Barry098

Barry098

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  • Barry098
    Tinnitus…the free gift that you just can't return.
    View previous comments…
    kingsfan
    @Steph1710 Yea I thought tinnitus was just hearing ringing when in silence. I never learned, even from reading about it, that it was more than that. So I thought I just had to watch out for hearing loss, since I already had ringing in silence.
    Barry098
    @kingsfan I don't mind the ringing in silence too much either. It's the ringing over everything else that makes me feel queasy.
    Barry098
    @kingsfan what do you find most distressing about your T?
    Barry098
    2 nights ago I slept for 8 hours + without waking up. This hadn't happened in over a year. Yesterday T was practically nonexistent all day.
    Shelbylynn
    Sleep vs no sleep really changes mine! One of my few things I know makes a difference
    Steph1710
    Me too! If I've had a bad night's sleep, my T is noticeably worse for it.
    ThomasF
    This is good. Congratulations.
    Barry098
    Give anyone a year straight of 24/7 water boarding and they will eventually habituate to it…this logic doesn't work for tinnitus either!
    Barry098
    I have a doctor in the family who says that she sees a new patient every day for onset of tinnitus. Tinnitus is a noisy silent epidemic!
    AnthonyMcDonald
    I hope she doesn't give them a TRT pamphlet and tell them to continue destroying their ears...
    Barry098
    No…she's seen the hell I've gone through so she's very sympathetic and caring.
    Barry098
    Ears are quiet right now but my whole body feels like it is ringing…is body tinnitus a real thing?
    AnthonyMcDonald
    Really hate to be "that guy" but have you considered this to be maybe psychological?
    Barry098
    Might be…but it is also physiological too. My whole body is vibrating at the frequency of my tinnitus.
    Barry098
    Ears were super quiet today…I don't get it. Why would they be quieter after I exposed them to loud music the night before? Makes no sense.
    View previous comments…
    Barry098
    @AnthonyMcDonald got talked into subbing (last minute) for a musician who didn't show up to a gig. Normally I would have said hell no but, I'm tired of not doing the things that I love out of fear of my T getting worse. I'm going to live my life and learn to live with the consequences of screaming tinnitus because it's never going to get better anyway and I'm tired of hiding from it.
    Barry098
    @Stacken77 ears are screaming again today, so I guess they finally realized that I insulted them the other night!
    Stacken77
    Sorry to hear that @Barry098. Yeah, it usually catches up on the end. Hang in there brother!
    Barry098
    Did a gig tonight…my ears are screaming now but I felt like I was actually alive for a change. Felt amazing!
    Barry098
    "Learn to live with it" - actually the only honest answer…
    View previous comments…
    ThomasF
    When the Doctor acts as though you're wasting their time however it adds insult to injury as direct a relationship that idiom has to the situation aside. I'd much rather Doctors treat T like its a symptom of a condition and refer patients to communities like this to connect them to resources and information.
    kingsfan
    @ThomasF It's really insulting when they are the ones that made it worse and they blow it off.
    Barry098
    I am trying to "learn to live with it again," right now I'm more in the "learning to exist with it" phase though. I just wish I had something to goto other than a pair of white knuckles…
    Barry098
    Having a real rough day...Tinnitus is unbearable right now
    View previous comments…
    aura
    Barry098
    @aura Really, just came back out of the blue one day? That is a really creepy...So, even if we beat this curse, it is still just hiding in the shadows waiting to pounce one day...
    Barry098
    We need a permanent solution for this problem! This is incredible that we are all suffering like this and have no coping mechanisms other than, "masking" which doesn't work for me and Xanax which helps a little but can't be used everyday. Wow, shame on the medical establishment for not putting all of their effort into finding a cure for the most awful torturous disease which has ever been unleashed on humanity...
    Barry098
    Tinnitus is a great remedy for people who feel like life is moving too fast...
    Matt G
    Sort of similar, but I had this same thought when Covid started in the US. As weird as this sounds, I welcomed Covid as my life was slowly becoming unlivable with how often I was on the run (so I thought).

