Pinhead

Pinhead

Member From USA
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  • 4Grace
    How have things been since the wedding? Hope you are doing better.
    Pinhead
    @4Grace It's been up and down since then. For two days after the wedding I had SEVERE TTS or something, unlike any thing I've ever experienced in my life. The high-pitched shrieking has died down but it's still there. Now my tones are just more intrusive in each ear.
    Pinhead
    Every noise is causing my ears to feel full. Footsteps, water, even talking, all accompanied by a new shrill shriek that I've never had.
    4Grace
    I am at this point too.
    4Grace
    The problem is I can't survive staying in. Also cannot survive ear plugs. The more I walk in the woods or exercise the worse I get. I'm in big trouble. Cannot go inside stores. Nothing. I tried. No limit worsening. Nightmare!!
    4Grace
    I have been thinking of you and really hope you are okay. I am so sorry to hear this news.
    Pinhead
    Went to a wedding with my girlfriend Saturday. I will regret it for the rest of my life. Hearing is muffled and tinnitus is very reactive.
    View previous comments…
    4Grace
    So many people have T with no pain or worsening. Seems like everyone I know. Seems so much different for us.
    4Grace
    One of my friends had bad T but he lives as if he does not have it. Wedding. Concerts. Everything. His does not change with movements food or sound. He can have a bucket of ice cream no change. Concerts. No change.,
    Juliane
    @4Grace The friend you describe has mild T. A non-issue, I would say.
    Pinhead
    It's like a permanent state of psychosis... I can't tell what auditory stimulus is real anymore. Reality is lost. I'm gone.
    Pinhead
    The worst part of living now is waking up. Walking outside, hearing my ears scream as a car drives by. They scream as I ride in the car.
    4Grace
    I am the same. Talking in a cell phone with my hands over the speaker hurts my ears.
    Pinhead
    My prediction: There will be a connection in the future between tinnitus and the heavy presence of COVID-19 in the trigeminal ganglion.
    Pinhead
    Had a complete and total mental breakdown this morning. My main tone increased in volume many times over.
    Higo
    Sorry to hear :( hopefully it's only a temporary increase. Hope it gets better soon.
    4Grace
    So so sorry. Does your tinnitus change by touching your head? Or moving your neck? Foods?
    Pinhead
    "What does it mean to be alive except to court disaster and suffering at every moment?"
    4Grace
    Fk! Who would have ever imagined. I tried so hard. Exercising. Walking in nature. Best shape of my life. Something is eating away at my auditory nerve. Clenching teeth becoming worse and worse. This is not a life
    4Grace
    I feel like anyone without this condition is blessed. I think stable T is not a problem. H - N reactive T is a monster.
    Pinhead
    Almost told my Lyft driver to pull over and drop me off on the highway. The tires on the road just make my ringing unbearable.
    kingsfan
    You don't wanna be out of your car on the side of the highway. Trust me. Been there. Done that. Paid the price.
    BlueMoon86
    My tinnitus isn't generally reactive to noise as much as it is my own body movement but being in a car is a horrendous experience.
    4Grace
    @Pinhead - we are so much in the same place.
    Pinhead
    My office mate just had temporary tinnitus in both ears as we sat together. I looked him in the eyes and said, "Now imagine that...forever."
    Pinhead
    Came to work and my boss said it looks like someone "punched me in the face". Sinus infection in full swing.
    Pinhead
    Girlfriend went to a sauna today. Sitting in a boiling hot quiet room sounds like actual hell.
    SamRosemary
    I've heard it could be good for T though.
    Pinhead
    Maybe. I can barely walk down the street, though. Don't want to risk it. I wouldn't have any fun.
    Pinhead
    Cool. I have a fever and some kind of pimple IN MY EAR CANAL.
    Pinhead
    This will probably increase my tinnitus dramatically. This is hell.
    Pinhead
    When you are catastrophically disabled, there is no time for self-improvement or enjoyment. There is only survival.
    Pinhead
    I seem to have more SBUTTs when I eat better, take vitamins, and exercise. What the hell!?!?
    View previous comments…
    Pinhead
    Yes.
    Thizzle
    I had a crazy one the other night in my left ear and had a sensation go to my right ear, my left ear sounded like it went deaf for a couple seconds , definitely hope it never happens again
    Bob3382
    Thankfully, I have only had this a couple of times, and exercise lessens my T.
    Pinhead
    Two temporary tinnitus episodes in two hours. Help!! I don't want it to become permanent! No more tones!
    Cata
    Hi, I'm taking the liberty of writing to you here. I saw one of your posts where you said you had no trouble sleeping. Do you have loud tinnitus with horrible tones? How does your brain manage to ignore this and get a good night's sleep???
    Pinhead
    It is honestly a total mystery. It's almost like I 'black out'. I don't usually remember coming close to sleep.

    I think my brain is just happy to finally turn off. I usually have water noises playing and a very loud air conditioner as well, but neither of those cover the noise in my skull.
    Pinhead
    A friend came to visit today and his laugh peaked at over 100 decibels multiple times. I'm fucked. I'll have hyperacusis by tomorrow.
    Pinhead
    It makes me viscerally angry every time he laughs. It's so loud that my other friends cover their ears.
    It's obnoxious, and deep down I envy his ability to enjoy life. I can no longer feel anything close to that.
    Pinhead
    I honestly feel like I am in a permanent state of psychosis. I can't tell which sounds are real anymore.
    J
    I relate. It's blaring, constant and intrusive. Used to think it was music i missed the most. Now it's silence I miss.
    Karolina
    Me too. My dysacusis got really really bad lately, I often cannot differentiate between my tinnitus and distorted external sounds
    Pinhead
    I'm blown away by how my brain can push most noise to the background, seemingly in FAVOR of concentrating on my tinnitus instead. What? Why?
    kingsfan
    I have never been able to push any noise or distraction to the background. This is the crux of the issue with my T.
    Pinhead
    I miss books. I miss reading and being able to talk about what I've read. God, this is so isolating.
    View previous comments…
    Pinhead
    I mean, for most of my life, I sat in quiet and read. Years of philosophical research to work towards my PhD. So many worlds I made in my mind through fantasy and sci-fi literature, and I can't imagine a single image now. It's an empty space between my two ears.
    BrOKeN_1
    I feel very much the same way a good deal of the time if not most. The focus toward the the ringing and obsessive monitoring of this condition seems to paralysis free thought. Weirdly enough I think I do it to myself though. Because even while I find it difficult to concentrate. I can ironically sit here and read threads from tinnitus talk all day.
    Ngo13
    I found the only way I was able to read for awhile was in a hot Epsom salt bath with my violet noise mix playing. Sometimes a candle. Now I still read in the bath best but I'm able to do it in quiet. I read mostly fantasy, so it's my escapism and it's one of the only times I don't "hear" my T.
    Pinhead
    Beyond tired of the "You'll get through this" attitude of people around me. It's been three years-YOU get over it.
    View previous comments…
    Pinhead
    At this point, it's like asking me to get over the fact that I have legs and stop walking everywhere. It's absurd and pretty annoying.
    BrOKeN_1
    I feel ya. Sorry you don't have more sympathetic people around.
    4Grace
    So sorry. So true. 3 years. I can't believe it's been around 15 months for me. Can't wait at 18 months I should be fully habituated. :)
    Pinhead
    The fluctuating squeal in my right ear is really the worst thing. It's just unbearable. I can totally ignore the pure tones.
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