Tryn2BHopeful

Tryn2BHopeful

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  • Tryn2BHopeful
    View previous comments…
    Tryn2BHopeful
    Honestly what I found interesting is that the hearing loss could be on a different part of the auditory system than which they test. Typically the more quiet of a sound the better the hearing. Damage from louder sounds sits on entirely different fibers that process louder sounds according to this, thus normal hearing test but still having T.
    SharonBell
    @Tryn2BHopeful did you also watch the video about cortex? What do u think about that. You think it's a scam?
    Tryn2BHopeful
    Tryn2BHopeful
    I heard something - One needs to get themselves to a point where if a cure came out tomorrow they wouldn't care. It makes sense to a point.
    View previous comments…
    4Grace
    @RunningMan - what you mention above scares the shit out of me. I do things I should not … we have to live. Lucky are those with mild and stable T.
    RunningMan
    @4Grace Unfortunately, I didn't do much to protect myself over 20 years. I mowed, was around loud music, and rarely wore earplugs. Days before my worsening, a nasty noise came through my BT earbuds while on a treadmil, and I didn't stop it for a while because I didn't want to stop exercise in midstream.
    4Grace
    @RunningMan - sorry. It's those small moments. A month prior to T and another noise trauma I cut steel in my garage. It was so loud I felt pain in my ears. Had to stop every 5 seconds for how loud it was… had I known about T….
    Tryn2BHopeful
    When do I reach the other side of this? Are all these things (habituation, etc) they say just ways of keeping me alive? Or is it real?
    View previous comments…
    Marshall
    It took me 2 years to mostly not care even when i have the random few and far between severe day. When it's bad bad it's just background noise, there is no emotion behind it. It's just there, and i never thought i would come to "habituation" i always scoffed at the bullshit people were spewing when they siad that word.
    BellaMia
    I've read people can take years. We aren't even a year in yet. Sometimes I think I might be but then nope! Mine isn't mild it bounces between moderate and severe. Causes anxiety....I've had a few mild days and what a difference! People with mild T have it a lot easier.
    4Grace
    @BellaMia - mild T can become a walk in the park. I can see that now.
    Tryn2BHopeful
    WTF is happening to me today?!?! I gotta breath.
    View previous comments…
    4Grace
    We have to stop pending our hope on the sound of T. We have to be happy regardless of what it's doing. That's hard. I so want to see you so better. You are kind and much stronger then me.
    Tryn2BHopeful
    @4Grace I am not stronger or kinder than anyone else here. I am just an unlucky bastard that got trapped by T. I have said I want to die more times than I can count. I don't normally post that here.
    4Grace
    @Tryn2BHopeful - as much as I say. I'm holding back. I feel the same my friend. I feel the same. Everyday.
    Tryn2BHopeful
    I destroyed the good life I had by taking 2 pills, or by doing something IDFK. Every day is a sprint to the end to go to sleep...Breath....
    View previous comments…
    4Grace
    This is my life everyday. Small bits of hope destroyed daily. A marathon to get to the end of each day. Going to bed with hope that tomorrow with be better. I wish you the best always.
    BellaMia
    @Tryn2BHopeful It's sad that I too feel this way. Counting down the days when death will free us.
    4Grace
    @BellaMia - :( I am so sorry to read the above from you. So sad we feel like this.
    Tryn2BHopeful
    I didn't know that I would get to witness my own death. This isn't going to ever end. I miss being happy. I am tired of tryn.
    Tryn2BHopeful
    I should stay off this site (understandably negative), but staying off this site then there is literally nobody that understands this.
    4Grace
    Just stay away from my profile and you will be okay. This is why I feel so bad. It has to be a place to vent. I am sorry. I think this place saved my life. I can't imagine doing it alone. My condition is not anyone else's.
    Ngo13
    Copy success stories onto an offline doc on your phone. That's what I did and I forced myself to only check those when I was struggling. You have to break the negative thought/reassurance cycle. You can do this. We will all be here when you check back.