    I wish I could go back and slap myself in the face for thinking that. Being on the run is what keeps someone like myself alive. Now I barely enjoy my weekends because of severely reactive T.
    Barry098
    There were a few moments when I felt like I was hearing silence today. What a strange sensation that was!
    Safari1999
    Me too! I woke up this morning with T so silent I thought it disappeared lol.
    Barry098
    This morning I woke up without the normal electrocution…almost peaceful.
    Jerad
    What kind of electrocution do u usually have? My T is electrical and hurts often. @Barry098
    Barry098
    My whole body feels like it's ringing most mornings @Jerad…it feels like electricity running through my body
    Barry098
    Diphenhydramine seems to help with both sleep and stopping the body jitters…wonder how long it is safe to take this stuff…
    Barry098
    I used to laugh at the idea of John Cage's composition "4:33" now I think it's the greatest piece of music ever written
    Monkee Man
    I really dig John Lennon's "Nutopian International Anthem" myself.
    Barry098
    Finally got a chance to check it out @Monkee Man …really great track! Short and sweet!
    Barry098
    I don't care at all about my ears anymore. I just can't handle the feeling of electricity running through my whole body 24/7. It's brutal.
    Barry098
    T is really screaming today…feels like my whole body is ringing…I don't get it. Why does it cause this physiological reaction?
    Barry098
    Tinnitus should be added to "death and taxes"
    Travis Henry
    Yes . My God
    Travis Henry
    I'm in pure hell right now with tinnitus and hyperacusis. I don't have a clue how to manage it.
    Barry098
    @Travis Henry just hang on and know that with time it will get easier. My ears are pretty much screaming 24/7, but I hardly notice them except for first thing in the morning when I wake up.
    Barry098
    My T was and still is super loud today…not causing anxiety though…I guess habituation is finally happening?
    BrOKeN_1
    That's good. Its not the habituation we wanted... its the habituation we got. Annoying Not Destroying.
    Barry098
    Well said @BrOKeN_1. Other than still waking up every morning with my body trembling, I am doing pretty well. Sure wish I could figure out the waking up part though. It's so uncomfortable feeling like I am being woken each morning with a hot poker!
    Marshall
    I have days where it's loud and Im super happy and it doesn't bother me at like I can really relax. And some days it's loud and I just don't have the time for it and can't sit still
    Barry098
    Tinnitus was (and still is) screaming today. Little patch of eczema flared up too. Inflammation is the culprit...I am 100% convinced...
    ThomasF
    I get Psoriasis right in the crevices of my ears. Itchy and putrid. My T is not often changed by it but when it is can be strenuous. It goes away at least.
    Barry098
    My eczema is only on my fingers and it is super itchy and painful at times
    Barry098
    Not sure if prednisone improved my T but for whatever reason it hasn't been bothering me too much since that 5 day course.
    Travis Henry
    Man I'm so close to trying dome Prednisone. Wish Ida tried it right when I got it. My t is destroying my life I feel. I have a super hot g/f and I am afraid of losing her cause of this. Been with her 5 years.
    Barry098
    T is hard on our relationships because friends and family have a hard time understanding the pain that we are experiencing. We look fine on the outside (read my last post for a coping technique I use), so they expect that we should behave like our normal selves.
    Barry098
    Look at this as a test of your ability to navigate a real life challenge as a couple. I can tell you that T has seriously tested the bonds of my marriage on many occasions. "For better or for worse," is no joke...
    Travis Henry
    Is your tinnitus in your head or in your ears? Mine feels like it's in my head. So you would suggest staying away from Benzos to promote healing ? I can't sleep consecutive hours. 1 hr 1 hr there. It's brutal how loud this is. I dunno how ima make it with no sleep. How do you sleep when it's so loud !?! I have to go around the tinnitus every moment just to think. Thank you for your reply and sharing your story.
    View previous comments…
    Barry098
    In my opinion, ear plugs that don't create a vacuum seal are worthless...I use solid core custom fit rubber plugs, and I had my ears totally jacked up with those things in because I didn't take the time to get them wet, and create a vacuum seal.
    Barry098
    @Travis Henry there is no option other than pushing on through this. Take a picture of yourself smiling and then look at it and ask yourself, is there anything wrong with this person? I will wager that the answer will be no...When things feel really bad, try to step outside of your yourself and see yourself from an outsider's perspective.
    Barry098
    It is easy for us to get lost in our own suffering...The more we can see ourselves from the outside, the easier it is to disconnect from the pain we are feeling.
    Travis Henry
    My tinnitus has been bad since the beginning of the year and I had a acoustic trauma the weekend before last. Would trying Prednisone be worth it still !?
    Barry098
    What I have learned about T is that everyone is different…what works for one person doesn't necessarily help another person. I would say it's worth a try though…you will need to find what works for you and that will require some experimenting.
    Barry098
    Had an acoustic insult last night. Ears are screaming today...I am nervous about this one because it feels like I did some damage
    View previous comments…
    Barry098
    Stopped Prednisone today…ears were about as quiet as they've been since the August injury. Hyperacusis was also very minimal. Felt a little deaf this past week but it didn't bother me. Much better feeling than the alternative! All in all, I would say the Prednisone was extremely helpful. Will definitely keep some on hand for future ear trauma events!
    Barry098
    Tinnitus was back up to its normal loud levels today. @Rockman and @Steph1710 ...looks like I have a similar reaction that both of you have while on Prednisone. Weird...I wonder what the heck is happening physiologically while on Prednisone that the T is wiped out like that...
    Barry098
    Anyway, although it is screaming right now, somehow it's not really bothering me and that is even more bizarre because it is so ridiculously loud right now and yet I totally feel at peace with it. Not going to question it too much though but just hope that I can continue to not be bothered by it. Crossing my fingers right now on this one!
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