Hey. Thank so much for caring. Last week was very good, it was mostly manageable except for Saturday.So sorry to you hear you are struggling like this. I understand. How are you now?
This week has been much worse so far. I've had a spike for almost 48 hours now, so I'm going a little crazy right now. My doctor refused to give me Oxytocin until I show him more documentation, so I have requested that from the Belgian office.
Even though I haven't given up yet, I'm starting to get seriously, seriously sick of this condition. Constantly having to fight against it is very taxing. And I'm also very lonely and cannot picture a life with someone this way.
Dirk De Ridder said in one of his presentations that tinnitus "eventually becomes part of who you are" and then it becomes more difficult to treat. I asked him where exactly is this point, and he said that it looks to be around 4 years. So I still have time. But if things don't seriously improve in the next year, I will probably end my life. I can't struggle like this all the time, there is no life quality, only pain and hardship.
But I want to get my hands on the Oxytocin first and see what happens there, that's my first priority now. So my mind is bent on that and not much else.