    Tryn2BHopeful
    1 year ago I was fighting a monster kidney stone and I thought that was as bad as it could get. Relativity is a bitch.
    View previous comments…
    4Grace
    @Tryn2BHopeful - all my past personal problems were nothing compared to this. Know a guy - horrible T - since developed bad vertigo. Tells me V made him much less worried about T.
    cyberspace
    Things keep becoming exponentially worse for me. Tinnitus is the least of my problems now.
    Marina Moon
    Years ago i had very bad abdominal pain for 2 months, and despite going to doctors they didn't know what it was or what to do, but fortunately it went away and never came back. I used to think that was a harrowing experience. Relativity is real and is most certainly without a doubt a total heinous bitch.
    Tryn2BHopeful
    Everything I stop mirt a week later everything seems worse.... I literally took so little of it... gotta hang in there I guess.
    View previous comments…
    Juliane
    Sorry if this sounds untactful, but.... Did you not get T from a drug? I hope not from the mirt?
    Tryn2BHopeful
    @Juliane HAH yes I did, but it was not mirt. I got T from Escitalopram (Lexapro)... After I became insomnious for weeks and desperate I was given Mirt. I honestly knew no better, I will admit without it I might of ended up in a ditch somewhere or worse. At this point I think I could go without it, but I havent been able to get over the hump of withdrawal.
    Tryn2BHopeful
    @Juliane I think about the ill affects of this drug often and try to keep the dose as low as possible.
    Tryn2BHopeful
    They say tinnitus improves naturally over time... how true is that statement?! Some of the stories on TT seem to show otherwise.
    View previous comments…
    AfroSnowman
    Overwhelming people do better with this over time, sometimes through healing, sometimes through the habituation process
    RunningMan
    That same drug has left me with stomach pain going on two months after I finished off weaning off over 2 weeks after taking 10 mg for 7 weeks. I'm not sure if it has left my tinnitus any worse. It's pretty variable in cycles with no real baseline. It's a piercing squealing high frequency tone today.
    4Grace
    @Tryn2BHopeful - I got mine after many things. It was 5 days after taking that same drug. Also noise trauma around the same time
    Tryn2BHopeful
    7.5 Months, things haven't changed much for better or worse so I guess I should just stop my whining.
    View previous comments…
    L along the way
    Well.. expressing how you feel is not whining i guess...
    4Grace
    If it's not worsening and no pain it's a real positive. Honest, I would give anything for that …. I know it's still very hard for you. I am happiest when the pain subsides.
    Tryn2BHopeful
    @4Grace Mostly why I should just stop whining... I know people have it worse than me. I know things could be worse. They could be alot better to. A year ago life was going fantastic... and here we are hanging by a thread.
    Tryn2BHopeful
    2 kids to see finish school, go to college, and grow up to be fine adults. Will I even make it that far?! I feel for those younger than me.
    BrOKeN_1
    Seeing all these young kids behind headphones constantly is concerning as well. This condition is certainly headed in an epidemic direction.
    4Grace
    @BrOKeN_1 - I think the same thing all the time.
    Tryn2BHopeful
    2 Pills and a lot of bad luck changed everything. The future is no more, daily survival is my only goal. Maybe god will throw me a f'n bone.
    Tryn2BHopeful
    Habituation.... Acceptance.... CBT... TRT... Fuck. The only thing I have gotten better at is faking being OK.
    L along the way
    I symphatize, i want real healing, the real thing... plenty of rest is how i try to find it, and also just distracting myself sometimes (work, hobby's, games)
    Tryn2BHopeful
    Realizing I don't know how long I have before this condition pushes me off the edge. Going to try to enjoy what I got as much as possible!
    View previous comments…
    gameover
    @Tryn2BHopeful. I know. During my quieter/better moments I manage to enjoy some things. Food, coffee, walking in the woods, watching movie, playing chess, sex. Perhaps the last one is the most effective and allows me to momentarily forget about the torment.
