Juliane
Mood:
Heartbroken
Last Activity:
Sep 7, 2024 at 8:51 AM
Joined:
Jul 3, 2023
Messages:
75
Trophy Points:
561

Post Ratings

Received: Given:
Like 3,471 3,752
Agree 54 232
Helpful 5 19
Hug 125 291
Good Question 5 12
Genius 0 2
Funny 1 20
Winner 4 36
Informative 0 41
Friendly 7 78
Useful 1 4
Optimistic 0 2
Creative 1 0
Gender:
Female
Birthday:
February 28

Share This Page

Juliane

Member, Female

Does anyone know if CT scans are noisy? I never had one before. Thank you in advance! Sep 4, 2024 at 9:08 PM

Juliane was last seen:
Sep 7, 2024 at 8:51 AM
    1. Juliane
      Juliane
      I just feel maybe this worsening is a sign from the universe that my time here is up. Nothing more for me to contribute. I am going mad from
      1. gameover likes this.
    2. Juliane
      Juliane
      I will quit my job. Don't know how I will survive but this isn't working. I need complete rest and quiet 24/7
      1. gameover likes this.
      2. View previous comments...
      3. Juliane
        Juliane
        Regular office work. But it is too exhausting. I am worsening every day
        Aug 30, 2023
        gameover likes this.
      4. brixenbrixen
        brixenbrixen
        What is about homeoffice?
        Sep 2, 2023
      5. Juliane
        Juliane
        @brixenbrixen I do work from home actually. Objectively speaking I am priviliged in that regard. But I still feel working at all makes me worse
        Sep 2, 2023
        gameover likes this.
    3. Juliane
      Juliane
      I am trying every day but this has no expiration day. It is pointless. It only dissapears when I am gone.
      1. gameover likes this.
    4. Juliane
      Juliane
      Can't keep pretending this is a life. Let's be honest, it is not. I can't imagine living years with such a stupid noise in my head. I won't
      1. gameover likes this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I know. Hang in there with me, please.
        Aug 31, 2023
        Juliane likes this.
    5. Juliane
      Juliane
      I hope that in the very near future it will be just as normal to donate some (or all) of your will to tinnitus research as to other causes
      1. 4Grace, gameover, ECP and 1 other person like this.
    6. Juliane
      Juliane
      I want that time machine already
      1. gameover, aab, SilverFox and 7 others like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        ah yes.... the ability to slap myself would be nice.
        Aug 29, 2023
        4Grace and Juliane like this.
      3. Juliane
        Juliane
        Aug 29, 2023
      4. cjbhab
        cjbhab
        I often wonder if I had a time machine or could rewind time .. could I go back and make it so I dont get T
        Aug 30, 2023
        gameover and Juliane like this.
    7. Juliane
      Juliane
      What do you still enjoy doing? I enjoy swimming (in quiet surroundings), hugging my loved ones and when I am able to lose myself in work.
      1. View previous comments...
      2. 4Grace
        4Grace
        Aug 31, 2023
        gameover likes this.
      3. gameover
        gameover
        Sep 1, 2023
      4. 4Grace
        Sep 1, 2023
        gameover likes this.
    8. Juliane
      Juliane
      Maybe I should just accept that my life will never really be joyful again but maybe it will be tolerable at best?
      1. View previous comments...
      2. gameover
        gameover
        @Wolfka Back to silence does not seem to work for me, I tried few times, though maybe not diligently enough. My T (and H) are just too severe it seems.
        Aug 31, 2023
        Juliane likes this.
      3. gameover
        gameover
        @Juliane. I do not know how but I started to sleep better with T. It is not like before (I never had sleep problems), but way better than in month 2-3. By month 4 it became much better. I tend to sleep too much again because it allow me to escape the torture. And then it messes up my sleep schedule, so not really helpful.
        Aug 31, 2023
        Juliane likes this.
      4. Wolfka
        Wolfka
