes my peace and quiet. :-(
    twa
    What causes the change from high pitched ringing to high pitched static throughout the day?
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