    4Grace
    @gameover - I know what you mean when you say enjoying anything seems impossible. Losing interest in the things I once loved is scary. Very scary. Sex is always great. I agree with that one.
    Pinhead
    @gameover Mine totally disappears during sex and after for a few minutes. I've always wondered why.
    Tryn2BHopeful
    Saw another ENT today to get a referral, so I had no choice... again suggested LIPOFlavonoids.. At this point I figure WTF why not...
    View previous comments…
    Tryn2BHopeful
    Besides 30$ is a drop in the bucket compared to an ent visit...
    Tryn2BHopeful
    Starting taking 3 a day over the weekend. Obviously no difference as of yet, good or bad. Trying to ease my body into it, rather then 6 pills a day as recommended.
    Tryn2BHopeful
    So going into second week and upping the dose... no change as expected. Those with glucose meters be aware the amount of vit C will mess up your readings (higher)
    Tryn2BHopeful
    Amazing, they tell you not to accept ignore it as an answer... I try to schedule with an actual Tinnitus clinic... 6-8 month wait min.
    View previous comments…
    Tryn2BHopeful
    They offer TRT, Maskers, Lenire. However it should be an actual T evaluation, all I get around my area is a hearing test and an apology that they can't help. The Dr. trained under Jasterbroffe. I know there is alot of negative post on TRT and Dr. J but I got to try something whether it's that or something else.
    Tryn2BHopeful
    Who knows in 8 months maybe we will be looking at auricle
    Marina Moon
    Always ask to be notified if there's a cancellation/or on their website. That helped me see neuro faster.
    Tryn2BHopeful
    My wife is scheduling our "vacation" all I can think about is if I can handle the drive...
    kingsfan
    When i drove coast to coast, I swapped between my 1of1 custom earplugs with 26db filters, and foam plugs with Bose QC25 over top depending on the road surface. I-70, east of Denver was incredibly loud for some reason.

    Neither pair of Peltors I have helped with road noise as much as the QC25s.
    Tryn2BHopeful
    I don't usually wear plugs to drive, and didn't last time we went. That was one month after T started, I had no idea how far this rabbit hole would go. Also didn't have the hummm after I drive yet.
    4Grace
    @kingsfan - every time I hear about wearing earplugs I get depressed. My T is too loud with them on. Unbearable, painful and was too loud. The sound hurts with them on. So frustrating.
    Tryn2BHopeful
    Heard this today - It's like having a cut on your body and helplessly watching yourself bleed to death.
    4Grace
    Don't forget that almost everything you do in attempt to heal that cut only makes it worse. :( Your only hope is to convince yourself to be happy to watch it bleed and hope it does not get worse.
    Tryn2BHopeful
    I dedicated a year of my life to fighting diabetes and won... just to get Tinnitus. What luck I have.
    cyberspace
    Similar thing happened with me, was on house arrest for two years for a crime that I never committed, case finally ended, did microsuction the literal next day and this happened
    Marina Moon
    Never forget the battles you fought so hard to win! (i tell myself this whenever i feel down) You conquered one beast and you can another. Hang in here!
    Juliane
    House arrest for two years???
    Tryn2BHopeful
    So if my T is from hearing loss, why did it only show up after I took lexapro?!
    RunningMan
    Lexapro was probably a significant factor in yours as you suspected all along. I think Sertraline followed by Lexapro had some effect on my existing tinnitus with more intermittent chirping sounds (days into Sertraline) in my left ear, which have settled since being off Lexapro
    Tryn2BHopeful
    I went to the largest facility around here, could off me nothing more than a masker. I think I am done for.
    View previous comments…
    RunningMan
    They didn't even try to offer you TRT?
    4Grace
    I still go see different people for help but deep down I kinda already know. So sorry. Time may be are only hope.
    Tryn2BHopeful
    @RunningMan they didn't have it... I asked for a recommendation... was given ata.org... I mean... thanks? Now I need another referral to see someone else. So an apt to get that
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