        @Juliane I’m really Active during day, so in the evening I’m tired. Also during college I learned how to sleep even if there was a party in next room. This is kinda similar, but party is in my ear. Only noise in room is air cleaner which makes silent white noise. But its not running every night
        Aug 31, 2023
        Juliane likes this.
    9. Juliane
      Juliane
      Why are we going through this? I don't understand it. It seems pointless. Suffering does not make me a better person. Not at all.
      1. gameover, SilverFox, 4Grace and 2 others like this.
      2. gameover
        gameover
        Not at all. I was angry. My anger is mostly gone, I am too weak for it anymore.
        Aug 29, 2023
        4Grace and Juliane like this.
    10. Juliane
      Juliane
      3/3 Who knows how many more years of this? Losing my positivity today.
    11. Juliane
      Juliane
      2/3 I did it to myself would it be easier? No. I just don't think there is anyway to accept what T has reduced my life to. I just can't.
      1. gameover
        gameover
        I did it to myself. Believe me, not easier.
        Aug 29, 2023
        Juliane likes this.
    12. Juliane
      Juliane
      1/3 That old annoying "acceptance". I don't think I can ever accept that my tinnitus worsened due to other people's thoughtlessness. If
    13. 4Grace
      4Grace
      Hi Julian - how are you doing?
      1. Juliane likes this.
      2. Juliane
        Juliane
        @4Grace Thanks for asking. Thought I was doing a bit better but long meetings at work spiked my tinnitus. You know the kind of people who just keep on talking and talking.. I don't know what to do, I can't not take part in meetings. How are you doing?
        Aug 29, 2023
      3. 4Grace
        4Grace
        Sorry to hear. That’s what happened to me at work. T was predominantly in my right ear. It has spread to my left ear. The worsening has me in a panic. Trying to stay calm.
        Aug 29, 2023
        Juliane likes this.
    14. Juliane
      Juliane
      Has anyone here tried CoQ10?
      1. RunningMan likes this.
      2. RunningMan
        RunningMan
        I've been taking 100mg CoQ10 Ubiquinol (enhanced bioavailability and absorption) every evening for a a few years but sometimes had gaps where I didn't take it. I missed some doses recently. I can't say that I've noticed any change in my tinnitus. I started taking it because I had read it was recommended when taking a statin, which I started years back when my tinnitus was more mild.
        Aug 26, 2023
        Juliane likes this.
      3. kingsfan
        kingsfan
        yep. doesn't do anything.
        Aug 26, 2023
        Ngo13 and Juliane like this.
    15. 4alien2
      4alien2
      For 20 years I was surprised to see that you have had this, it really gives me strength to see people who have had this for years. That's a very long time and you are a very strong person and I admire you <3
      1. View previous comments...
      2. RunningMan
        RunningMan
        My tinnitus started over 20 years ago also, and just slowly got worse over the years where white noise and fans no longer masked it, but it suddenly intensified to a new level in Feb 2022, which quickly become distressing causing anxiety, depression, and greater insomnia. Not much change in tinnitus since, but now TTTS and hyperacusis. I would take the previous 20 years of tinnitus over the last 18 months tinnitus.
        Aug 26, 2023
      3. Juliane
        Juliane
        Aug 26, 2023
        brixenbrixen likes this.
      4. 4Grace
        4Grace
        @RunningMan - wow. My heart goes out to you soooo much. Honest to God I am worsening daily. I am always staying in places where my T is at least partially masked and i think its making me worse.
        Aug 27, 2023
        gameover, Juliane and RunningMan like this.
    16. Juliane
      Juliane
      3/3 accepting. I am more a neurotic perfectionist. A wrong color or smell puts me off. This is the worst condition I could have gotten....
      1. aab, ECP, Manny and 4 others like this.
      2. View previous comments...
      3. Lurius
        Lurius
