Yah hearing loss isn't advertised as it should be.I have lost it all to tinnitus and hyperacusis. I'm not going into details as of how tragic my life has become as I know you can all relate, but I've always struggled with health issues since I was a kid. I pretty much got tinnitus and hyperacusis from loud noise exposure, so it really is my fault, can't blame anyone else, I just didn't think it would reach this level of hell. I used to think I would only lose some hearing and that was ok, I didn't know the hell that awaited me.
I absolutely love music and going to concerts, shows, raves, music festivals etc, it was what gave me an escape to the already mundane life style most people live under in this society. Music was everything to me, and so I'm completely mourning it's death. I know I can possibly listen to music again one day, but festivals and shows are completely gone forever. I used to love listening to techno, house etc pretty much the bassist of all music out there, but really what's techno without some good bass? What's house without some good hooks?
I have had many battles throughout my life, as life hasn't been easy for me, but this is by far the worst and must uphill battle I have had to fight, and I don't see myself coming out the same person I was even if I defeat it. In some aspects life hasn't always been shitty, I've honestly had some amazing years and was able to make amazing memories and friends along the way. I've dated many people and have had some truly unique experience with these individuals, truly I loved the fact that I was able to easily make friends and just be a social person all around, but that's all gone as I am not stuck in my room wishing for this Effing condition to go away. The worst part for me has bee i the stabbing relentless ear pain I've been having, tinnitus is pretty bad too but I would say it's tolerable at times.
The pain and sometimes the tinnitus has truly made me feel suicidal at times. Am I depressed? I'm depressed and frustrated because if it wasn't for this condition my life would actually be pretty Fucking good and enjoyable. Hopefully it gets well soon, at least to live a semi-normal life again, I know I'll never be the same person I was before, as music forever will just never be the same. I truly do feel for all of you, and I'm so sorry we have to go through this shit. I just want to say that I miss music, and that I will always cherish all the amazing memories I've had, I'm glad I got to live it up for many years.
Am I going to off myself soon? Probably not, but if it keeps getting worse that's always a possibility.
I was hesitating if I should reply to this post - also because I probably never had such a terrible tinnitus as the vast majority of people writing on this thread. Moreover, I'm still not healthy, so I can't fall under the "survivor" category. I still have bad days (last at the end of August).If my tinnitus dropped to mild I'd be the happiest man alive. Well maybe not happy since I'd still have PTSD because of what this shit has done to me, but the relief would be immeasurable.
Did the Klonopin help you habituate?Yes, I am 100% recovered. The depression, bad thoughts, physical symptoms, guilt, irrational fears, inability to get restful sleep, etc. are all gone. Klonopin is very powerful, has very bad withdrawal symptoms for some, and is the one that I took a few times a week for four months in 2017. You'll be fine, virtually everybody recovers from post-benzo withdrawal syndrome, even very long-term heavy users of Klonopin.
Hi. It was my first dose of Pfizer. I checked my antibodies and only got "32" from it, so that was a waste and now I am left with possible life long tinnitus.Hi @Jon R.!
Can I ask was it the first dose or second of the vax? I am concerned it will cause worsening of tinnitus and other health issues.
Thanks!
My 2nd dose of Pfizer ended my life. I have Ménière's and had mild tinnitus. The Pfizer made it severe and reactive. Taking Klonopin for 6 weeks then tapering worsened it further. I'm walking dead right now. It's so loud and shrill I want to puke. I can only hope it goes down as my immunity wanes.Hi. It was my first dose of Pfizer. I checked my antibodies and only got "32" from it, so that was a waste and now I am left with possible life long tinnitus.
Yes, I totally understand, I had 1 tone of tinnitus before this began in the days after the Pfizer vaccine, but that tone would only come out when I had a cold, now it is 24/7 and a lot worse, and 2 new tones, but reactive tinnitus and distortion. I can't cope beyond a year of this as the last month has been even worse. I am told it is likely inflammation of the nerve that will go down but I can't believe that as has gotten worse after 5 months and this is just them guessing. 24/7 multiple noise and reactive. The rumbling hum sounds like I have got a diesel truck in the next room or a electric hair shaver against my head, the shrill noise sounds like a million electrified cicadas, the reaction noise sounds a dentist drill, and the distortion sounds like a broken speaker and when anyone says anything with a S in it my ears cringe. I don't enjoy listening to anything anymore as it sounds rough and harsh. Life sucks now.My 2nd dose of Pfizer ended my life. I have Ménière's and had mild tinnitus. The Pfizer made it severe and reactive. Taking Klonopin for 6 weeks then tapering worsened it further. I'm walking dead right now. It's so loud and shrill I want to puke. I can only hope it goes down as my immunity wanes.
I truly believe there is hope... just takes a stupid long time to heal and we suffer. 1-4 years.My 2nd dose of Pfizer ended my life. I have Ménière's and had mild tinnitus. The Pfizer made it severe and reactive. Taking Klonopin for 6 weeks then tapering worsened it further. I'm walking dead right now. It's so loud and shrill I want to puke. I can only hope it goes down as my immunity wanes.
Who even knows if that's correct? AstraZeneca vaccine caused inflammation of the cochlea which resolved with Prednisone. Some people have gotten better from it, some have not yet, and some may never. It's too early to tell.I truly believe there is hope... just takes a stupid long time to heal and we suffer. 1-4 years.
Sounds a lot like mine...Yes, I totally understand, I had 1 tone of tinnitus before this began in the days after the Pfizer vaccine, but that tone would only come out when I had a cold, now it is 24/7 and a lot worse, and 2 new tones, but reactive tinnitus and distortion. I can't cope beyond a year of this as the last month has been even worse. I am told it is likely inflammation of the nerve that will go down but I can't believe that as has gotten worse after 5 months and this is just them guessing. 24/7 multiple noise and reactive. The rumbling hum sounds like I have got a diesel truck in the next room or a electric hair shaver against my head, the shrill noise sounds like a million electrified cicadas, the reaction noise sounds a dentist drill, and the distortion sounds like a broken speaker and when anyone says anything with a S in it my ears cringe. I don't enjoy listening to anything anymore as it sounds rough and harsh. Life sucks now.
I keep saying the vaccine has caused something like a noise trauma to some and they keep saying it's inflammation that will go away, but I'm not so sure anymore.Sounds a lot like mine...
Noise trauma here...
I just don't get it. I won't be getting the booster that's for sure.I keep saying the vaccine has caused something like a noise trauma to some and they keep saying it's inflammation that will go away, but I'm not so sure anymore.
Mine wasn't even originally from noise so it's affecting everyone. On the Ménière's forums people are also miserable.Sounds a lot like mine...
Noise trauma here...
My thoughts are that hearing loss is hearing loss no matter the cause. Yes probably inflammation but you get that from noise as well... :/I keep saying the vaccine has caused something like a noise trauma to some and they keep saying it's inflammation that will go away, but I'm not so sure anymore.
Yeah, I don't believe the inflammation explanation anymore. The vaccine has either damaged the hair cells or damaged the nerve IMO. I have had zero improvement over the last 5 months, even worse in fact, if there was inflammation surely that would very slowly improve symptoms not make them worse. Maybe some were lucky to just get inflammation but I really don't think I was.I keep saying the vaccine has caused something like a noise trauma to some and they keep saying it's inflammation that will go away, but I'm not so sure anymore.
Are you saying the vaccine caused hearing loss? My hearing really hasn't changed. There are instances of the vaccine causing SSHL. First time I got ringing in my ears was at age 19 from eating large quantities of 2 things I was allergic to. That went away in 4 hours. So the inflammation hypothesis is not that far fetched. Question is did it do permanent damage?My thoughts are that hearing loss is hearing loss no matter the cause. Yes probably inflammation but you get that from noise as well... :/
Same.I just don't get it. I won't be getting the booster that's for sure.
First of all I think tinnitus behaves the way it wants in a specific person no matter the cause.Are you saying the vaccine caused hearing loss? My hearing really hasn't changed. There are instances of the vaccine causing SSHL. First time I got ringing in my ears was at age 19 from eating large quantities of 2 things I was allergic to. That went away in 4 hours. So the inflammation hypothesis is not that far fetched. Question is did it do permanent damage?
Sounds exactly like my case, started with sensitivity to sound and then tinnitus came creeping the following days.I believe inflammation gave me tinnitus since it took 7-10 days after the noise trauma. It's sneaky and awful. Hyperacusis came the within 24 hours. I wish I knew what it meant back then...
I have significant loss below 1 kHz in my hearing.First of all I think tinnitus behaves the way it wants in a specific person no matter the cause.
Also I think for most people tinnitus comes from some sort of hearing loss all the way up to 20 kHz.
Not everyone. I think head tinnitus might sometimes be unrelated to hearing loss.
Stress induced or tensed muscles certainly are not hearing loss.
But we know people get hearing loss, with or without tinnitus, from the flu, ear infections and drugs.
So not far fetched to get it from vaccines as well. They are drugs and they start a flu like process too.
If you have tested your hearing up to 16 kHz and it's completely normal, you still could have hearing loss above that. If your head interprets the hearings loss as an overload, let's say you had hearing up to 19 kHz before. It's possible.
I don't know much about Meniere's disease. It's probably safe to say it increases the odds of anything at all to make it worse... Just as mine could get worse from some pills or exercise or god forbidden doing air travel...
I believe inflammation gave me tinnitus since it took 7-10 days after the noise trauma. It's sneaky and awful. Hyperacusis came the within 24 hours. I wish I knew what it meant back then...
I have a son, yes. He doesn't live with me though. He's only 10 months old.@Brian P, I forgot do you have a kid?
I've read about your troubles oftentimes.
I wish you improvements.
I feel you. Vaccine took my mild tinnitus to suicide.Fuck this shit so much. If it wasn't full of a ton of sound effects all over my right ear like warbling gobblty goob and the bass rhythmic vibraphone like droning I'd be ok.
Fuck do I ever miss this just being ringing and static. SO. Much.
If it gets worse it's a matter of when not if.
To catch COVID-19 or get worse off the vaxx. The fuck do I do?
And I seem to be the only one who gets such intense side effects from head tapping. Every time I do it, I'm left with my single tinnitus tone (which is only annoying), but then the wave of sound, like a rising tide comes in for about a two minutes at epic volumes, then back to the old baseline suicidal level as opposed to the I'd blow my head off if it stays much longer level.
I'm like an enigma.