        I am the same. I've been trying to change and become more accepting, but there is just no way in hell I'm in accepting this. I actually look down on people who accept this.
        Aug 26, 2023
        ECP, gameover, 4Grace and 1 other person like this.
      4. gameover
        gameover
        Same.
        Aug 26, 2023
        Juliane likes this.
      5. 4Grace
        4Grace
        Interesting. We all have some sort of OCD. At the moment once again I don’t see what coming out of this storm looks like .I went out to eat yesterday no protection had desert. I have a new angry T today. T is Angry as hell!
        Aug 27, 2023
        Juliane likes this.
    17. Juliane
      Juliane
      2/3 to fix it. BAD combo with tinnitus that cannot be fixed and requires patience and acceptance. I am highly impatient and not very
      1. SarahMLFlemmer, ECP, Manny and 4 others like this.
    18. Juliane
      Juliane
      1/3 I feel that my own personality type might prevent my healing. I am a problem solver at heart, always looking for what's wrong and how
      1. ECP, gameover, Manny and 4 others like this.
      2. View previous comments...
      3. 4Grace
        4Grace
        @Juliane I will go over the impossible for ever until I find a solution. What scares me is even if this sound was not too loud, it might still drive me crazy…. and it’s loud… and getting worse
        Aug 26, 2023
        Juliane likes this.
      4. Juliane
        Juliane
        Aug 26, 2023
        4Grace likes this.
      5. 4Grace
        4Grace
        I feel very tired of pretending things are going to be okay. Sorry I am just being honest. I wish I could say my truth here. I can’t … I see older people in peace walking around and making plans and get depressed. I feel like anyone that does not have T is blessed.
        Aug 27, 2023
        Juliane likes this.
    19. Juliane
      Juliane
      If one is living a reasonable healthy and balanced life with no excesses, I strongly believe that only time can improve or even heal T
      1. brixenbrixen, ECP and 4Grace like this.
    20. Anthony2019
      Anthony2019
      @Juliane. Have your tried hearing aids yet?
      1. Juliane
        Juliane
        No not yet
        Aug 26, 2023
        4Grace likes this.
      2. Anthony2019
        Anthony2019
        You should. They usually let you try them for free for two weeks.
        Aug 26, 2023
        Juliane and 4Grace like this.
    21. Juliane
      Juliane
      I have this feeling that my life energy has diminished, even before T worsening. I am definitely not the same vibrant person
      1. brixenbrixen and Nick23 like this.
      2. 4Grace
        4Grace
        Same ): maybe it will take a long time (sucks I know) but we might get better. You never know. Keep the hope for a better day :)
        Aug 25, 2023
        Juliane likes this.
      3. brixenbrixen
        brixenbrixen
        I changed too in a more sober person
        Aug 29, 2023
        Juliane and 4Grace like this.
    22. Juliane
      Juliane
      If the ego was dead, would T still be a problem?
      1. SilverFox likes this.
      2. 4Grace
        4Grace
        Great question. T probably forces you to have to let go of your ego to some degree. I think we would be better off if we could let of the ego with or without tinnitus. If I had to be honest, it would probably help a lot, but unfortunately, still an uphill battle.
        Aug 25, 2023
        Juliane likes this.
      3. 4Grace
        4Grace
        Was doing some reading regarding the ego. Someone said something like this. Every religion, i some way, teaches we must die before we are afraid to die. Suffering can be the only thing that destabilizes any ignorance and or arrogance. Suffering defined as anything that is not in our control. This hits home for me. I have noticed here that so many here feel bad for times when they were not kind. Incredible.
        Aug 27, 2023
        Juliane likes this.
    23. Juliane
      Juliane
      Did anyone here try cranio sacral therapy?
      1. Nick23 and Ryan Scott like this.
      2. View previous comments...
      3. Juliane
        Aug 25, 2023
      4. Juliane
        Juliane
        Thought it might be.
        Aug 25, 2023
      5. Nick23
        Nick23
        For ears hard to say but I’ve definitely received benefit from it in other ways (jaw and neck). Has to be the right practitioner
        Aug 26, 2023
        Juliane likes this.
    24. Juliane
      1. 4Grace likes this.
      2. MindOverMatter
        MindOverMatter
        Yes, in many ways @Juliane . Everything worsens with stress and anxiety, and those are obstacles needed to bypass in order to accept (for now) and look forward. To "heal", to habituate, or whatever you may call it. This is my experience too. Its not the key to everything, but being calm within (no matter the buzzing) is vital.
        Aug 25, 2023
        4Grace and Juliane like this.
      3. Juliane
        Juliane
        @MindOverMatter I just don't know if I can do it. It is too difficult, and I am too old and tired to go through such a challenge again. Would you say you have found that inner calm?
        Aug 25, 2023
        4Grace likes this.
      4. MindOverMatter
        MindOverMatter
        I've had tinnitus for just about 20 yrs. Relapse in 2019 after being fully habituated. I have more and more days where I am able to find back to inner calm again. But this is an ever ongoing process. Feeling blessed when I have good days, and can find peace within. It is never too late @Juliane and always hope. No matter age and how you feel today. Today is not tomorrow.
        Aug 25, 2023
        4Grace, PennyCat and Juliane like this.
    25. Juliane
      Juliane
      I want a new pair of healthy ears and I want them now
      1. brixenbrixen, 4Grace, Nick23 and 3 others like this.
      2. 4Grace
        4Grace
        We think the same things!
        Aug 26, 2023
        tpj and Juliane like this.
    26. Juliane
      Juliane
      Sick and tired of being sick and tired
      1. 4Grace, Nick23 and tpj like this.
    27. Juliane
      Juliane
      I think my nervous system is ruined
      1. 4Grace and PennyCat like this.
    28. Juliane
      Juliane
      Had a few decent nights in a row and now a horrible one again. T lets you think things are improving just to crush you again. The fun!
      1. jimvee likes this.
      2. cjbhab
        cjbhab
        This is exactly how it is for me too. Sorry you are going through this.
        Aug 25, 2023
        jimvee and Juliane like this.
      3. Juliane
        Juliane
        @cjbhab Thank you! This condition really pushes us to the edge.... :-( Sorry you are struggling too.
        Aug 25, 2023
    29. SarahMLFlemmer
      SarahMLFlemmer
      Praying for you; salvation, courage and strength, patient endurance, and joy-- even in the waiting. ❤️
      1. ECP and Juliane like this.
      2. Juliane
        Juliane
        ❤️ ❤️
        Aug 25, 2023
      3. Juliane
        Juliane
        I wish the same for you @SarahMLFlemmer ❤️ I think we deserve some lasting relief
        Aug 25, 2023
    30. Juliane
      Juliane
      I have always been an anxious person, but T sends me into fullblown paranoia. It's the loss of coping strategies
      1. BrOKeN_1, ECP and PennyCat like this.
      2. BrOKeN_1
        BrOKeN_1
        I also have generalized anxiety as well. I get it. Finally accepting t as an annoyance not a threat is what gradually stopped the fight or flight symptoms. I've been on the endurance wagon since.
        Aug 25, 2023
        Juliane likes this.
      3. SarahMLFlemmer
        SarahMLFlemmer
        I know. ❤️ Hang in there!
        Aug 25, 2023
        Juliane likes this.
  • Loading...
  • Loading...
  • About

    Gender:
    Female
    Birthday:
    February 28
    Tinnitus Since:
    2003
    Cause of Tinnitus:
    Noise /acoustic trauma
    Tinnitus and hearing loss. New damage made my "old" T so much worse. Life is forever changed. I am still struggling with the trauma of it all. I have become indifferent to so many things. And for that I feel guilty. I don't see a possible happy future anymore. I am sorry.